World Scleroderma Day

On this day – #WorldSclerodermaDay – I’ve unsurprisingly been thinking about the 2.5 million people worldwide who live with scleroderma; a debilitating condition that causes damage to connective tissues and blood vessels over time. We stand with the scleroderma community today as we recognize that it’s vital to raise awareness of the fact it can often co-exist with other conditions. Did you know that around 1 in 10 scleroderma patients develop pulmonary arterial hypertension (PAH)?

I recently posted about the critical need for earlier diagnosis for those with PAH, and I believe another piece of the puzzle is to ensure people living with connected conditions like scleroderma are made aware of the link between the two. Greater awareness could result in these patients receiving both a faster diagnosis and swift support to slow progression.

#scleroderma #pulmonaryarterialhypertension #PAH #raredisease #JanssenAtOurBest