We want to hear from you! ?? Living Well Snapshot Survey
Beacon for Rare Diseases
No rare journey alone. Previously known as Findacure.
Please take 30 seconds to answer 3 questions if you have or care for someone with a rare disease and live in the UK.
Metabolic Support UK and Beacon are currently working together to develop a free training series on legal protections for individuals and families affected by rare diseases. Your participation is vital for us to secure funding and to develop the programme.
Less than two weeks to go! ?
?? 2nd October 2024, 18:30 - 21:00
?? The Clayton Hotel, Cambridge
Calling academics, students, industry and healthcare professionals!
Join us at our Cambridge Rare Disease Showcase – where stakeholders from across the community come together to help shape the future of rare diseases.
This unique event serves as a platform for fostering collaboration, building new partnerships, and driving innovation across the rare disease landscape.
By uniting our expertise, we can accelerate breakthroughs that will make a real impact to the lives of patients.
Why attend?
?? Explore new collaboration opportunities: Connect with a diverse group of professionals and advocates who are passionate about rare diseases. Forge meaningful connections that can inspire new ideas and partnerships.
? Listen to engaging lightning talks: Hear five-minute presentations by select delegates on topics ranging from cutting-edge research to patient advocacy stories. Meet our lightning talk speakers!
?? Immerse yourself in thought-provoking conversations: Enjoy an evening of exciting discussions, delicious canapés, and the chance to celebrate innovation and collaboration in the rare disease community.
Upcoming webinar
Get ready to recruit: How to prepare your charity for growth
?? 11th October 2024,11:00 - 12:30pm BST
?? Online
Join our webinar, led by the DSC, to learn how to grow your charity! ??
The process of preparing to recruit can be daunting. We are hosting this webinar to demystify the recruitment process, so you can lay the essential groundwork required to begin growing your charity.
What will we cover?
?? Identifying the skills you need: Assess your team’s current skills and expertise, from this you can identify the experience needed for a new role to help guide your recruitment decisions.
?? Navigating the legal requirements: Get an introduction to the policies and procedures required to comply with employment laws and regulations.
?? Planning financially: What to consider when creating your budget e.g. salary, pension, equipment and insurance.
Upcoming masterclass!
Hire with impact: Recruitment training for patient groups
Spread across?four interactive virtual sessions, this comprehensive course will equip you with the skills and knowledge needed to successfully navigate the recruitment process.
The masterclass will be conducted in a?small group setting, providing ample opportunities for personalised interaction with our expert trainers.
Sessions:
?? Creating the perfect job role: 17th October, 11:00 - 12:30
?? Finding the best candidates: 24th October, 11:00 - 12:30
??? Shortlisting and interviewing: 7th November, 11:00 - 12:30
?? Onboarding and retention: 14th November, 11:00 - 12:30
Next week!
The fundamentals of fundraising without a fundraiser
?? 24th September, 11:00am - 12:30pm BST
Don't miss the chance to gain practical tips and fresh strategies to enhance your fundraising efforts!
What will you learn?
? How to choose the right fundraising stream
?? Laying the foundation for success
Our very own Fundraising Team will be leading this webinar! With a combined 19 years of fundraising experience, our trainers will provide the guidance and skills you need to take your fundraising efforts to the next level.
Limited spaces available! Secure your spot now ??