STATE SIDE FAMILY

Dealing with Autism

Compiled by Mark Pears

When dealing with autism, just as in most other disorders, you will be faced with a number of treatment options for yourself or your child. These include treatments that are educational, behavioral, biomedical, nutritional, and sensory. Unfortunately, for patients who are not affluent or who do not have good medical insurance, the cost of these treatments can be pricier than what they can afford. One way to ensure that you or your child receives the best possible treatment for autism is to carefully monitor the effects a treatment has over time. By finding out which treatments work and which do not, you can stop paying for the ineffective methods and put more of your money into those which are creating a positive difference.

First, evaluate the abilities of the autistic individual before treatment begins. To do this, many services and organizations, including the Autism Research Institute, provide a checklist of evaluation points that focus on behavior and illnesses associated with autism. Autistic individuals tend to have increasing functionality as they mature, so remember that some of the positive effects in his or her life are simply due to the natural growth process. However, after two months fill out the checklist once again and compare it to the first. Are there any sharp positive increases in behavior characteristics? If so, this is more likely due to the treatment.

It is important to begin only one treatment method at a time. If you try everything at once instead, good and bad effects may cancel one another out, or even if the effect is totally positive, you will not know which treatment method is causing it and which are not doing anything. Of course, past studies can help you choose which methods to use, but because autism is an extremely complicated and individual disorder, these studies are not always helpful. Also, some treatments are so new that the studies done are only on short-term effects, which is usually unhelpful. Instead, it is a process of trial and error. Two months is a good amount of time to study the differences within an autistic individual trying a new treatment? After two months, if you do not see positive improvement, you can discontinue your use of that particular method and better invest your money in treatment options that work.

Remember that you do not always have to wait two months to make choices about whether to continue or discontinue a treatment method. If the side effects of a medication, for example, are interfering with the patient's life in an unbearable way, then you should discontinue the treatment. You can also make continual treatments based on immediate good reactions-just remember to continually monitor the various methods. Autistic individuals grow and mature just like everyone else, so treatments may stop working after time. Before trying anything new, consult your doctor to make sure you are being as safe and healthy as possible. 

Doctors and Diagnosing Autism

When a doctor first suggests that your child has autism, your immediate reaction might be disbelief and the urge to seek a second, third, or even fourth opinion. Because autism is so different in every child, it is a tricky disorder to diagnose. However, there are a few key ways in which doctors can efficiently identify autism in children, and if your infant or toddler is showing any of these signs of autism, you should visit your pediatrician immediately to express your concerns.

Autism occurs at a young age, rather than being a disorder an older child might develop. It is usually detected before the age of three, and many times much earlier. The first signs or autism are usually delays or regression in speech communication. Another early sign is abnormal behavior in group play situations and other social situations. The first step to diagnosing autism is a thorough physical examination as well as a review of family history by a specialist. Although your regular pediatrician will be able to spot unusual behavior, you'll want your child to be examined by a professional who specializes in autism and other similar diseases to make sure your child is properly diagnosed.

The next step includes hearing tests. Sine language and social skill delays could be due to inadequate auditory sensations. There are two types of auditory tests, one of which records the tones a child can hear and the other of which requires sedation and measures the brain response to certain tones. Of course, the first method is preferred, since it does not require any use of a sedative. After auditory testing, your doctor may encourage testing your child for Fragile X syndrome, which often times goes hand in hand with autism. Metabolism can also be evaluated. To do this, your doctor will need a blood or urine sample to analyze DNA.

An MRI or CAT scan can also be helpful in diagnosing autism. The important thing is to work with doctors you trust. Second opinions can be very helpful, but when your child has been diagnosed, stick with one doctor so that treatment is uniform and so that your child will get used to this person. Autism is difficult to diagnose and even more difficult to treat, so remember that you should begin to learn as much as possible about the disorder as soon as your doctor identifies it. If you have yet to speak with your doctor about abnormal behavior in your child, do so immediately. By detecting autism early, you give your child a better chance at becoming a high-functioning individual with much more opportunities in life.

