“My Mom with Alzheimer’s sleeps so much…”
Barbara Karnes, RN
Author of GONE FROM MY SIGHT aka: "the hospice blue book", NHPCO Hospice Innovator Award, End of Life Educator
Dear Barbara, My mom is 83 and has moderate Alzheimer’s . Since May, I have noticed a big change in her behavior. She has really slowed down with everything. She sleeps a lot. I know she is depressed and she is on medications, but I hate to see her sleeping like this. She is still asleep now and she went to bed last night at 8:30. Should I be making her get up earlier?
I’m no expert on dementia related diseases. Teepa Snow and MaryAnn Oglesby are my go-to people for information and advice on "what I should do now." What I'm saying is that I, Barbara, am no dementia specialist.
It is hard to accept where our special person is when the "rules" have changed. What "normal" healthcare is does not necessarily apply to someone with dementia.?
Our goal is to keep them safe and meet them where they are in the moment with kindness and thoughtfulness. I don't have enough information to tell you whether to let your mother sleep or get her up. BUT I will ask what is the harm in letting her sleep?
It is hard for caregivers to know how to care for a person with dementia. The behaviors are so varied that there is no single correct way to handle a situation.
With the various and individual ways dementia presents itself, the questions to ask are: what action fits the present moment? How can comfort be provided in this moment? How can I support and bring peace to this particular moment??
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Did you notice I repeatedly said “in this moment”? The key to being involved and caring for someone with dementia is the present moment. It is not how they used to be but who they are in this very moment. AND how do I address and interact with them in this moment.?
Something more… about “My Mom with Alzheimer’s sleeps so much…”
If you are caring for a loved one with dementia who is approaching end of life, I have a booklet that can support you. Dying with dementia doesn’t play by the normal end of life rules. Here is a review of my booklet, How Do I Know You? Dementia at End of Life:
Working as a Dementia trainer and practitioner for 25 years, I can honestly say this is one of the best dementia resources available on the market! Worded in a way that caregivers and families really get it, it affects positive change for all parties involved. Here, here!
- Kim F. United States
Physical Therapist/ Craniosacral Therapist/ Generative Coach
1 个月"Normal" healthcare applies to someone with dementia. 1- A UTI can cause a change in behavior in people with dementia (fatigue, delirium) 2- Drowsiness could be a side-effect of anti-depressants. The present moment deserves investigation.