Some Patients Might Be Zebras — Rare Disease and Remedy Group in 2025.

1 in 10 people in the U.S. have a rare disease. It just might not be obvious when you look at them. This is why Remedy Group joined together this week to ‘show our stripes’, as a reminder that some people might be zebras — the zebra being the official mascot of people living with rare disease. Every zebra’s stripes are unique, mirroring the uniqueness and complexity of the more than 10,000 individual rare diseases, each of which impacts people in distinct ways. Dressing in zebra stripes this week was a way for Remedy Group to stand in support of the 30 million Americans living with a rare disease.?

From the thousands of rare diseases fragmented into small patient populations, it is practically impossible for a healthcare professional to know about them all, which is why misdiagnosis or a difficult path to accurate diagnosis is the reality for most patients — an experience often referred to as the diagnostic odyssey. In fact, a journey to diagnosis can take on average 4.8 years in the United States.??

The rarity of a person’s condition can mean that little is known about it, which can lead to a lack of understanding and support. In addition, rare conditions are often complex, affecting multiple body systems, and require specialised and well-coordinated care. This can all have a profound impact on the lives of rare disease patients, affecting factors such as access to education, financial stability and mental health. Additionally, rare patients find themselves having to become the expert in their own disease and their own biggest advocate. Every healthcare professional can help to reduce the time and mental load it takes for patients to get an accurate diagnosis by simply considering that a patient may be a zebra, in the first instance.?

At Remedy Group, we are uniquely positioned to support our rare disease clients and the patients they serve, now and in the future. Here’s why:??

?Leading with Education: The Remedy Group Approach to Rare Disease?

At Remedy Group, our mission is to lead with an educational approach in everything we do. This focus on education is central to our work and underpins how we deliver for our rare disease clients. The challenges posed by rare diseases—including small patient populations, multiple specialties involved in patient care, and frequent misdiagnoses—make education a vital tool for success. This encompasses educating patients, healthcare professionals, and our own team members at Remedy Group to ensure we are effectively and efficiently addressing the unique commercial needs in the rare disease space.?

?Efficient, Scalable Solutions that Result in Greater Patient Identification?

Remedy Group is uniquely positioned to support rare disease clients, thanks to our expertise in virtual and hybrid account management. Our virtual and hybrid sales solutions are designed to accelerate both patient identification and HCP education. This approach is significantly more effective than traditional field representatives, especially when working within rare disease where sales representatives will often have large territories than drugs for diseases with more prevalence. With a disproportionate outreach-to-patient identification ratio, it can take up to 100 interactions to identify a single patient, which is not realistic when operating only in a face-to-face sales environment. Virtual sales representatives and our novel webinar series provide an efficient dual solution to educate more HCPs and identify more patients by overcoming the barriers and access restrictions that often come with face-to-face interactions, all while keeping cost and logistical challenges to a minimum.??

Versatile Virtual Account Management?

Remedy Group has extensive professional experience in the rare disease sector. Having successfully established a versatile and dynamic structure within our rare disease teams to effectively address the needs of both our clients and their patient populations, we are ready for what's next for Rare and Remedy! ?