We're Hiring | New Study: Latinx Californians Make Up 7.3% of Sickle Cell Disease Cases, 11% Among Latinx Newborns | Join PHI at APHA

We're Hiring | New Study: Latinx Californians Make Up 7.3% of Sickle Cell Disease Cases, 11% Among Latinx Newborns | Join PHI at APHA

New Study: Latinx Californians Make Up 7.3% of Sickle Cell Disease Cases, 11% Among Latinx Newborns

Sickle Cell Disease (SCD) is a hereditary blood disorder that can cause devastating complications.?Latinx are the second largest population affected by SCD in the U.S. but research has largely ignored how this rare disease impacts Latinx communities nationwide. A new study from PHI's?Tracking California found?that?out?of all SCD cases in California, 7% were Latinx—and Latinx newborns made up 11% of SCD cases in the state.?

“The study will go a long way to bringing awareness about the impact of SCD in the Latinx community,” said Jhaqueline Valle,?lead study author and director of the California Sickle Cell Data Collection Program at PHI’s Tracking California. She calls for?an increase in community awareness and education, especially among the Latinx community and their providers about SCD, sickle cell trait, and how it is passed on; and more resources in Spanish for people living with this disease and those who care for them.

Help spread the word:

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Join PHI at APHA 2022

The American Public Health Association (APHA) Annual Meeting begins this weekend in?Boston, November 6-9. Find?all the details on PHI's posters, presentations and special sessions—including?Advancing Racial Equity through State Governments, a panel discussion on Monday, November 7 at?2:30-4pm ET?featuring?Dalila Madison Almquist from PHI's State of Equity team, who will discuss?national states strategy for advancing racial equity. Explore our APHA 2022 Digital Guide?→

Upcoming Webinars & Events

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A Playbook for New Rural Healthcare Partnership Models of Investment

Wednesday, November 9 | 10-11am PT

Join the American Hospital Association and PHI’s Build Healthy Places Network to explore how hospitals and health systems can partner with the community development and public health sectors to maximize their impact and more effectively reduce poverty, advance economic development and improve health in rural communities. Register →

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Webinar: Disaster Risk Vulnerability for People with Disabilities

Thursday, November 10 | 11:30am-1pm PT

In this webinar, PHI's Pacific ADA Center will share how to access data on disability and natural disasters for your local community; explore how natural disaster risk for people with disabilities differs across U.S. communities; and dive into research methods?to analyze and better understand disaster risk for people with disabilities. RSVP →

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Decolonizing Data Practices through Indigenous Evaluation Approaches

Monday, November 14 | 1-2pm PT

Learn organizational policies and practices that?support evaluation strategies rooted in racial equity, as well as approaches to authentically engage and collaborate with Indigenous populations to support their control over how public?health data and knowledge is generated, analyzed, documented and shared. This is the third webinar in a?four-part series?on data and equity, hosted by?PHI's Public Health Alliance of Southern California and our Center for Wellness and Nutrition. Tune in →

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National Overdose Prevention Leadership Summit (Virtual)

Tuesday-Wednesday |?December 6-7

Join PHI at the National Overdose Prevention Leadership Summit, featuring more than forty-five speakers from across the country who are saving lives by changing systems, hearts and minds. Topics include: addressing the rise of fentanyl; integrating health equity across prevention, justice and treatment; using data to act more effectively; adopting innovation within and across systems; learning from youth and people with lived experience; and developing person-centered approaches that save lives. Register →

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More from PHI

  • Advancing Equity with BIPOC-led Community Development Corporations: PHI's Build Healthy Places Network recently launched the Community Innovations for Racial Equity project, to advance?community development and healthcare partnerships that will?effectively propel racial equity. A new article shares how BIPOC-led Community Development Corporations?are engaging with the healthcare sector and championing race-conscious partnerships, policies, approaches and investments. Read the article?→
  • Fall 2022 Updates: Telehealth Policy Finder: Across the country, no two states are alike in how they define and regulate telehealth. PHI's Center for Connected Health Policy has updated their Telehealth Policy Finder tool, which compiles related laws and regulations across all 50 states and D.C.,?as well as at the federal level. The Fall 2022 update adds in Puerto Rico and Virgin Islands as jurisdictions, and launches a new category to track federally qualified health center Medicaid fee-for-service policies. Explore the tool and see the report summary, fact sheets & more?→
  • New Tool:?Utah Healthy Places Index: The Healthy Places Index (HPI), an easy-to-use data and policy platform created by PHI's Public Health Alliance of Southern California in California, is now in Utah. Use the Utah HPI, a collaboration with the Utah Department of Health and Human Services, to understand how different neighborhoods experience community conditions known to impact health; find which neighborhoods should be prioritized for investments; and explore actionable policies and programs to support community health and equity. Explore the Utah HPI?→
  • Using Telehealth to Address?Rural Health?& Equity Challenges: Telemedicine can help rural residents gain better access to general and specialized healthcare services, allowing patients?to receive critical care from a broader pool of medical professionals?without needing?to travel long distances. "When the pandemic hit…telehealth became kind of an ideal tool in a lot of ways to continue to provide this healthcare service," said Mei Kwong,?director of PHI's?Center for Connected Health Policy, in?the Daily Yonder. Read the full article?→

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We're Hiring

PHI is dedicated to promoting health, well-being and quality of life for people throughout California, across the nation and around the world. Join us:

  • Administrative Assistant IV:?Oakland, CA (Remote). Located with?PHI's?Cypress Resilience Project, this role?will work closely with the Program Director to manage their calendar;?support the full Cypress team with workshop and meeting logistics;?establish and manage electronic document storage system;?and provide back-up support for training coordination.?
  • Communications and Development Coordinator:?Remote, USA.?This role will help co-create and implement a communications strategy for PHI's Rise Up, including?all external communications such as website, public relations materials?and collateral.
  • Bilingual Community Care Specialist II:?Oregon (Remote/hybrid). Located with PHI's Tracing Health,?this position provides?client services, outreach?and administrative support for projects serving residents of Washington County, Oregon.?

See all open positions at PHI?→

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Your support helps us build community power, advocate for change, train tomorrow’s leaders, and share our expertise with the world. Donate →



This article is a version of our recent PHI newsletter. To receive PHI updates directly in your inbox,?sign up here. You can also opt in to receive our additional mailings, including our Job Alerts, Dialogue4Health Web Forum announcements and more.

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