Patients As Partners in Clinical Research Community News

In this podcast, Rachael MacQueen, Moderna, tells the audience how an experience she had as the parent of a potential participant in a pediatric trial helped to spark an innovative approach to understanding the patient journey, and how Moderna is working with patients to improve the patient experience and lessen the burden of participation. Listen to the full podcast here: https://lnkd.in/g2jZs7VW #PatientsasPartners2025 #clinicaltrials #pediatrictrials #patientcentricity

Announcing the key topics for the 12th annual Patients as Partners in Clinical Research conference! Topics Include: ? Diversity & Inclusion ? Patient Engagement Impact Measures ? AI, Digital & Mobile Tech ? Patient Experience Data/Data Return ? Operationalizing Patient Engagement ? Early Patient Engagement ? FDA & HTA Regulatory Updates ? Flexible & Hybrid Trials ? Clinical Trial Site Engagement Learn more and register here: https://lnkd.in/ervZ2z3k #PatientsasPartners2025 #patientengagement #patientinvolvement #clinicaltrials #clinicalresearch #DEI #patientexperience

Happening next Thursday! Join us to hear how RealTime eClinical Solutions and ObjectiveHealth are enabling clinical research as an extension of patient care by integrating advanced software infrastructure. This webinar covers the impact of software for: - Leveraging process and performance transparency to enhance visibility into outstanding tasks - Meeting patient enrollment goals - Optimizing real-time data for trial performance Register here - https://lnkd.in/gFp2kiui #clinicalresearch #clinicaltrials #CRAACO

Dr Shalini Mohan, Genentech, spoke last year at Patients as Partners in Clinical Research on how the organization’s approach to inclusive research is changing the way they approach trials. "Identifying and implementing services offered really begins with having transparent conversations with the providers and institutions that care for these patients, because that helps us to learn what’s feasible." Read the full interview here: https://lnkd.in/gNKXRu3h #PatientsasPartners2025 #clinicaltrials #clinicalresearch

In this podcast, from the 2024 Patients as Partners meeting, Barry Liden, USC Schaeffer Center for Health Policy & Economics, discusses how quantitative data on patient preferences is being used to determine endpoints, target thresholds, sample size, and more. Listen to the full interview here: https://lnkd.in/eA7YhxrA #PatientsasPartners2025 #clinicaltrials #clinicalresearch #patientperspective

Join us on November 14th to hear from RealTime eClinical Solutions and ObjectiveHealth on how they’re integrating an advanced software infrastructure to enable clinical research as an extension of patient care. This webinar covers the impact of: - Leveraging process and performance transparency across an entire trial management organization to enhance staff accountability for completing outstanding tasks, meeting patient enrollment goals, and exceeding trial performance expectations - Optimizing system engagement to capture real-time data and automatically calculate turnaround or timing metrics across all study start-up milestones - Providing operational and executive leadership with end-to-end visibility at all times into trial performance Register here - https://lnkd.in/gFp2kiui #clinicalresearch #clinicaltrials #CRAACO

Join us on December 4th to hear from a panel of patient and caregiver advocates on their experiences in clinical trials and how pharma sponsors can improve patient participation. More specifically, they discuss: ? How they found their trials (specifically if they did it on their own or if they were recommended a trial) ? Where they experienced difficulties in participating (leading some to reconsider or drop out of trials entirely) ? When they thought remote trial components helped them maintain the connection to the trial ? Their recommendations for future trial optimization. Moderated by Jaye Bea Smalley, Immunovant, panelists include: ? Mackenzie Abramson, MPH, Global Genes ? Dr Patrick Gee Sr, iAdvocate, Inc. ? Yvonne McLean Florence, MDiv, National Coalition for Cancer Survivorship ? Emily Parks, POP! Register here: https://lnkd.in/gvByqJxE #PatientsasPartners2025 #PatientAdvocacy #clinicaltrials

In a webinar presented in conjunction with Patients As Partners in Clinical Research Community News, Rare Patient Voice will be sharing new results from a survey conducted with the RPV patient community. Pam Cusick, will go through the results, and what they mean for pharma. This live event will take place online on Thursday, October 24, 2-3pm ET. Register now and plan to attend what promises to be an illuminating event! https://lnkd.in/gr2Pdycj #ClinicalResearch #ClinicalTrials #PatientPerspectives

Happening Tomorrow! Rare Patient Voice is sharing new results from a survey conducted amongst their patient participant community. Pam Cusick, Senior Vice President, will go through the results, and what they mean for pharma, before a live audience Q&A. Attendees will hear patient perspectives on: ? Whether or not they’ve participated in a clinical trial ? Their relative awareness of clinical research ? Their content preferences for learning about clinical trials ? Who they view as trustworthy sources when it comes to information ? Overall barriers to and concern about research Register here: https://lnkd.in/gr2Pdycj #patientsaspartners #clinicalresearch #clinicaltrials #patientperspective

Learn how Kylie Sands, MBA, CCRP, St. Lawrence Health, and her team bring clinical research as a care option to their rural community in St Lawrence County, making the most of a small staff and strong priorities. "We first try to focus on general education surrounding clinical research. We want to make clinical trials accessible and the often complex processes surrounding them easier to understand." Read the full interview here: https://lnkd.in/gjQ3D945 #PatientsasPartners2025 #CRAACO #clinicalresearch #clinicaltrials