A Shared Mission: Commitment to Improving Health for Rare Disease Patients by Unlocking the Power of Real-World Data
Sundeep Bhan
CEO @ Prognos / Improving Health at Scale / Digital Health Entrepreneur / Lecturer / Student of Leadership
On this Rare Disease Day, I want to take a moment to acknowledge the incredible journey we've been on at Prognos Health for the past 13 years. Our mission has always been clear: to unlock the power of data to improve health, with a particular focus on complex clinical populations. Today, with rare diseases at the forefront of our efforts, we stand at a pivotal moment.
The past 12 years have been dedicated to making a tangible difference in the lives of rare disease patients. Never before have we had access to such a wealth of incredible data and innovative technology from esteemed partners like Datavant , Invitae , GeneDx , and many more. We are incredibly proud to work alongside them.
Prognos Health's unique ability lies in enriching and harmonizing this data for our life sciences customers. By doing so, we have the potential to help dramatically shorten the "diagnostic odyssey" - the often lengthy and arduous journey, which averages 7.6 years, to diagnosis and treatment. This leads to treatments reaching patients sooner, improving their quality of life, and potentially extending lifespans.?
Rare disease patients deserve our unwavering support and innovative solutions that expedite their access to life-changing treatments. 1 in 10 Americans are affected by rare disease. We are thrilled to have such a passionate and intelligent team dedicated to this mission at Prognos Health .?
Together, we can turn the tide on rare diseases. By harnessing the power of real-world data and fostering collaboration, we can create a future where every patient, regardless of the rarity of their condition, has the opportunity for a healthier and brighter future.
On this Rare Disease Day, let's celebrate the progress made and recommit ourselves to pushing the boundaries of what is possible.
Sincerely,
Sundeep Bhan
CEO, Prognos Health
VP of Healthcare Solutions @ OSP
11 个月Kudos to Prognos Health! The partnerships with Datavant, Invitae, GeneDx, and others show a commitment to innovative tech that can make a real impact. Shortening the diagnostic journey, currently at 7.6 years, for rare disease patients is a game-changer. With 1 in 10 Americans affected by rare diseases, Prognos's ongoing support, collaboration, and use of real-world data are paving the way for a healthier future.
M&A Divestiture Director | Client Experience Executive | VP Operations | Digital Transformation Architect | Strategic Consulting Advisor | Global Team Operator | Healthcare Life Sciences Insurance
1 年Thanks Sandeep. I agree, it is a journey and I appreciate Prognos's commitment towards making a dent in this space.
Social Media ? Content Development ? Brand Marketing
1 年Shortening the time to an accurate diagnosis with urgency meant my 2 yr old son, who we now know has juvenile dermatomyositis, would not endure prolonged suffering that would cause his organs to become compromised in a very short amount of time. As a parent, I hope all companies who provide information, studies, and research continue to have the best health interests of rare families in mind and refuse to be biased in what is disclosed for higher profits and refuse to work with organizations that have been led off the path of protecting society.
Datavant is very proud to partner with Prognos Health, as you work to improve care for complex clinical populations. There is so much potential for improved treatment of rare diseases through better connected data.
Space Nerd | Builder | Tech Startup Advisor | Non-Profit Advisor | Equity Army Founding Member | Social Impact
1 年Very proud of the team and the commitment to the long term of this work. Upwards and Onwards ?