Your Ableism is Showing (Here's What You Can Do About It)
Sarah Dwan
Autistic Disability Advocate | Writer | Speaker | Educates for Neuroinclusion | Amplifies Neurodivergent Voices
In businesses and organisations, where diversity and inclusion are championed as the cornerstones of progress, a persistent issue remains largely unaddressed—ableism. For example, how can you genuinely claim to embrace “diversity and inclusion” while simultaneously holding the same old interviews based on the same old neuronormative standards? All this does is highlight your little regard for human diversity. What about neuroinclusion? What about neurodiversity, i.e., neurological diversity? The question is simple - do you want true inclusion, or do you merely want to appear inclusive? The difference is glaringly obvious to those of us within the disability community. The reality is that many organisations unwittingly perpetuate ableist practices, hindering the potential for a truly inclusive and diverse work environment.
Understanding Ableism
Discrimination against disabled individuals has prevailed for centuries (Braddock & Parish, 2001). So much so, that it is woven into the fabric of human consciousness. Yet, up until relatively recently, this harmful social norm had no identifying label. That was until the first known use of the term “ableism” in 1976 (Miriam-Webster Dictionary). Identifying ableism only opens the door – the real work lies in stepping through and actively challenging its roots within our structures and mindsets.
Ableism is the systemic discrimination against disabled individuals. It infiltrates workplaces discreetly, trickling through the nuances of everyday practices. It is embedded in hiring practices, workplace policies, and the very infrastructure that defines corporate spaces. The first step towards dismantling ableism is acknowledging its existence and understanding its impact.
Ableism stands out as one of the most deeply ingrained and widely accepted societal prejudices (Wolbring, 2008). In Europe, disabled individuals face an unemployment rate two to three times higher than their counterparts. Specifically, in Ireland, the situation is even more concerning, with over 60% of disabled individuals being unemployed (United Nations Enable). This highlights the urgent need for inclusive practices and supportive policies to make sure everyone has an equal chance. Blending social and rights-based disability models through the lens of the neurodiversity paradigm is a significant step in dismantling ableism within organisations and society at large. Now, let's examine each of these perspectives.
Medical Model of Disability
Contrary to popular belief, disability is not an inherent deficit; it is the result of societal barriers, misunderstanding, and a lack of support. There is more than one lens through which to view disability. The outdated medical model views disability as an individual problem. Its focus is diagnosing, treating, and rehabilitating. It often emphasises "cure" or ‘fix’ narratives to address disability, pushing the notion that we are somehow “broken”. Failures in employment or education are often attributed either to the disability itself, viewed as a “roadblock to achievement”, or to the individual's supposed "psychological weakness" and dismissed as a "lack of resiliency" (Linton, 1998). Ableism is rooted in this widespread and traditional approach to disability, which not only not only fuels discrimination but also poses a significant barrier to achieving authentic inclusivity.
Social Model of Disability
On the other hand, the progressive social model views disability as not solely a result of an individual's difference but as largely influenced by social and environmental factors (Shakespeare, 2013). It suggests that society creates barriers that limit our participation and inclusion. The focus is on removing these barriers, providing adequate support and promoting equal rights, access, and opportunities for us. ?Models serve as vehicles for translating concepts into action. The medical model stems from the notion of personal tragedy, while the social model is grounded in the idea that external factors create barriers. Unfortunately, organisations often cling to the outdated medical model, perpetuating stereotypes and misconceptions that further strengthen the foothold of ableism within our society.
The Neurodiversity Paradigm
While not a standalone disability model, the neurodiversity paradigm offers a perspective that builds upon existing models. Humanity depends on neurodiversity for its flourishing, in the same way an ecosystem depends on its biodiversity. ?Simply put, neurodiversity is the biological fact that all humans have different brains. On, the other hand, the neurodiversity paradigm is one way to view humanity’s neurological diversity. It's important to note that neurodiversity (fact) and the neurodiversity paradigm (approach) are not the same. The former emerged as a term in the '90s, whereas the latter was outlined in 2012 by Dr. Nick Walker (Walker, 2021).