Know Your Rights: Laws and Autism

If you or your child has autism, some of the most basic things you can study and learn are your rights. Every American citizen is protected under the constitution, and there are special laws that have been passed to help protect people with autism and other disabilities. By knowing the laws that protect you or your autistic loved ones, you can live in a world that provides better opportunities to everyone, regardless of not only disability, but also race, gender, and ethnicity. This is simply the first step to creating a more tolerant world in general.

The first law with which you should become acquainted is I.D.E.A., or the Individuals with Disabilities Education Act. The I.D.E.A. covers children ages 3 to 21 and provides autistic children with the special educational programs they need. The I.D.E.A. gives parents the right to be involved with education decisions concerning their child made by the school. Your child first needs to be assessed to qualify under the I.D.E.A., and this is best done by a private professional. In the end, your child has the right by law to receive a free public education that is appropriate for his or her skill level. If your public school has no such program, they are required to find one or create one at no cost to you.

Also become familiar with and knowledgeable about the American Disabilities Act. Under this act, discrimination due to disability is prohibited in the workforce, as well as with state and local government, public accommodations, the United States Congress, public transportation, and telecommunications. For example, if you are autistic, but have the skills to do a certain job, you cannot be refused the job because of your autism.

Other laws provide rights for people with autism so that they are constitutionally equal to others. One such law says that people with autism have the right to vote, and accommodations must be made so that this is possible. Another says that autistic individuals cannot be refused housing based on disability. Others provide equal rights in all other aspects of life, and these should especially be studied if your loved one with autism is in a health care institution. By knowing the law and how it applies to yourself or others with autism, you can be sure that justice is upheld. If you have questions, local law officials should be ready and willing to answer you or provide you with material to answer your own questions. Remember that ignorance of the law is not a valid excuse for anyone, so be an advocate for yourself or others with autism to prevent mistreatment.

Dietary Concerns: Glutton and Casein

Autism is a disorder that must be treated with a variety of methods since there is no effective way to completely cure it. One of the ways you can help keep the symptoms of autism under control is by studying diet. Parents of children with autism have reported that by controlling diet, they see a significant difference in their child's behavior. Two of the main dietary concerns are glutton and casein.

Glutton is a substance found in many common food products, with wheat, rye, and oaks being the main culprits. Casein is found in dairy products, such as milk. If you or your child with autism eats many foods with these products in them, such as breads or cheeses, you may be able to better control autistic behavior by decreasing consumption of such foods.

The difficulty in digesting both glutton and casein comes from an inability to digestively handle the peptides in these substances. Since they are not broken down as in a normal body, these extra peptides are absorbed into the blood stream. Elevated levels of peptides disrupt major brain functions, contributing to the effects of autism. By cutting foods containing glutton and casein out of you or your child's diet, you can help the body with the process of breaking down the peptides present in the body. To see if you or your child has a high absorption rate of these peptides, your doctor can administer a simple urine test.

Speak to a nutritionist or doctor before making any major changes in your diet. When you decide to cut glutton and casein from your diet, do not attempt to do this all at once. Cutting anything from your diet suddenly is unhealthy, and your body could go into withdrawal. Instead, slowly begin reducing the amounts of breads, grains, and milk products until you are eating none. You doctor can provide you with a complete list of all the foods containing glutton and casein if you truly want to cut them all from your diet. However, it may be necessary to get the nutrients that you find in glutton and casein products in another way, such as with dietary supplements. Again, your doctor can help in this decision. Overall, maintaining a balanced diet is the healthiest thing to do. Leaving glutton and casein products out of your or your child's diet may help control autistic behavior, so it is an option that should be considered, but eating a healthy diet altogether is the best way to keep you and your family healthy.

My Child is Autistic-and I don't Know what to Do...

Discovering your child has autism may be a distressing ordeal, and unfortunately, time is of the essence. As a parent, you do not have the time to consider why or how this happened, only what to do next. The most important thing to remember is that you are not alone in your struggle. By researching the disorder and finding others going through similar situations, you can help you child while still dealing with your own emotional response.

Join a support group for parents with autism. You can find these by contacting the national Autism Society of America. From there you can find local branches, many of which offer support groups for parents and families with an autistic child. Being in contact with other parents in a similar situation can not only help you feel less alone, but it can provide you with a myriad of resources. A parent support group will also help point you in the direction of the best doctors, intervention programs, and workshops for both your child and your family. Find a support group for any other children you have as well. Many parents forget that they are not the only ones who must learn to live and communicate with an autistic child. By locating a support group for your other children, you can help them from acting out or acting against the autistic child by teaching them about the illness. As a parent, you must create a supportive environment for the entire family in order to properly manage your child's illness.

