Providing Hope To Patients: Our Monthly Highlights
Esperity & Patient Centrics
Empowering patients. By educating and engaging with patients.
Welcome to a new edition of our newsletter! ??
We're back with news on clinical trials, chronic cough, AI challenges, events and more. Plus, we've launched our first episode of the podcast "Voices of Hope." Check it out!
?? Discovering Clinical Trials: Thanks to Science Campaign
We are launching our new campaign, #ThanksToScience! For the second consecutive year, we are working on an awareness campaign to assist patients, families & caregivers, patient organizations, hospitals, and professionals in making clinical studies more visible and focusing on improving communication so that studies are seen as a viable option.
Would you like to be part of our campaign? You can join us by sharing your experience and participating through a quote, video, or podcast. If you're interested in participating, please let us know. We will run the campaign until the end of the year.
?? We welcome the new podcast series, Voices of Hope ??
Thousands of people are seeking better treatments—some because current options are insufficient, others because clinical trials may be their only access to innovative therapies. With enthusiasm, we are launching the first episode of our podcast series, designed to help you understand more about clinical trials. Enjoy!
?? Clinical Trials in AZ Sint-Maarten (NL)
In this episode (in Dutch), we are joined by Ms. Inez Mestdagh - the coordinator of the Clinical Studies Department at AZ Sint-Maarten Hospital in Mechelen - and Dr. Muriel Lins - MD Pneumology and Principal Investigator. They will explain the importance of clinical trials for hospitals, patients, research organizations, and pharmaceutical companies.
They will highlight the role and significance of clinical studies within AZ Sint-Maarten, with a special emphasis on the essential phase 1 trials. These early-phase trials are crucial for developing new treatments and ensuring their safety and efficacy.
In this episode you will gain insights into the processes and safety measures involved in conducting phase 1 studies, the differences between academic and sponsored clinical trials, and the collaborative efforts of researchers, nurses, and pharmacists.
Listen to this podcast to understand how AZ Sint-Maarten contributes to the advancement of medical research and offers hope to patients through rigorous clinical trials.
Remember to follow us on Spotify so you don′t miss a new episode ?? https://open.spotify.com/show/7rIZrjclli3IFo2zpWH3vu?si=b503428c690548f1
?? GAAPP and Esperity Launch New Portal to Tackle Chronic Cough and Empower Patients
In a pivotal advancement for chronic respiratory disease management, the Global Allergy & Airways Patient Platform has joined forces with us to introduce a state-of-the-art portal dedicated to chronic cough, with a particular emphasis on refractory chronic cough. This collaboration is set to elevate awareness and enhance outcomes for this underserved patient community by offering comprehensive educational resources and an in-depth Patient Ambassador program.
By leveraging our collaboration with Esperity, we aim to globally revolutionize chronic cough disease management and foster the development of cutting-edge solutions that effectively support this vulnerable group," said Ruth Tal-Singer , Chief Scientific Officer at GAAPP.
?? Patient Perspective con Generative AI in the #EMWA57
We had the honor of participating in The 57th Spring Conference of the European Medical Writers Association (EMWA) in Valencia, on a full day symposium 'AI in Medical Writing'.
The event provided a 360° approach, from technological perspectives of AI tool developers, to ethical consideration, intellectual property (IP) and copyright concerns that may arise whilst working with AI tools. With 21 speakers, 4 moderators and 2 panel sessions it was an amazing opportunity for meaningful connections, enlightening conversations, and interesting learning. Congratulations to everyone who made it possible, with a big thanks to Slavka Baronikova ! ??
?? How to harness AI to benefit patients while addressing its associated risks
Last month, Mitchell Silva, PhD took part in the PFMD .org Patient Engagement Open Forum #PEOF event, bringing together patient engagement leaders from across the healthcare sector. The focus was on how to harness AI to benefit patients while addressing its associated risks.
Discussions centered on ensuring the patient’s voice is integral to AI development, stressing the importance of collaboration and keeping patients actively involved.
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Key points included the necessity of education and clear communication to ensure fairness, and recognizing AI’s potential to enhance innovation in healthcare.
To build successful, patient-focused AI solutions, it’s vital to employ an inclusive, international approach with standardized frameworks that involve patients from the outset.
We are happy to have shared this space with great professionals committed to health and innovation. Let's continue exchanging perspectives and working together towards people′s health and quality of life! Brian Goodman, Silvia Bornengo Ylenia Paleari , Giorgio Barbareschi, Alan Balch , Yasemin Zeisl Derick Mitchell and many other professionals.
?? Being Part of Ecosystem Collaboration
A few days ago, we participated in the Ecosystem Workshop organized by Hack Belgium Labs on Ecosystem Collaboration, where we had a rich and interesting exchange of ideas on these two challenges:
We are very excited to be part of this conversation and are already looking forward to the challenges that will be addressed at the Hack Healthcare event in October! ?? Follow Hack Belgium Labs for more information on upcoming events.
What's Next? Stay Tuned!
???? Join and spread the word for the Flemish working group for caregivers of people with dementia
You can read the entire manifesto along with more information about Alzheimer Liga Vlaanderen vzw caregiver working group here: https://www.alzheimerliga.be/nl/vlaamse-werkgroep-voor-mantelzorgers-van-mensen-met-dementie
?? Vzw Patient Empowerment announces the campaign ‘Samen aan het stuur’ 'Together at the Wheel'
On October 1st, Patient Empowerment VZW launches the campaign 'Together at the Wheel'. This concerns everyone involved in healthcare, including care recipients across all domains of healthcare (hospital care, mental healthcare, home care, primary care, etc.), as well as healthcare providers and organizations.
?? More information: https://patientempowerment.be/nieuws/vzw-patient-empowerment-kondigt-campagne-samen-aan-het-stuur-en-charter-aan/
?? Join the "Lung Cancer: What Now? The journey of a lung cancer patient" event
This Thursday, June 27th, PROLONG VZW is organizing a special event featuring 5 speakers discussing the theme: "Lung Cancer: What Now? The journey of a lung cancer patient." ?? Landcommanderij Alden Biesen (Locatie Cuvelier) - Kasteelstraat 6, 3740 Bilzen.
?? More info & registration: https://www.prolong.be/geplande-activiteiten/
?? Thank You for Your Support
Your involvement and feedback are vital to our mission of improving patient experiences and outcomes. If you have ideas, suggestions, or wish to get involved in any way, please don't hesitate to contact us. Together, we can make a significant impact on the lives of patients around the world. Enjoy the newsletter, and thank you for being part of our community.
? Contact: [email protected]