Is The Real Life Less Valuable Than One Virtual Bitcoin?

I wonder this question almost every day watching the craze around this virtual, almost non-existent world.

On the other hand, I wonder what about real life, that takes place in a parallel universe and we live every day. Is it still valuable. Or at least equally important.

Would somebody rather invest in life or Bitcoin?

I ask myself these questions almost every morning looking at one beatiful, helpless being, depending on the care and attention of its parents.

That's why I wrote this story.

It's not as big as the story of the Bitcoin, even bigger.

This is Tara…

She is 14 years old and she is my doughter.

She is not virutal.

She is real, little girl who happens to have Wolf-Hirschhorn Syndrom.

It's a very rare genetic disoder, affecting 1 in every 100,000 live births.

While it is true that she has global development delays, multiple health problems, a greater susceptibility to illness, and a shorter lifespan then tipically funcitioning people, she has many beatiful and amazing qualities that are equally deserving of mention.

She is the strongest person that I've ever had the privilege to know.

She?goes through more in her lifetime than anyone I've ever heard of, and yet she fights her way through it like a medieval warrior in the battle of her live. And she does so with little complaint.

I've never known anyone else who I can say about. Now that's strenght. That's bravery. And she perseveres. She keeps going. She keeps trying. Giving up, simply isn't in her nature.

She has such personality! She is really quite interesting, if not downright fascinating, once when you transcend labels and view her as real person, whish she unequivocally is.

She has feelings. She experience joy, sadness, anger, frustration, amusement, just like anyone else. She may operate differently than a typically functioning person, but she?certainly experiences life.

She is funny! She is SO FUNNY! Even she is without the ability to communicate by traditional means can still amuse both herself and others on regular basis. Now that's truly impressive.

And she's so unique. She has her own distinct personality, abilities, and interests. She is a rare and beatiful flower that requires time, effort and care in order to fully bloom. She is worthy and deserving of being nurtured.

She challenges the word ?never“.

She has her own unique set of abilities that continue to evolve over time. Every little bit of progress she makes is an accomplishment, a joy to behold and worthy of celebration.

She makes you cherish the little things, which then become big things, which is such a gift.

SHE is such a gift.

Most parents don't have to worry about aoutliving their children. Most parents don't even think about such things… because they do not have to.

We never know what may take our Tara and when, but the possibility is allways looming. This is the reality we live with every day.

A two third of WHS individuals will not live to see their 2nd birthday. Those who are fortunate make it to their teens. Those who even more fortunate make it to their 20's. Those that are trully fortunate make it into their 30's. After that, the numbers drop dramatically.

I opt not to actively think about it most of the time, as it is too painful, it will not save her, and it is a waste of the precious time I have with her.

The life we lead is a difficult one.

Tara's condition affects virtually every aspects of the entire family's life.

On the one hand, we strive every day to make family life possible, and on the other hand to meet all the needs of a child with special needs, looking forward to her desired progress.

We cannot be satisfied with the average, just to justify the formal activities supported by the state institutions. This is simply not enough if you want real progress for your child with special needs.

Most parents remain locked in this vicious circle of daily activities around their sick children, receiving minimal help, which, quite realistically speaking, cannot affect the real progress, development and life of your child.

So, when you see that there are therapies that really help, despite their high cost, I can’t give up without trying to help my daughter.

In support of this I would like to share that a few weeks ago Tara learned to drink on her own at the age of 14. after 5 months of intensive therapy with occupational therapists in one of the best private specialized institutions. It was impossible to describe our happiness in words.

I would return once more to the question in the title above. My answer to the question in the title above, I believe my daughter’s life or any other child with special needs or any real life, is worth to invest rather than in one virtual Bitcoin. Maybe I'm too subjective but I'm firmly convinced of that.

The thing is in compassion. When we match compassion with real life purpose, we begin to change the world.

Therefore, strengthened by Tara's visible progress, I keep fighting to raise enough funds, to fulfill her maximum potentials, on the link of the crofunding campaign on GoGetFunding, I started back in December 2020. but stopped due to the big earthquake that hit Croatia.

https://gogetfunding.com/tari-od-srca-from-the-heart-for-tara/

I am continuing this campaign today.

And that's where I need your help. Small, but real help for my doughter.

You might be the only one that does.

You never know what kind of battles people are fighting behind closed doors or in their hearts and minds. Be kind. Be gentle. Be generous.

My doughter deserve to accomplish her best potential, and I don't give up to help her.

I belive you understand me.

So, please, help if you can and share this unique, real story.

Thank you for your support.

#helptara #donations #bitcoin