Consider marriage counseling if you are married. An autistic child can put serious strain on a marriage, leading to escalating arguments, neglect of each other, and even perhaps blaming each other for the situation. Marriage counseling from the very beginning can help a couple through this discovery and rough transition, and help build a better supportive environment for your children. Your marriage should not end as a result of having an autistic child, but the sad fact is that many of them do. Prevent this by using one another for support and by understanding that you may need help to deal with one another now and in the future.

Most importantly, start on the path to becoming an expert. Many times pediatricians or psychiatrists are not experts on autism, which can lead to improper diagnoses or incorrect treatment options. As your child's best advocate, you must know everything you can about autism. Parents of Autistic Children can be a great resource; this organization offers training and workshops. The ASA has a newsletter and also offers a variety of information, from diagnosing to treating. As always, remember that a support group of parents with autistic children can always provide you with books and research that focus on the reality of the situation. Educate yourself and those around you to provide the most beneficial things for your child-love and guidance.

How a Hug Can Help Your Autistic Child

Autistic children and adults often seek pressure in a variety of ways to calm themselves and cope with sensory overload. Oftentimes, hugs and squeezes from other people can cause more distress because autistic children or adults are often unable to communicate their needs by indicating a particular amount or length of pressure. This is both frustrating and ineffective for both the autistic person and whoever is hugging or squeezing them.

The hug machine was created to help relive this frustration, putting autistic individuals in control of their situation. Both children and adults who suffer from autism sometimes crave pressure to help calm anxiety. Because of this, one woman with autism developed the hug machine, also known as a hug box or a squeeze machine. The hug machine has two padded sideboards connected near the bottom of the boards to form a V-shape. A lever helps push the sideboards together to create pressure; the lever also allows the autistic child or adult the ability to control the amount and length of pressure.

Studies are still being conducted to find out why those with autism respond to pressure and how it can produce a calming effect. The hug machine may affect the heightened sensory perceptions of those with autism who often feels disruptive or distressing behavior. By applying pressure, perhaps the autistic child or adult moves his or her focus to a single feeling-the pressure-which in turn produces a calming effect. For many autistic children and adults, anxiety can be completely incapacitating. Not being able to function with the anxiety is frustrating, and so appropriate social behavior is even more difficult. Sometimes, the only release from such anxiety is through pressure. To this day, the hug machine is used by several programs and researchers studying autism as well as therapy programs.

Remember that hugging or squeezing an autistic child may not help him or her. You may, in fact, increase their senses and cause more anxiety. Though you may not be able to purchase a hug machine, you may be able to create a similar object. Try wrapping the autistic child or adult in a blanket, where they can control how much pressure to apply. You can also look into buying padded boards that more closely simulate the hug machine's side-boards and perhaps tie or tape some heavy-duty yarn to each side to allow the autistic child or adult control over how much pressure to apply and for how long. Contact your child's school to see if there has been any interest in purchasing a community hug-machine. This may not be a cure to all your child's problems, but it works well to help many autistic individuals cope with the world.

Self-Injury: How to Stop this Dangerous Practice

Many wonder why anyone would practice self-injury, as it is painful and dangerous. However, with autistic children, self-injury occurs more often than not. There are several theories as to why this practice can be prevalent in autistic children, and there are some methods you can use to help ease this distressing practice.

Because autistic children are unable to communicate through language the way that others can, they often feel frustrated at not being understood or at not getting what they need or want. Thus, autistic children may commit self-injury, by banging their heads or biting themselves (among other tactics), to release some of that frustration that cannot be communicated through words. Also, self-injury is a way of getting attention. An autistic child's frustration goes hand-in-hand with wanting attention. For instance, by scratching oneself until one bleeds, the autistic child will immediately get someone's attention, and this person will work to understand what the child wants or needs.

