Is trust at scale an oxymoron?
Michael Westover
Healthcare Executive, Product Innovator, Interoperability Champion
I’m in a car on the way to the airport after two conferences in Nashville. Everyone kept saying how important “trust” is, but I wasn’t always sure what they meant by it.
In terms of health interoperability and for the purposes of this article, there are two flavors of trust:
Take care not to confuse them. It is possible to construct an elegant trust network with participants who distrust each other.
Imagine a scenario in which everyone on the network felt cajoled, manipulated, bribed or coerced into joining. These individuals might trust the infrastructure but do the least amount of data exchange possible. They could make excuses to not share anything, and they might even try to undermine the network.
How humans and other life forms build trust
There’s a good deal of research around how individuals and teams build trust, even if they have had historically acrimonious relationships. Here are a few steps my team takes when working with our ancient adversaries – the health plans:
Our attempts to forge relationships with health plans do not always work out, and that’s expected. People are busy and have other priorities. We’ve had some great successes and developed some great partnerships though.
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Betraying your partners’ trust while building your trust network
As you build your network, don’t violate your participants’ trust hoping that a solid technical framework will be enough to keep people engaged anyway. Here are some examples of behavior that would discourage trust in a network and between network participants:
It’s understandable that you are eager to launch the product and to convince others to join, but do it the right way. At the very least, structure your framework in such a manner that participants could eventually have confidence in each other.
Balancing strong relationships with the long tail of trust
Many healthcare entities have a small number of partners that are critical to their success. A provider organization, for example, might have a handful of priority health plan partners, other providers, and a few technology vendors that have an oversized impact on their business. With these prized relationships, the parties involved need high levels of trust in the network and in each other.
For the long tail of other organizations that have little impact on the business, it may not be possible to build strong personal relationships with all of them. The total number of exchange requests could still be high even though data exchange is infrequent with each one. These low-volume partners may not need strong personal relationships, but they will need to rely on a secure network when the need for exchange arises.
By combining a few close data partnerships with broadly accessible-but-secure data networks, we could indeed have a kind of trust at scale. We cannot have it though if the trust we have in the network or in our closest partners is frequently broken. Actual trust is so much better than the alternative of talking about trust while pitting groups against each other as they struggle in a deeply flawed network.
I would say that reciprocal data exchange is a challenging term to define in multistakeholder networks. The scenario in the first paragraph is very real for 95% of the clients I work with: small clinics, Public Health departments, and social service providers. I consistently hear from organizations that would rather build their own systems or networks (some do). In fairness, I would say it is more because of previous issues with Health IT vendors than HIEs, however, it goes back to the trust factor (or lack thereof) and onesidedness in data exchange, generally, this is not thought of in the right terms though, while organizations do get data back, it is usually a narrow set of options, such as ADTs, or CCDs that may not provide any value to that organization, but it is reciprocal data exchange. Secondly, a "two-tiered" governance structure further diminishes trust when product vendors attempt to build their own business rules into a system, essentially creating complex permission workarounds when community governance groups are not aligned with the vendor rules, thus further deterring involvement. Note: In California, this is more visible due to certain social service needs covered by health plans.
Retired Healthcare Administrator
2 个月The challange stems from a lack of common agreement on purposes of data exchange and use. Trillions of data bits and still no basic patient health/treatment plan shared and updated across the healthcare environment. Has HIE data been integrated with public health needs based on lacking such basic exchange during COVID, I hope so?
President and Chief Executive Officer at Velatura LLC.
2 个月This is excellent advice and realy hard to do in an environment where the doctors don't truly trust the hospital, the hospitals distrust the payors, payors tend to distrust them back, and collectively they have a certain disdain for the state and local government. I also see some degree of a failure by them all to genuinely trust the patient. In my experience US healthcare entities appear to trust activities that pay them more and reduce their legal liability. I have done all the steps you outline and it works, it just takes a great deal of time. Given the poor alignment of incentives in the system and the evidence of decades of delay, the best way to help motivate interoperability is to pay, fine, or regulate ( in that order), and if you want to see patients drive more of the process, just give them more control of the money!
Principal, Quadraim Health Partners | MBA, FHIAS, PMP
2 个月Lots of great thoughts here Michael. Thank you for your leadership on this. Many folks likely left town wondering how trust can scale given the history of distrust among payers and providers. One way to begin to build trust is to put the patient-member in the center of the discussion. Yes, payers and providers have priority partners. Those partnerships serve the bulk of their patients and members. But what about the patient that isn't part of those relationships? Both the provider and the payer are duty-bound to work towards improving the health of all patient-members, not just the ones where special relationships (or funding) exist. If requested, should a payer expect to receive a robust encounter-based clinical record at the close of every encounter for any member seen anywhere in the country regardless of the payer-provider relationship? I believe HIPAA and Cures taken together says "yes". The regulations don't negate the need for trust, but they do define field of play. Developing "trust" nationally at scale - to serve all patients, not just those in priority relationships - can only be accomplished with a common DURSA and the necessary teeth to enforce it. Affecting this across QHIN's might be a good place to start.
Healthcare Interoperability | FHIR, HL7, X12 | Ex-Epic | Software Developer | Azure, AWS, GCP
2 个月Love this. Trust in a network is built upon actual relationships and real-world scenarios. Technical frameworks and rules create guardrails but do not fully engender trust. Working together towards shared value is a simple way to get organizations to exchange data with each other.