No Ordinary...People, Cause, Film

Brian Wallach and Sandra Abrevaya are friends and neighbors who are changing the world for the better. Let me highlight a few reasons why.

1.???They formed I Am ALS, a patient-lead advocacy organization, after Brian was diagnoses with ALS at 37 years. It has helped fund research that is getting closer to understanding what causes ALS (it’s usually not hereditary)!

2.???Patient advocacy also has highlighted the need for treatments. A positive step happened Sept. 29 when the FDA approved a medication to treat ALS patients!

3.???They shared their lives and activities in a new documentary called “No Ordinary Campaign,” which just premiered at the Chicago Film Festival. This powerful film shows their fight for a future “while seeking to build a brighter one for thousands of others.” This is a story of hope—and action. Check it out: https://noordinarycampaign.com/ You will be empowered and inspired by it, which is a good thing because the more of us that get involved to fight this disease the better.

4.???On a related point, as researchers make progress solving ALS, they are discovering that this might also unlock answers to diseases such as Alzheimer’s, MS and Parkinson’s.

5.???They are sharing the playbook they created for I Am ALS with other organizations fighting degenerative diseases.

No Ordinary Campaign is no ordinary film—and kudos to Sandra and Brian, who give so much to changing the system for living with and fighting degenerative diseases.