This theory of frustration and attention has been the sole thinking for quite some time. Recently, however, studies have shown that self-injury can have a biochemical component that relieves some of the pain and frustration one feels by releasing endorphins, or "happy hormones," into one's system. The endorphins also provide a release for the autistic child, allowing him or her to temporarily forget about his or her frustration and pain. Furthermore, it is believed that if one practices self-injury enough, the endorphins will begin to help mask any pain associated with such behavior, making it an addictive action.

While some professionals say that ignoring the autistic child's self-injurious behavior is an acceptable method of treating such practice, this can obviously be very difficult. Others have suggested that communication therapy and drugs may help an autistic child by providing him or her with another method of communication. There are drugs that will help stem the addictive behavior of releasing endorphins into the system, and thus help stop such behavior. There are also nutritional solutions available; vitamin B6 and calcium have been said to help many families with an autistic child.

For the family members involved, communication training to learn how to communicate with an autistic child is also extremely important. Because normal adults, and even children and teenagers, are so accustomed to communicating through easily recognizable words or body language, they have to learn that communicating with an autistic child requires a completely different process. By looking for solutions for both the family and the autistic child involved in self-injurious behavior, one may be able to overcome this distressing practice.

 School to Work

One of the most major transitions in any person's life is that from school to work. In high school or college, many people lead a protected life and are still helped financially and otherwise by their parents. After school, these ties are often cut, leaving the recent graduate to fend for his- or herself. This transition is scary for anyone, but even more so for an individual with autism. Because school is a time to learn to live with peers in a controlled environment, the work force is a difficult concept for autistic people because one must often deal with new situations daily rather than have the comfort of a set living situation.

One of the main things autistic graduates need to learn is how to deal with people in a business world. This includes proper grooming, something that may not have been such a big deal in high school or college. Proper grooming, such as brushing your teeth, wearing appropriate clothing, using deodorant, and combing your hair probably comes natural for most people, but an autistic person needs help with these tasks-he or she may not realize that they are being inappropriate. By this stage in life, many autistic individuals who have gone through schooling are at a maturity level where they can do the task assigned with no problem and avoid outbursts in most situations. In fact, it has been shown that some autistic individuals are highly skilled at tasks involving things such as math or music. Learning a new job in the work force is not the problem-relating to others in a social situation is.

These relationship problems also, unfortunately, help people take advantage of autistic individuals. Most people who suffer from autism believe that all people are like themselves, and inherently good. In business, it is sadly very common to come across companies and business people who do not practice ethically. This often shocks autistic individuals, who may have no idea how to handle this sort of situation. Others in the work force may also not be skilled to deal with autism, leading to bad relationships among employees. By hiring an autistic individual, employers must not only teach them their new job, but also provide direction for others who have to work with him or her. Intolerance in the work force is common, and autistic individuals need to be prepared for this.

Musical Therapy to Treat Autism

Musical therapy is a relatively new treatment method for autism patients, but one that should not be overlooking when discussing options. Patients who receive musical therapy often should great improvement in temperament and learning skills. Music connects to the non-verbal part of our brains, making it a perfect therapy for disorders in which the patient has trouble communicating, such as autism. Research this innovative treatment method if you are looking for some help with autism and haven't had much luck in the past.

Musical therapy is effective because it can be used in conjunction with learning social skills. Music is a very non-threatening medium for patients, and many games can be played using music to help improve social and behavioral skills. By encouraging eye contact while singing or using instruments that need to get close to the face, musical therapy can help autistic individuals break social barriers.

The number one way that musical therapy can help children, as well as older autistic patients, is by helping with the development of speech skills. Music is a way to connect the verbal and non-verbal functions in the brain. Autistic individuals may have various forms of speech problems. Some can only hum, grunt, or make other non-word noises, while others babble nonsensical phrases or cries. Still others gain the capability to put together phrases and sentences to communicate with the world, although these usually lack emotion. Autistic people are known for monotone voices. However, no matter how skilled the individual is with speech, he or she can participate in musical therapy by clapping rhythms, humming along, or doing simple echoing songs.

Autistic individuals are commonly found to be particularly good at music. Some, for instance, have perfect pitch. Others can play a particular instrument very well, with little instruction. Even if he or she shows no genius musical ability by normal standards, you may find that a particularly hard to deal with autistic person has abilities in music that exceed his or her other abilities. A musical therapist can use music as a way to link this kind of learning with other kinds of learning, not only as speech development and social behavioral development as previously discussed, but also as a way to communicate emotions and develop memory.