Principles of the neurodiversity paradigm:
It’s worth noting that these models are not mutually exclusive, and different models may be more applicable in different contexts or for different purposes. For instance, the neurodiversity paradigm doesn't reject the pathologising of various forms of neurodivergence (e.g. epilepsy, acquired brain injury, etc.) or oppose consensual attempts to address them. However, it strongly objects to their discrimination (Walker, 2021).
Ableism in Organisational Practices
Unpacking all the different ways in which ableism exists within workplace culture is beyond the scope of this essay. Instead, let's focus on one important aspect, the gateway to any organisation - the hiring process. It's rife with bias and inaccessible hurdles that inadvertently exclude qualified individuals. From non-inclusive job descriptions to interview processes that disregard different communication styles, ableism hides behind the excuse of sticking to old ways.
Points to Consider
1. Non-Inclusive Job Descriptions
2. Rigid Interview Structures:
3. Overemphasis on Traditional Resumes:
4. Lack of Accessibility Information:
5. Unconscious Bias in Selection Criteria:
6. Inadequate Training for Interviewers:
7. Exclusive Personality Assessments:
8. Limited Remote Options:
9. Unclear Communication:
10. Underrepresentation in Recruitment Efforts:
Workplace policies can be equally exclusionary. The lack of accommodations and inflexible structures create an environment where the strengths of disabled individuals are suppressed. The physical and digital landscapes of organisations are often filled with accessibility challenges. A lack of ramps, elevators, or braille signage can make physical spaces hostile for individuals with mobility or visual differences. Similarly, digital platforms, often the lifeblood of modern businesses, can be a minefield of inaccessibility, shutting out those who navigate the world through screen readers or alternative input devices.
Is Alternative and Augmentative Communication (AAC) even acknowledged, let alone supported in your organisation? And if not, then, can you genuinely claim that your organisation “champions diversity and inclusion”? It's time to stop viewing diversity through the narrow lens of the medical model and start recognising the immense value that neurodivergent and/or disabled individuals bring to the table. For example, research indicates that Autistic individuals exhibit superior attention to detail, work ethic, and performance compared to neurotypicals, yet face disproportionately high rates of unemployment (Scott et al., 2017).
Implementing Change
Achieving inclusivity demands a radical transformation in organisational mindset, beginning at the highest levels of leadership. Leadership commitment is not a mere checkbox on the diversity agenda; it's the driving force behind lasting change. Organisations must actively engage in dismantling ableist practices by adopting inclusive hiring processes, ensuring workplace policies accommodate diverse needs, and investing in accessible infrastructure.
Let's be clear: accommodations are not “special treatment”; they are essential adjustments that level the playing field. Flexible work schedules, accessible technology, and ergonomic and sensory-aware workspaces are not luxuries but necessities for promoting an inclusive environment. Adopting the social model of disability through the lens of the neurodiversity paradigm means acknowledging and supporting disability and/or neurodivergence, valuing each unique perspective. This leads to an organisation that advances BECAUSE of its diversity. Conformity doesn't propel humanity forward, and it certainly won't drive progress in your organisation.
Overcoming Resistance
Resistance to change often stems from misconceptions and unfounded fears (Forsell & ?str?m, 2012). The notion that accommodations are a drain on resources is a fallacy—investing in accessibility is an investment in the organisation's future. Resistance to change is a mistake that businesses can no longer afford to make in a world where diversity and inclusion are not just moral imperatives but significant drivers in:
As Disability Consultant, Trainer and Speaker, Jamie Shields , so aptly states,
“Equality is everyone getting a pair of shoes. Diversity is everyone getting a different type of shoe. Equity is everyone getting a pair of shoes that fits. Acceptance is understanding we all wear different types of shoes. Belonging is wearing the shoes you want without fear of judgement.”
Here, Jamie drives home the positive impact of building a genuinely inclusive society. Now, let's consider some actionable steps you can take within your organisation to start this much-needed shift:
Leadership and Culture
Intersectionality Considerations
Inclusive Hiring Practices
Accessibility and Infrastructure
Neurodiversity and Inclusivity Programs
Training and Awareness
Revamping Hiring Practices
Dismantle neuronormative notions
Communication
Prioritising Accessibility and Inclusive Assessments
Advocating for Workplace Accommodations and Feedback
It's time for organisations to step up and confront the pervasive ableism embedded in their practices. The journey towards inclusivity is not a choice; it's an obligation to create a workplace that reflects the true diversity of human experience. It demands an investment of time, a commitment to understanding, a willingness to unlearn, and the courage to challenge long-held beliefs. This won’t happen overnight, but we must start somewhere. Together. The businesses that take on this challenge will not only succeed in the present but will be better positioned to navigate the uncertainties of the future. Your ableism is showing—is your organisation ready to change that narrative?
