A New Path: Executive Director of my Family
Jacquelyn Didio (Horstmann)
Co-Founder of Madelyn James // Cancer Equity Advocate // Leadership Consultant // Fundraising Consultant // Mindful Leader
On September 25th, my?life was turned upside down.?My?four-month old?twin,?baby girl, Madelyn James, was diagnosed with?infant,?Acute Lymphoblastic Leukemia?(ALL).?Shortly after,?we found out the genetic make-up of the Leukemia, it’s called?mLL-r – and it’s much longer and harder to treat than the childhood version (any child over one-years-old).?While Leukemia might be a common form of childhood cancer, the infant mutation is much more aggressive with a much longer treatment.?Only 160 infants are diagnosed with this cancer each year, worldwide.
She is a fighter and is fighting with all her energy to fight this cancer.
That means that?my partner,?Dan,?and I have been supporting and loving our sweet Madelyn on this treatment?journey?24/7 with our full hearts and minds. The time we have to spend in the hospital will be at least?six months, with only a few days home in-between treatments.?For her first round of treatment, we spent 40 days, straight at the hospital at INOVA Fairfax Children's Hospital. Each day, we have been going back and forth to the hospital spending 24 hours at a time here by her side. It’s really hard, and I am trying my very best to stay?positive?and a light for Madelyn.?
That’s why?my focus has to be on Madelyn and Hannah.?Therefore, it’s with a heavy, heavy heart that I have to share my resignation from The Child & Family Network Centers (CFNC) as the executive director.??
I must say an incredibly big thanks to my team for holding our organization's mission close to their hearts and continuing our work during this very hard time! Especially, our senior team: Nancy Lobo, Susan Keightley and Rebecca Fetters.
This job has been so much more?than?just a job for me. I love going to work. I love the kids and families. I love the teachers. I love the?administrative team. I love the board. I love our committees. I love our partners. And,?I love that my girls got to see me leading such an incredible organization and be a mom.?CFNC is my family.??
What’s best for this organization,?I believe in with all of my heart, is for me to leave and for a new, amazing leader to follow me. I need to leave so I can full-heartedly?fight for Maddy as my full-time job.??
As someone who led an organization working to become anti-racist, I must call out that I could only do this because of the?privilege?in my life. My partner has amazing insurance and family leave. We have an incredible family and support system surrounding us with love. We both went to college?and we both grew up in families who supported us in our goals and dreams.?We are also both white and systemic?racism?has made a path of success in life for us easier.?That's why equity in health care and equity with all aspects of life is so critical. #socialdeterminentsofhealth?And, something that I will fight hard for every human - no matter their circumstance.
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CFNC?is resilient and strong, and that’s because of the team of people who work there. One day, I hope to come back as a board member or team member.?What I know is that CFNC will continue to be an amazing nonprofit because:??
This was never my vision or plan to leave, and I hope you all can understand why this path has been chosen for me.?We will have a strong plan moving forward because of the amazing leaders and board members of CFNC!?
You can support my sweet Madelyn and other children with cancer in a few ways:?
If you’d like to follow sweet Maddy’s journey, you can follow us at CaringBridge:?https://www.caringbridge.org/visit/madelynjamesdidio??
Thank you all for your love, support and healing energy. We are #maddystrong.
Business Lead (Chief of Staff)
3 年Jackie, I echo all of the beautiful sentiments that have been shared here. I deeply admire your strength and determination to support your daughter and family during this time. I'm also sending lots of positive energy that your daughter's journey is filled with grace and that you all experience an outpouring of love and support. If there is anything I can do to help support you and your family from afar, please let me know!
Foundation President at Soul 2 Soul Foundation
3 年Critical role.??????????
President & CEO at Washington Performing Arts
3 年Oh wow -- I'm so sorry. Sending love and best wishes to you and your sweet family.
Area Sales Manager at ALL ACROSS AMERICA MOVERS
3 年When she ?? smile she's going to light up the room. She's going to learn a lot from being in your presence
Executive Director / Licensed Clinical Social Worker/ Program Development / Child Abuse Expert/ Trainer / Child Advocate
3 年I'll be thinking of you and your family and look forward to when our paths cross again. Maddy Strong!! -Giselle