National Visibility for Our Campaign to Protect People in Pain
Richard Lawhern
Subject Matter Expert in public policy for regulation of opioid pain relievers and physicians who prescribe them. 28 years experience and thousands of contacts in social media support groups for people in pain.
.Friends and colleagues
I keep a weather eye peeled concerning whether our Alliance is having any measurable impact on the public conversation concerning public health policy in America. A reasonable answer is "yes"
This morning I ran a search on "National Campaign to Protect People in Pain" at Perplexity.ai . This is what the search engine turned up:
The National Campaign to Protect People in Pain is an initiative that has gained significant attention in 2024. This campaign is an informal alliance of various groups and individuals working to address issues related to pain management and opioid prescriptions.
Key Features
Composition: The campaign comprises hundreds of experienced pain management clinicians, patients, family members, and advocates. It includes an alliance of over 40 US groups serving chronic pain communities
Speakers Bureau: The campaign has established a Speakers Bureau consisting of clinical professionals and patient advocates with expertise in pain-related issues.
Objectives and Activities
The campaign appears to have several goals:
Advocating for Pain Patients: It aims to protect and support individuals suffering from chronic pain.
Influencing Policy: The campaign has been involved in efforts to loosen restrictions on opioid prescribers. For example, in Oregon, the medical board has relaxed some regulations on opioid prescriptions, which is attributed to the campaign's efforts.
Engaging with Officials: Members of the Speakers Bureau have offered "listening sessions" to officials at the US FDA, indicating attempts to influence policy at the federal level.
Leveraging Political Opportunities: The campaign has encouraged chronic pain patients to take advantage of the election year to make their voices heard. Recent Developments
In 2024, the campaign has been particularly active: On July 30, 2024, there were reports of increased attention being given to people in pain, suggesting some success in the campaign's efforts. The campaign has been organizing events and disseminating news throughout the year, with updates reported as recently as September 26, 2024.
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The National Campaign to Protect People in Pain represents a coordinated effort to address what its supporters see as inadequacies in pain management policies and practices, particularly in light of restrictions placed on opioid prescriptions in recent years.
Sources of this information recovered by Perplexity:
Campaign to Protect People In Pain Friends and Colleagues,
This note is to announce a campaign to plead with a key committee in the US Congress, without whose support nothing will be done to correct the damage now being done to chronic pain patients, their families, and clinicians who treat them. The legislators we need to talk with....
Finally, Someone is Listening to People in Pain!
With "The Real Opioid Crisis in Three Charts," a patient advocacy group has briefed senior FDA officials on major changes needed in public health policy for the regulation of prescription opioid pain relievers, and doctors who prescribe them. Perhaps now someone is truly listening to people in pain.
Feel free to share this in your personal networks.
Chronic Pain Advocate. Public speaker and trainer. Former President of the Aug. Jaycee's and PTA. Owner of Daycare.
1 个月Well Amen! I have been talking to the NRC, talking surveys, writing to Trump/Vance. Red I have given them a list of names, including yours. Here in SC, we have a Windsock Senator, that I can’t wait for the right year to vote against him. We are Red State. But people are having to cross state lines for help. But we make up a good size number of voters, National. If anyone knows the exact number please let me know. I can find somewhere between 20-25%!! We all have to think out of the box, and do whatever we can to help ourselves!!
CSO of MaaS Health Systems LLC dba MaaS Nanofilms and Trillium Ferroics
1 个月The FDA have not historically backed such junk science notions as MME/d figures, opioid "tolerance", and irrational fears of opioid toxicity. Neither did the CDC. It was only after Dr Andrew Kolodny got a Core Expert Working Group established at the CDCs new Accidental Injury Prevention Office, to read carefully through CDC records and avoid making any claims that CDC data had already disproved, that the hint of a medical anti-opioid policy reached Washington. So the campaign to harm pain patients allegedly for our own good, was primarily driven by hysteria and not by facts. Once the hysteria got rolling, facts became unreliable. Examples: Seeking political support from Mexico's New Generation Cartel, California stopped reporting crime statistics and fentanyl overdose mortality to federal agencies. This resulted in statistics appearing to show that crime is declining and overdose deaths are tapering off, because millions of Californians' encounters with both these issues are uncounted. That particular cartel seeks to supply illicit fentanyl to patients in pain, because its founder realizes we outnumber recreational users and addicts by 5-to-1. If patients self-medicate with street drugs, medical malpractice claims become?