Pain is Real, But So is Hope.

Pain is Real, But So is Hope.

Pain is real, but so is hope.

My daughter's mantra, when she was diagnosed with a rare disease at the age of 8, has become an anthem in our family. Grace, our brave little warrior, was diagnosed with Pediatric Sjogren's - a rare and challenging condition that has tested her resilience and courage in extraordinary ways.?


Through the years, she has faced countless obstacles with a strength that belies her youth. On this National Pediatric Sjogren's Awareness Day, we want to celebrate Grace's indomitable spirit, countless accomplishments, and relentless pursuit to raise awareness and support for others affected by this rare disease.?


Despite the shadow of adversity, our girl found the light within herself and taught everyone around her about the beauty of life. As she graduates high school and ventures off to college, we cannot contain our pride for this young woman who has given so much to others and never let pain stop her from pursuing her dreams.?


Because of Grace, our family has learned the true meaning of hope. Pain is real, but it cannot overshadow the potential we hold within us to rise, to fight, and to triumph against all odds. Grace, your journey has left a lasting legacy - thank you for inspiring us, and countless others, with your unwavering determination and generosity of spirit.


#future #health #raredisease #socialnetworking #whatinspiresme #sjogrens

Michael Ferrara

?????Trusted IT Solutions Consultant | Technology | Science | Life | Author, Tech Topics | Goal: Give, Teach & Share | Featured Analyst on InformationWorth | TechBullion | CIO Grid | Small Biz Digest | GoDaddy

1 年

Sharon, thanks for sharing!

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Kimberly Stein

Enterprise IT Executive, Finance IT, HR Tech ? ERP ? PMO ? M&A ? Business-Centric IT Strategy ? Digital Transformation ? Hyper-Efficient Processes ? Enhanced Customer Experience ? Global Teams to 160+ ? P&L to $54M

1 年

Thank you for sharing this inspiring story Sharon

Reggie Hanson

As your Certified Professional Coach, I help you become an exceptional leader, grow in your career, uncover your true career passion for a career transition, and hold you accountable to achieve all of your goals.

1 年

Very inspirational!!!!

Dr. Erlin K.

Design Thinking & Human Centered Design Facilitator | Ideation to Business Transformation & Innovation | PhD | Lean Six Sigma Master Black Belt | Leadership Iowa 2024?Keynote Speaker | ???Author - 2X

1 年

Heartwarming story. Thanks for sharing. Sharon Tiger ??

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Debra Wheatman, CPRW, CPCC

Professional Branding Expert ★ Advisor to Aspiring Board Leaders ★ Author ★ Story Teller ★ Career Trajectorist

1 年

This was a great read, Sharon!

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