Is It Wrong To Say Asperger's Syndrome?
Asperger’s Syndrome, once considered a distinct autism spectrum disorder, has undergone significant reevaluation and change in terminology in recent years. In this week's newsletter we'll take a look at the origin of the term, the reasons for its phased-out usage, and the impact of this change on the neurodiversity movement.
The Origins of Asperger's Syndrome
The term "Asperger’s Syndrome" was coined to describe individuals who exhibited what Hans Asperger, the Austrian paediatrician, identified in 1944 as “autistic psychopathy”. This condition was characterised by difficulties in social interaction and nonverbal communication, alongside restricted and repetitive interests and behaviours. Notably, linguistic and cognitive development appeared to remain unaffected, distinguishing this profile from other forms of autism.
Transition to Autism Spectrum Disorder
The transition from using the term "Asperger's Syndrome" to simply referring to "autism spectrum disorder" (ASD) came with the publication of the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) by the American Psychiatric Association in 2013. This edition eliminated Asperger’s as a separate diagnosis and merged it under the broader category of ASD. This change aimed to improve diagnostic accuracy and consistency across the board, as the distinctions between Asperger’s and other forms of autism were often blurred and inconsistently applied.
Why the Change?
Several reasons prompted the shift away from the term "Asperger’s". Firstly, the variability in diagnoses between different regions and practitioners led to inconsistencies that affected treatment and support. Additionally, new research suggested that the differences between Asperger’s and other forms of autism were less clear than previously thought, with overlaps in behavioural and cognitive profiles.
领英推荐
Furthermore, the legacy of Hans Asperger has come under scrutiny. Recent investigations have highlighted his involvement with the Nazi regime, particularly concerning his role in the regime's euthanasia programme. This troubling association has spurred some within the neurodiversity community to distance themselves from his name.
Impact on the Neurodiversity Movement
The shift from Asperger’s Syndrome to autism spectrum disorder reflects a broader movement towards inclusivity and understanding in neurodiversity. It underscores the spectrum nature of autism, recognising the wide range of abilities and challenges faced by individuals. By using the umbrella term ASD, the community can advocate more effectively for resources, understanding, and acceptance.
Looking Forward
As our understanding of autism deepens, so too does our language and approach towards it. Moving away from Asperger’s Syndrome towards a more inclusive and unified understanding of autism is a positive step for the neurodiversity community. It not only aligns with scientific insights but also fosters a more accepting and supportive environment for all individuals on the autism spectrum.
In conclusion, the evolution of the term "Asperger’s Syndrome" is not just a change in nomenclature but a reflection of the growing maturity and empathy within the neurodiversity movement. As we move forward, it is crucial that we continue to embrace these changes, ensuring that our language and actions support the diverse needs of the neurodiverse community.
I still describe myself as diagnosed with aspergers, the "label" doesn't really matter so long as people understand the meaning and connotations that go with it.
Occupational Therapist
6 个月I wonder how all those who identified as “Aspie” felt at the change. It does highlight the difficulty where a clinical diagnostic label becomes an identity. One is supposedly based on evidence, research and rigor across a population, diagnosed based on set criteria by specific clinican professionals while the other is as individual as those who claim them. All labels are doomed to obsolescence as either a result of new insights or perceptions of negative connotations by new generations. I predict ASD has started its decline and no doubt ND will follow.
EMEA Talent Manager at Kaseya | Building R&D COE
6 个月It was once common practice to refer to it as Asperger's, but societal norms have evolved, and now using a different term is considered more appropriate, while studies evolve it may change again, but now that's a good discussion over a pint.