By using all of these techniques in conjunction with one another, musical therapy can work wonders with people who are autistic. Trained professionals can use music to teach children and others how to communicate in nonverbal ways, making it easier for patients to learn. Research the musical therapy option to provide you or your child with another choice when treating autism.

Overall, it is important for people with autism to realize that there will be a major change between life in high school or college and life in the work force. It is probably very beneficial for these individuals to seek help in the transition from therapists, family members, or mentors. Going from school to work is difficult, but with a little motivation and hard work anyone, autistic or not, can succeed.

Dealing with Autistic Teenagers

For most parents, one of the most trying times in their lives is during their child's teenage years. When puberty hits, young adults go through serious changes in their bodies and minds, and parents have little or no control over many situations. In an autistic child, puberty is no different. Although you’re autistic child is not experiencing puberty in quite the same ways as others his or her age, major hormonal changes still occur in the body. This can lead to extreme results, and this can be either good or bad depending on how your child reacts to the new hormone levels.

One of the scariest side effects of changes in an autistic person's body is the onset of seizures. Many autistic individuals experience seizures from birth to adulthood, but even if your child does not suffer from these episodes, he or she may begin to experience seizures during puberty and afterwards, due to the new levels of hormones in the body. Strange as it may sound, violent shaking seizures are not necessarily a bad thing. Almost a quarter of autistic children experience seizures, but many go undetected because they are not textbook versions of seizures. If you recognize that your child is experiencing a seizure, you can do something about it, and doctors will be able to better treat your child. However, if the seizures are subconsciously happening, you and your child may not realize it. The result of these small hidden seizures can be a loss in function, which can be devastating, especially if you child was improving before puberty. Regular check-ups during puberty, therefore, are extremely important.

The changes might not necessarily be a bad thing. New hormone levels in the body and the other changes associated with puberty might help your autistic child grow and succeed in areas in which he or she normally had no skill or interest. Many parents report that their child's behavior improved, and that learning in social settings was easier.

The important thing about puberty is to learn to monitor the changes in your child very carefully and to ask your doctor lots of questions. Remember that puberty is a difficult experience for any young adult, and so it will be even more difficult for someone with autism. Try to practice patience and understanding with your teen, and be careful to regulate his or her autism so that the transition from child to adult will go more smoothly. 

The Unfortunate Epidemic: Sexual Abuse in the Autistic World

One of the most perverse problems in an autistic individual's life is the threat of sexual abuse. This can come in the form of rape or simply be in an abusive relationship. Because autistic people spend much of their lives feeling different and left out, they often enjoy sexual experiences for one reason: it puts then on a playing field equal to others. It is very easy for this to become a controlling part of a relationship. The most important thing to remember is that autistic people experience sexuality in much of the same way that others do, no matter how highly functioning they may be. Parents should teach their child about sexuality from an early age in order to prevent sexual abuse from happening.

The most valuable command that anyone can learn in relationship to sexuality is "No." Teaching this to even children can be very useful. In this respect, treat your autistic child as no different than you would another child-teach him or her the parts of the body from a young age and be very clear, as the child matures, about what happens during puberty and what kinds of behaviors are appropriate and inappropriate. Be sure that your child understands the differences between good touches and bad touches. This can be extremely difficult for autistic children who are sensitive to touch in general. It may be helpful to label "zones" on the body where no one should touch without permission.

Also make sure that as your autistic child grows into an adult, he or she understands what rape is and what to do if this happens. As many autistic children are hands-on learners, it may be best to role-play some potentially dangerous situations. If your child communicates non-verbally, teach him or her clear signs to show a person to stop what they are doing. Autistic people can often not understand that others have their own thoughts and emotions-they believe that everyone thinks and feels what they do. Because of this, many are shocked to find that "bad" people in the world will take advantage of sexual situations. You may need to explain to an autistic individual what kinds of dress and conduct are appropriate in public so that he or she is not unknowingly attracting sexual attention.

You child should learn to respect his or her body and understand that others need to respect it as well. This is only possible if parents and educators teach autistic children about their bodies from a young age. By learning how to stop sexual abuse, you can keep you children, autistic or not, safe from predators.

