What is one thing you wish more people knew about dementia?

As a home care agency owner, I've been involved with dementia, from both the perspective of individuals living with it as well as their families and caregivers. I've also seen the impact firsthand within my own family.

It's no secret that navigating dementia can be frustrating. For the family caregivers, the challenges are immense: patience thinning, social circles shrinking, and finances strained. For those living with dementia, the struggle is equally real, demanding constant adaptation and understanding.

That's why recognizing these challenges is crucial. Only then can we truly offer the support they need.

Here is a list, in no particular order, of things I wish everyone will think about when interacting with a caregiver, someone living with dementia, their own family member, or even a client with dementia.

1. Always lead with respect.
2. People with dementia are not dumb.
3. Dementia is not just memory loss.
4. Big groups and lots of noise can be overwhelming.
5. They’re not always wrong.
6. They might be bored.
7. A poor memory can be scary.
8. Just because they can’t remember your name doesn’t mean you aren’t important to them.
9. They are not to blame for their disease.
10. How you say something can be more important than what you say.
11. Arguing is a waste of time.
12. Don’t think or ask someone to “just try harder”.
13. Ignoring symptoms won’t make them go away.
14. Some medications can cause confusion.
15. Caring for a loved one with dementia is demanding and complex.
16. Learn all you can about dementia--knowledge is key.

Remember, even small gestures of understanding and compassion can make a big difference in the lives of people living with dementia and their caregivers.

I’d love to add to this list.

What would you add?