What is a Patient Registry Software?

If you need a patient registry software, please contact us at [email protected]

A?patient registry?is a clinical database that collects information about patients who are affected by a particular disease or exposed to a specific therapy.

Doctors and clinical investigators have been gathering and analyzing clinical data across multiple therapeutic areas for several decades for both research and patient care purposes.

Patient registries began with manual data extraction from patient records and all the work was performed in paper. However, health technology has evolved a lot, allowing interoperability and automatic transfers of information from electronic health records and patient data platforms (among other sources of clinical data).

Without doubt, patient registries play an essential role in health care systems by monitoring and informing the quality of medical care and generating new clinical knowledge that can lead to improved patient care.

For instance, cancer patient registries —which are implemented at regional, national, and international levels— contain highly relevant data for clinical and translational research in oncology.

These registries are typically created to gather clinical data on specific cancers in order to comprehend the progression of the disease and develop more effective treatments.

What is an electronic patient registry?

An electronic patient registry is a web-based software application used to collect uniform data of patients having a particular diagnosis or treatment.

Electronic patient registries are employed to keep track of patients affected by a specific disease, including data related to their medical history, diagnosis, treatments, and other health-related information.

These registries can be used to improve patient management in daily medical practice, but they are also useful for clinical research projects.

Doctors may create electronic patient registries using a spreadsheet program, such as Microsoft Excel, or a database program, such as Microsoft Access.

Nevertheless, even though these basic tools can be useful to manage a rather small number of patients at local level, more powerful systems are normally required to carry out larger national or international studies.

Electronic patient registries and their use in cancer research

Electronic patient registries are widely used in clinical studies across multiple diseases, being oncology one of the main areas of research.

Electronic cancer registries are extremely beneficial for clinical research since they offer clinical data that improves the understanding of the course of various cancer types.

For example, a registry of cancer patients allows to collect the date of the initial diagnosis and the date of metastasis.

At the same time, the date of treatment initiation and the date of tumor progression (worsening) to this treatment can be used to assess the progression-free survival of a patient with respect to certain antitumor drugs.

On the other hand, cancer registries collect long-term follow-up dates of patients, recording the dates of death caused by the tumor they suffer.

You can continue reading this article here:

https://www.sofpromed.com/what-is-a-patient-registry-software