Providing Hope To Patients: Our Monthly Highlights
Esperity & Patient Centrics
Empowering patients. By educating and engaging with patients.
Welcome to a new edition of our newsletter! ??
As September approaches, we're excited to share some key updates with you. Discover the innovative projects we're working on to support patients with COPD, gain insights into the needs of young adolescents living with chronic illness, and explore My DiCE Companion, an app that provides essential support and guidance in digestive cancer. Plus, don't miss out—mark your calendars for our upcoming events!
?? Innoviris supports VUB and Esperity in developing tools to empower vulnerable COPD patients
Chronic Obstructive Pulmonary Disease (COPD) affects approximately 4% to 5% of the population. Unfortunately, there is currently no cure for COPD, which is a progressive disease leading to increasing respiratory challenges. Management of COPD often involves a combination of medication and physiotherapy.
During this R&D project, we aim to utilize its Esperity Health platform to develop a comprehensive COPD dashboard. This dashboard will educate patients about COPD and their treatments while capturing patient feedback to predict evolution of quality of life and exacerbations. The predictive algorithms will be developed in collaboration with the VUB.
The target population includes especially vulnerable patients, such as those who do not speak the local language of their treatment center or have a vulnerable socioeconomic status. Through this project, we aim to infuse intelligence into its applications and improve accessibility for individuals with low digital literacy.
Thanks Innoviris , Hichem Sahli , Abel Díaz Berenguer , Nikolaos Deligiannis and Vrije Universiteit Brussel for partnering with us in this project!
? Understanding unmet needs of young adolescents with a chronic condition
Young people with one or more chronic severe illnesses face unique challenges. Due to their illness, they experience limitations in daily life, which might reduce their quality of life and autonomy for a long time (or permanently). They are often unable to study, work, or maintain their current employment, risking falling without a dignified income.
We are proud to collaborate with PXL University of Applied Sciences - Expertise Centre for Care Innovation to tackle these challenges. This project aims to understand the impact of chronic and sever disease in adolescents and young adults and their unmet needs. The project is financed by the Belgian Federal Governance Social Security.
?? For more information, contact [email protected] or reach out to Jolien Robijns or Michelle Stakenborg . # Hogeschool PXL
???? Empowering Patients with Digestive Cancer
From June 27-29, we participated in the DiCE General Assembly & 9th Annual Masterclass in Munich, Germany. This event was a fantastic opportunity to exchange knowledge and insights with dedicated professionals and patients, all collaborating to maximize the impact in patient advocacy. The diverse, interactive program included innovative hands-on workshops, scientific lectures, and valuable networking opportunities.
During the event, we proudly presented the tool My DiCE Companion .This app, designed by patients for patients, serves as a resource they truly own, providing essential support and guidance in digestive cancer. It helps users find necessary resources, organize their care, and share information with their trusted circle.
We were inspired by the powerful testimonials and valuable suggestions shared at the event, which offered deep insights into enhancing My DiCE Companion. The emphasis on data, AI, and patient ownership underscores the critical areas for advancing the tool’s effectiveness.? A big thanks to Zorana Maravic and Natasha Stephens Münch PhD from Digestive Cancers Europe for trusting us as partners to develop this tool to empower patients with digestive cancer!
What's Next? Stay Tuned!
?? The ABC on Cell & Gene Therapy Webinar
Cell and gene therapies still sound like science fiction for many patients. In order to demystify this topic for patients and patient organizations, pharma.be and the Patient Expert Center organize a webinar where patients and patient representatives as well as scientific experts will share their knowledge, experiences and expectations in cell and gene therapies.?
?? When? October 1st 2024, 17h-18h30.
?? Where? Virtual webinar. The webinar will be livestreamed in Dutch and French, with simultaneous translation.
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?? More info and registration here: https://events.pharma.be/fr/r2L4OR
?? Clinical Studies and Pharmaceutical Innovation: The Way Forward
The Clinical Studies and Phase 1 Unit of AZ Sint-Maarten invites you to the information session "Clinical Studies and Pharmaceutical Innovation: The Way Forward" on Tuesday, October 15, 2024.
You are invited to the AZ Sint-Maarten conference center for an afternoon lecture where you will learn more about the Clinical Studies and Phase 1 Unit services at the hospital in Mechelen. Additionally, after a pleasant lunch, you will have the opportunity to take a guided tour of the facilities.
?? When? October 15, 2024 from 12 to 16h.
?? Where? Congrescentrum van AZ Sint-Maarten (Route 130)Liersesteenweg 435, 2800 Mechelen
?? More info and registration: https://www.azsintmaarten.be/activiteiten/klinische-studies-en-farmaceutische-innovatie-de-weg-vooruit
??♀? Participate in the Race for the Cure?
From September 21 to November 3, 2024, the Race for the Cure? is making a grand return! On this occasion, Think Pink invites you to walk 3 km or run 5 km to support the fight against breast cancer and those affected by the disease. ??
Various races are organized across Belgium, allowing you to participate close to home with your friends, colleagues, or family in this beautiful event based on solidarity and generosity. You can also set your own route and walk or run with your loved ones at the time and place that suits you best.
?? When? From September 21 to November 3, 2024.
?? More information:
?? Thank You for Your Support
Your involvement and feedback are vital to our mission of improving patient experiences and outcomes. If you have ideas, suggestions, or wish to get involved in any way, please don't hesitate to contact us. Together, we can make a significant impact on the lives of patients around the world. Enjoy the newsletter, and thank you for being part of our community.
? Contact: [email protected]
Head of Portfolio Management Team - Medical Affairs ( Developed Markets) at Viatris
6 个月Excellent work