November 2023 Newsletter
Registration for the 2024 NephCure Patient Summit is OPEN!
Don't miss your opportunity to join us for an empowering and informative experience at the 2024 NephCure Patient Summit and Youth Summit on May 9-11 in San Antonio, TX! This event is dedicated to all individuals, caregivers, families, advocates, and healthcare partners impacted by rare, protein-spilling kidney diseases. It features inspiring speakers, disease education, interactive workshops, youth empowerment, and more! New this year: fundraise your way to the Summit! Learn how you can set up a personal fundraising page. The Patient Summit and Youth Summit are quick to sell out — secure your spot today!
Introducing: The NephCure Volunteer Hub
The NephCure Volunteer Hub is a dynamic platform designed to help us efficiently recruit, manage, and engage volunteers for all our various events and programs. Here, you will find a wealth of information, resources, and opportunities to get involved. Whether you're interested in fundraising, advocacy, patient support, or spreading awareness, there is a place for you in our volunteer community. Explore the hub and create your profile today!
READ: 'An atlas of healthy and injured cell states and niches in the human kidney'
Using various technologies, this study analyzes kidney samples from both healthy donors and patients with kidney disease, identifying 51 main cell types and characterizing their profiles and locations. It also defines 28 cellular states altered in response to injury, mapping them within the kidney and linking them to immune responses. The research provides insights into biological pathways associated with kidney injury and outcomes, such as the decline in kidney function.
Mark Your Calendars for Giving Tuesday 2023
The global day of generosity starts the Tuesday after Thanksgiving, November 28th! Giving Tuesday unleashes the power of people and organizations around the world. Will you help support our mission to empower people impacted by rare, protein-spilling kidney diseases to take charge of their health by providing them with the resources and the support they need? Follow NephCure on social media November 28th?and help us share the message to fund a cure!
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Nominate NephCure for Forbes EQ
Forbes EQ BrandVoice wants to spotlight organizations making a positive impact, and we think NephCure deserves to be featured. Help us make it happen! Nominate NephCure using this form.
Your submission can potentially lead to NephCure being featured and reach more individuals living with rare, protein-spilling kidney diseases.
NEXT WEEK: Countdown to a Cure NYC
Experience the wonder of our highly anticipated 19th annual New York Countdown to a Cure fundraising gala on November 9th, as we honor 4x-Grammy award winner, music producer, and kidney warrior, Brian Kennedy with the 2023 Alvin Levine Award. There's still time to purchase your tickets, or submit an ad or sponsorship!
Save the Date: 2024 Rare Kidneys on the Hill Day, July 24-25th
Be a part of our movement in Washington, D.C. as we come together to amplify the voices of RKD patients and their families, advocating for crucial legislative change at Rare Kidneys on the Hill Day, taking place on July 24-25th, 2024! Stay tuned for more information and details on how to register!
Upcoming events you won't want to miss ??