My ALS Journey (14/n): My Status Quo

My ALS Journey (14/n): My Status Quo

My ALS progression seems to slow down, and Beatrix and I can the first time plan for the future.

>> My ALS Journey so far <<

How to Approach a Cat?

Play with Peppi

There are two ways to approach a cat: first, you feed it something, and second, you play with it. I’m sad to say that I can’t do either of them, but I solved both issues. Lucy sometimes gets its food on my lap, and Peppi plays with my foot.

Where can you see or hear me?

After four months, today was my first time outside my apartment. The reason is simple: I invested my spare time to significantly improve my mentoring programs. Today, I enjoyed the beer garden with Beatrix and Marius.

We will take the next test tomorrow. I will go by our car and see if I can climb inside. (We skipped that test. (Hopefully, in a few days, I will get an electric wheelchair. Then I will go by taxi in an electric wheelchair. If this is comfortable for me, I will probably by a car for an electric wheelchair.)

My plan for the next month is to visit nearby conferences and speak online at far-away conferences or user groups. It is a great pleasure for me to be back in the C++ community.

If you want me to speak on your C++ user group, please get in touch with me.

Left or Right Mouse?


I can hardly move my fingers, but my left thumb, right index finger, and middle finger are not too bad. Now my question is: Should I use a left or right mouse? I decided to use two mice.


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Mohawk (Iro) or Darth Vader?


IRO

I wear masks to remove carbon dioxide from my lungs. They also strengthen my voice. Without them, I speak way too silently.

I can wear the mask in two ways. Usually, I wear Darth Vader, but IRO is practical for eating and drinking. Speaking is excellent in both. Which one do you prefer?


Darth Vader

Make your choice in my next post.

Which mask should I wear?

  • Mohawk (Iro)
  • Darth Vader


Dr. Ziad Mabrouk

Medical Device Safety Risk Management | ISO14971, EU MDR, and US FDA |

5 个月

Gourage Rainer, tommorow will be better.

Luiz Carlos Martins Scheid

Software Engineer at HENSOLDT Optronics GmbH

5 个月

Hi Rainer Grimm, I am happy that you are going out and feel the fresh air from the outdoors. Unfortunately it looks like the winter has come to Germany already. Hope you get comfortable with your electric wheel chair and buy an adapted car. Have a look in the Ottobock Juvo. I think it is produced in Germany. I prefer the Mohawk style!

Céline D.

Professional and Psychophysical Mobility Specialist

5 个月

Go Rainer!!!

CHORFA Issam PMP?

Senior embedded software engineer

5 个月

Get better soon Rainer !

Dr. Karin Roehricht

Robotics and AI content in all its variety

5 个月

I am always deeply impressed and touched by your statements about the ALS journey. Life is fragile for all of us and we forget it too often (at least, I do). Best wishes and hopefully many many people will read about your journey and spread the word.

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