References
Braddock, D., & Parish, S. (2001). An Institutional History of Disability (pp. 11–68).
Disability and Employment | United Nations Enable. (n.d.). Retrieved 31 December 2023, from https://www.un.org/development/desa/disabilities/resources/factsheet-on-persons-with-disabilities/disability-and-employment.html
Forsell, L. M., & ?str?m, J. A. (2012). An Analysis of Resistance to Change Exposed in Individuals’ Thoughts and Behaviors. Comprehensive Psychology, 1, 09.02.10.CP.1.17. https://doi.org/10.2466/09.02.10.CP.1.17
Linton, S. (1998). Claiming disability: Knowledge and identity. New York?: New York University Press. https://archive.org/details/claimingdisabili00lint
Miriam-Webster. (n.d.). Ableism. In Miriam-Webster.com Dictionary. Retrieved 30 December 2023, from https://www.merriam-webster.com/dictionary/ableism .
Scott, M., Jacob, A., Hendrie, D., Parsons, R., Girdler, S., Falkmer, T., & Falkmer, M. (2017). Employers’ perception of the costs and the benefits of hiring individuals with autism in open employment in Australia. PLOS ONE, 12(5), e0177607. https://doi.org/10.1371/journal.pone.0177607
Shakespeare, T. (2013). The Social Model of Disability. In L. J. Davis (Ed.), The Disability Studies Reader (4th ed., pp. 214–221). Taylor & Francis. https://ieas-szeged.hu/downtherabbithole/wp-content/uploads/2018/02/Lennard-J.-Davis-ed.-The-Disability-Studies-Reader-Routledge-2014.pdf#page=221
Walker, N. (2021). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities. Autonomous Press. https://neuroqueer.com/neurodiversity-terms-and-definitions/
Wise, S. J. (2024). We’re All Neurodiverse. Jessica Kingsley. https://www.livedexperienceeducator.com/
Wolbring, G. (2008). The Politics of Ableism. Development, 51(2), 252–258. https://doi.org/10.1057/dev.2008.17
TEACHING ASSISTANT
9 个月Unless HR departments embrace these key qualities within ANY sized organisations (notably local Councils), sadly nothing will change. I have proof that Shropshire Council promised to email and post out my P45 and 2 statements pertaining to earnings however it was only issued by email. I have zero income as UC have suspended payments but don’t cover cost of travel to appointments. UC inform SC should offer me counselling but no contact made by phone or email. The only communication is Council Tax demanding £ for the 2 months of PAID employment when their HR department agreed to have me sacked. I was too fearful to divulge my neurodivergence when in my 6 week employment yet still fear leaving my home when the Executive Headteacher is in situ at the last school. Isolated by the local Catholic community at St W’s church, shunned by my mother’s husband and belittled by their “real” daughter (high flying job with a famous watch company and purchased a house on Lake Geneva to accommodate her children, husband and friends), I am only called upon to sort out the printer when it breaks or download an app on a ridiculous phone or set up Netflix and yet not one single person (with a few exceptions) will help me.
Head of SEND Statutory Service Hull City Council
10 个月Very interesting read, thank you.
vice president Global Chief Inclusion & Diversity Officer at Starbucks | Nonprofit Founder | Board Director
10 个月Beautifully written, thank you for sharing. I've seen disability left out of DEIB conversations before, and it's always important to be able to reflect upon potentially biases, whether those be your own or ones that you notice within your organization.
Very interesting article Sarah, I love this guidance for employers. The employment gap persists as does the lack of societal acceptance of diversity because of such ableism and the inability of employers to adapt their ableist rigidity to benefit from the talent pool of many disabled people that can help these organisations better meet disabled customers needs also. Like with other comments, as a person with visual impairment, I have been advised to not disclose!