What is Leaky Gut Syndrome?

Leaky gut syndrome in conjunction with autism is still being researched; a number of studies and research are under way to better understand how the syndrome starts, why it can be prevalent in autistic children, and how to treat it. Simply, leaky guy syndrome is the inability of the intestinal wall to keep out large, unwanted molecules. This symptom of autism most often signifies that the intestinal wall has been altered to become permeable. Leaky gut syndrome in autistic children may occur because of increased sensitivity or allergies.

Leaky gut syndrome is problematic for one's health because it allows molecules and substances (such as proteins) that are normally filtered out of the intestinal tract into the intestines. Because these molecules are not usually allowed inside the gut, the body misinterprets these non-harmful substances as a virus or infection and begins to produce antibodies to attack them. In turn, this creates a process where one's body recognizes certain foods, as well as any of the body's regular molecules that are similar to these foods, as harmful, causing an auto-immune disease where the body attacks itself. These are merely two possible outcomes with leaky gut syndrome. Others include the transportation of bacteria normally found within the intestinal tract to move into the bloodstream and cause an infection anywhere in the body as well as a weakening of the liver, which causes more toxins to circulate throughout the body, leading to a number of medical problems.

What can cause leaky gut syndrome? Researchers are still working to more fully understand the causes, but current medical diagnoses suggest that a diet high in alcohol and caffeine intake, certain drugs like ibuprofen and antacids, or a diet high in carbohydrates can decrease the thickness of the intestinal wall as well as other possible reasons. These are just a few possible reasons, and ways to treat leaky gut syndrome are just as uncertain as the reasons. Because of the sensitivity of the digestive system with leaky gut syndrome, many parents of autistic children find that putting their child on gluten- and casein-free diets can help. Both gluten and casein are proteins, and a diet with these proteins may irritate and inflame a leaky gut syndrome - though at the moment, researchers are still studying this. You may also treat leaky gut syndrome by avoiding alcohol, caffeine, ibuprofen, or spicy foods - all of which can cause irritation in the intestines.

Understanding leaky gut syndrome is an ongoing process, for parents with autistic children, doctors, and researchers, but this does not mean that there is nothing you can do to treat it. Simply being aware that your autistic child may have leaky gut syndrome will help you to better understand and improve his or her life.

Auditory Stimulation Helps and Hurts

Sounds are a part of our everyday life, and so when dealing with an autistic child who has sensory problems, sound is one of the first things you should learn to control, especially in a learning environment. Sound can both be hurtful and helpful for an autistic child. Because each autistic individual is different, you must closely observe him or her to find out what types of reactions you can expect from auditory sensory stimulation.

Loud or frightening sounds may be the most difficult type of sensory stimulation in an autistic child's life. Many of our routine daily activities include such sounds, hurting the growth process. Autistic children cannot and will not learn if they are frightened. For example, parents often find that they have a difficult time toilet training their autistic children. This may be due to the scary sound of the toilet flushing; witch could be overpowering to and autistic child. Instead, try using a potty seat away from the actual toilet until they get used to the idea. Another example is loud or crunchy foods. If your autistic child is a picky eater, try to notice specifically which foods he or she blatantly refuses to eat. Sometimes, food simply sounds too loud when crunching in an autistic child's mouth, and these loud noises can hurt his or her ears. If this is the case with your child, provide alternative soft foods instead of crunchy carrots, apples, or potato chips. Other loud sounds, such as a vacuum cleaner, may hurt your child's ears. Try to do these activities when he or she is not in the room, or consider providing your child with earplugs that he or she can use if the world gets too loud.

Sounds can also cause fixation. Some children, for example, constantly hum and seem fixated on the sights and sounds of lawn mowers. Use this fixation to be beneficial. For example, read stories about lawn mowers or use the humming in conjunction with a song. Music is a great way in which autistic individuals can learn, because sound is a form of nonverbal communication. Teachers and parents should use this tool in learning environments. The key is to make sound work for you and your child. Autism is a difficult disorder to handle, so by being sensitive to your child's specific needs, you can help him or her learn to deal with the sounds of everyday life. 

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@Copyright October 2014   by Author Markie Mark Pears

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