Muscular Dystrophy Association

?? On #WorldScienceDay, we're proud to highlight the incredible impact science continues to have on the lives of people living with neuromuscular diseases. For nearly 75 years, MDA has led groundbreaking research, transformed care, and driven advocacy efforts that have shaped the field of neuromuscular disease. Join Jeffery Chamberlain, PhD, as he shares exciting details about MDA's 2025 Annual Clinical & Scientific Conference (March 16-19 in Dallas, TX)—a global gathering of researchers, clinicians, and advocates making a difference. Register today at?MDAconference.org? #MDAConference?

What can you expect at #ASGCTBreakthroughs24? Two incredible keynote speakers, Drs. Carsten B?nnemann and Louis Kunkel, more than 60 pieces of original muscular dystrophy research, and endless chances to connect with experts + colleagues. Join the Muscular Dystrophy Association and ASGCT online or in-person Nov. 19-20 at Breakthroughs in Muscular Dystrophy! Visit https://lnkd.in/gSEV5j9E to view the program and register today.

Muscular Dystrophy Association will host the 12th annual MDA Passport to a Cure Gala on December 6th from 6-11pm at the Westin Kierland Resort, in Scottsdale, Arizona. The event will honor MDA Advocate Jax Cowles, a project manager in luxury, who lives with spinal muscular atrophy (SMA). Jax has advocated with MDA to provide resources and a voice for those within the disabled community. Jax shared, “I am proud to be honored by the Muscular Dystrophy Association at the annual MDA Passport to Cure Gala. MDA has always been a place where not only you can reach out to for support but also a place where you can make true connections to help guide you through life’s challenges.” MDA Scholarship recipient, Serena Desiderio, a student at University of Arizona, who lives with limb-girdle muscular dystrophy (LGMD), will be the mission speaker at the event attended by hundreds of supporters. April Warnecke, Good Morning Arizona (Arizona's Family), Meteorologist, and longtime supporter and advocate for MDA, will emcee the event featuring a ‘Denim & Diamonds’ theme. For sponsorship inquiries, to purchase tickets, or donate: ?? https://lnkd.in/eGfRRHYM Thank you to our Gala Sponsors:? Presenting Sponsor, Certinia Platinum Sponsors, Cigna Healthcare #Nonprofit #Partnership #Fundraising #Neuromuscular #MuscularDystrophy #ALS #SpinalMuscularAtrophy #SMA #LimbGirdle?#LGMD

When living with a #neuromuscular disease, connection to resources, information, and – most importantly –?others is key! Join us at the MDA Engage Symposium in Irvine, CA on November 9th to learn from expert clinicians from the UC Irvine on various topics related to disease understanding, advancements in research, resources for independence, tips for daily living, and more! This one-day educational event is FREE. Lunch will be served. Register today at:?https://lnkd.in/e-J9VnxK? ?? Special thanks to our Engage supporters Johnson & Johnson and argenx.??

The 38th Annual CITGO-MDA Corporate Golf Challenge was held October 13-14 in Houston, TX. This two-day event raised more than $1.1 Million, making a big impact towards accelerating research, and advancing care to empower the people we serve to live longer, more independent lives. All of us at the Muscular Dystrophy Association are so grateful for the support of CITGO Petroleum Corporation and their vendors and partners. Together, you’re fueling continued momentum towards a world without limits for people living with neuromuscular disease. Read more here: https://lnkd.in/emidcv3x Carlos Jorda, Edgar Rincon, Billie Vitasovic, Lauren M., Donald S. Wood, PhD, Michael J. Kennedy, MBA, Dr. Stanely Appel, Tracy Shield Denton, Liz Ortega. #Partnership #Fundraising #Nonprofit #FuelingGood

The #MDA Engage Symposium is coming to DALLAS, Texas on Saturday, November 9 from 10am to 3:30pm CT at the Renaissance Dallas Hotel. We’re bringing families, medical professionals, and the local community together to connect and learn.?Dr. Susan Iannoccone from UT Southwestern Medical Center and Dr. Daragh Heitzman from Texas Neurology will co-chair the event and share information on advancements in treatments for people living with amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), myotonic dystrophy, ultra-rare neuromuscular diseases, as well as research and clinical trial updates for all neuromuscular diagnoses. Tips for daily living including nutrition, exercise, and transitioning to adulthood will be included. This one-day educational event is FREE. Lunch will be served. Register today at https://lnkd.in/eKU57CXx.?? ?? Special thanks to our sponsors Mitsubishi Tanabe Pharma America and Sarepta Therapeutics

DEADLINE REMINDER to submit abstracts for the 2025 MDA Clinical & Scientific Conference: ?? Highest priority will be given to abstracts submitted on or before Friday, November 15 for oral presentations.? ?? Final deadline for abstracts is December 31, 2024.? ?? All abstracts automatically qualify for the poster session. Seize this opportunity to share your insights, connect with industry leaders, and contribute to the advancement of #neuromuscular disease research and care. Read the abstract guidelines: https://lnkd.in/e598Dain #MDAconference

?? November is National Family Caregivers Month! ??? This month, we’re honoring the selfless dedication of family caregivers supporting loved ones with neuromuscular diseases. Join us in celebrating the resilience of families. “When someone is diagnosed with ALS, muscular dystrophy, or a related neuromuscular disease, they may feel alone, but Muscular Dystrophy Association ensures no one faces a diagnosis without support. Our Resource Center team is available to provide information and assistance,"?Nora Capocci, EVP of Healthcare Services. Explore MDA’s Caregiver Support Guide and Resource Center—tools designed to assist caregivers every step of the way, and read the featured family stories including Ginny and Cliff Eby, parents of Brooke Eby who lives with amyotrophic lateral sclerosis (#ALS, also known as Lou Gehrig’s disease); Alexis Lopez, mother of Tatum and wife of Justin Lopez, who lives with limb-girdle muscular dystrophy type 2B (#LGMD); and Monica Ramos, mother of Danny, who lives with Bethlem myopathy. #NationalFamilyCaregiversMonth #MuscularDystrophy #Neuromuscular

Muscular Dystrophy Association's VP of Disability Outreach and Empowerment Mindy Henderson, and MDA Advocate and disability rights activist Madison Lawson offer their best tips for a smoother experience at the polls, sharing why preparation and support can empower every voter. Read their insights in HealthCentral’s article. For more resources visit MDA’s #AccessTheVote page at MDA.org/Vote #VOTE

Happy Halloween! Check out Katherine and her family, all dressed up and celebrating at The White House Hallo-READ event on the South Lawn. They said, "It was really amazing and an opportunity of a lifetime!" Katherine, who lives with spinal muscular atrophy (SMA), and her family are incredible advocates for the mission of the Muscular Dystrophy Association. We're wishing everyone a safe and happy day! ?? ?? ?? #HappyHalloween