Pinwheel Pages - September 2024 Issue 177
Institute for Patient- and Family-Centered Care
Advancing the understanding and practice of patient- and family-centered care in all health care settings
IPFCC Events
Upcoming PFCC.Connect Informal Conversation
September 24 from 12:00 - 1:00 pm ET
Join IPFCC for our next Informal Conversation, Better Together: Supporting Family Presence and Participation. The COVID-19 pandemic had a significant impact on health systems ability to facilitate family presence and participation. The restrictive “visitation” policies and practices set health systems back and many still struggle with supporting families as essential care partners. We hope the strategies shared in this conversation will help your organization recommit to family presence and participation.
Thank you to our?PFCC.Connect?sponsors!
IPFCC At Work
Hospital Diversity, Equity, and Inclusion Efforts: Perspectives of Patient and Family Advisors
A new article in Pediatrics, “Hospital Diversity, Equity, and Inclusion Efforts: Perspectives of Patient and Family Advisors”, describes findings from focus groups conducted by IPFCC and Cincinnati Children's Hospital Medical Center to learn from patient and family advisors (PFAs) from underrepresented communities about how hospitals can recruit diverse PFAs, promote inclusive environments, and advance hospital DEI initiatives. Thanks to support from the Lucile Packard Foundation for Children's Health, this article is open access here .
Resources and Opportunities
Learning Community Supporting Children’s Hospitals in Advancing PFAC Diversity, Equity, and Inclusion (DEI)
IPFCC is pleased to announce a Learning Community to support children’s hospitals in advancing PFAC Diversity, Equity, and Inclusion (DEI). We are looking for a cohort of up to 15 children’s hospitals that have goals related to PFAC DEI. Organizations that participate in the PFAC DEI Learning Community will have access to a framework for advancing PFAC DEI along with guidance, tools, education, and technical assistance to help hospitals make progress on opportunities to improve PFAC DEI. For more information about eligibility and selection criteria see the information and FAQs document located here . Click here to submit an application. Applications are due by October 1, 2024.
Apply to Help Advance the Practice of Authentic Community Engagement
Applications are being accepted through September 30th from healthcare organizations in the U.S. that are doing high-quality community engagement (CE) work! With support from the Robert Wood Johnson Foundation, selected organizations will be able to highlight their CE work to a national audience, share practices that can support the broader adoption of authentic CE, receive real-time coaching from CE experts, and will be featured in a national webinar series hosted by the Camden Coalition’s National Center for Complex Health and Social Needs. Access the application here .
New Self-Assessment Available
IPFCC has developed a new resource, "Personnel Practices to Advance the Practice of Patient- and Family-Centered Care: A Self-Assessment Inventory." It is intended to help Human Resource managers and staff integrate PFCC core concepts into policies, programs, and practices. It is available in the IPFCC Resource Center .
New Roadmap for Engaging Patients and Families in Continuing Education?
Accreditation Council for Continuing Medical Education (ACCME) developed this "Patient Partner Roadmap: Fostering Meaningful Partnerships in Continuing Education" to support engaging patients, families, and caregivers in the planning and delivery of accredited continuing education for health professionals. Integrating the perspectives of those with lived experience provides context and helps health professionals see beyond the data. The resource provides helpful tools and strategies. Access the Roadmap here .
New NIHR Resource for Community Engagement
In August 2024, the National Institute for Health and Care Research (NIHR) released "Guiding Principles for Community Engagement and Involvement in Global Health Research." This online resource was developed to help researchers and others strengthen CEI practices and partner with individuals, including those who have been underrepresented and marginalized, throughout the entire research process. Access the resource here .
Shared Access for Care Partners on Online Patient Portals
Patient portals are vital tools for managing health information, providing patients with direct access to medical records, and communicating with healthcare providers. Shared Access, formerly known as Proxy Access, enables a care partner, a trusted family member or friend, to have access to the patient’s portal and can then help in coordinating care and other support for the patient. Healthcare systems’ support, improvement, and communication of their shared access process with patients and care partners will result in better patient care. Recent research about Shared Access and the work of OpenNotes can be found here . Access Coalition for Care Partners’ Shared Access Toolkit resource here .
领英推荐
IPFCC's New YouTube Channel
We are delighted to launch IPFCC's new YouTube channel, dedicated to sharing our video resources on an array of PFCC topics. We invite you to join our community as we create an environment that is informative, supportive, and meaningful. Subscribe and like our new YouTube channel here .
Thank You to Our 2024 Pinwheel Sponsors!
Bev Johnson is facilitating complimentary, informal Pinwheel Leadership Forum sessions with our 2024 Pinwheel Sponsors’ PFCC and PFP leaders this year to further support these sponsors and encourage connections among their leadership. Learn more about our Pinwheel Sponsor Program or contact Sherry Hajec, [email protected] .
PFCC.Connect
Emory Healthcare
Providence Health Care
University Health
Health System
Vanderbilt University Medical Center
Hospital/Organization
Akron Children’s Hospital
Alliant Health Solutions
American College of Radiology
Children’s Mercy Kansas City
Children’s Minnesota
Children’s Specialized Hospital
IWK Health Centre
Luminis Health Anne Arundel Medical Center
MHA Keystone Center
Moffitt Cancer Center
Nationwide Children’s Hospital
Penn State Health Milton S. Hershey Medical Center
St. Louis Children’s Hospital
Thunder Bay Regional Health Sciences Centre
University of Iowa Stead Family Children's Hospital
University of Miami Health System
University of New Mexico Children's Hospital
Wellstar MCG (formerly Augusta Health)
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