Wow! How? Eating Disorder Recovery

Wow! How? Eating Disorder Recovery

Thirty million people in the U.S. will have a clinically significant eating disorder at some point in their lives. Treatment gaps mean that only a fraction of sufferers will receive the care they need due to the high cost of traditional, in-patient treatment and a scarcity of mental health professionals available for some populations and regions, particularly rural areas of the U.S. Stigma and deep-seated misunderstandings of who is likely to be affected by an eating disorder also prevent people from getting care. Worst of all, eating disorders are deadly and disabling. An estimated 3.3 million healthy life years are lost annually worldwide due to people relapsing because eating disorders are so difficult to overcome.

In my book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, I introduce a new way to look at the true picture of suffering due to people’s needs not being met by mainstream health care. Feeling isolated and invisible, like nobody understands your needs, is a recipe for disaster. People living with eating disorders often find themselves in that lower-left quadrant.

2x2 matrix. Vertical axis is labeled Visible at top, Invisible at bottom. Horizontal axis is labeled Needs not met on the left, Needs met on the right. The lower left quadrant is labeled Needs not met, invisible, likely isolated.

Kristina Saffran is one of those 30 million people who was diagnosed with an eating disorder. Happily, she lived to not only tell the tale of her recovery, but also co-found Equip, a patient-led company that aims to democratize access to eating disorder treatment. I’m proud to say that I’ve been an advisor to Saffran and to her co-founder, Erin Parks, Ph.D. , since the beginning of their partnership because peer-to-peer health care is at Equip’s core.

Founded in 2019, Equip provides a virtual-first, evidence-based treatment model that includes a five-person care team: physician, therapist, dietician, peer mentor, and family mentor. And it is covered by many major insurance plans in all 50 states.

Let’s listen to people with lived experience, like Saffran, and help everyone join the patient-led revolution to heal health care.

Alice Williams

Volunteer Patient Partner, Wilson disease and organ donation advocate.

1 年

Just bought your book. Loving it!

Maitri Carmichael

Graduate student in Psychology. Commercializing Hawaii's first microbiome test, to measure and manage aging. Member of Hawai'i Angels. Student of Zen. Former molecular biologist, biotech entrepreneur, and vegan chef.

1 年

I tried to get Equip in Hawaii for my daughter but there was so much red tape that it was impossible. They said the only way to do it was for $5,000 per month, so I decided to DIY it with Family-Based Treatment. I wish access were easier. Thank you for bringing light to this! ??

回复
Rita McGrath

C-Suite Strategist | Thinkers 50 Top 10 | Best-selling author | Columbia University Business School Professor

1 年

We need to start a movement of peer-to-peer, low social-distance and human solutions to care problems. Paul J. LeBlanc

Fernanda Bigolin, Ph.D

High-Reliability Organizations - HRO | Healthcare Interoperability | Safety Culture | Patient Safety | Digital Health | AI | Linkedin Creator

1 年

Thanks for sharing, Susannah Fox!

Tory Cenaj

Founder and Publisher, Partners in Digital Health

1 年

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