A Lifespan Approach to Neurodivergence
Prof. Amanda Kirby MBBS MRCGP PhD FCGI
Honorary/Emeritus Professor; Doctor | PhD, Multi award winning;Neurodivergent; CEO of tech/good company
I am a year older.( birthday is at the start of the year).. and so ageing interests me more and more...
When I try to explore the research relating to ageing and neurodivergent traits and conditions there is very little. The main focus till the 90s was on children and it is only in the last 20 years or so have we even considered adults but this has predominantly focused on up to 40 years.
As I am getting older and consider myself and others it has made me become increasingly interested in the ...what next... and what do we need to do..
It is also becoming a discussion about ageing in our workforce and the need to consider this...another intersection!
Our brains and our bodies change throughout our life and ageing well doesn't just start when you retire- if we can ever do so! The chance of gaining a diagnosis of a neurodivergent condition declines with age.Chung and colleagues showed an age-dependent decline in the diagnosis of ADHD for example.
Neurodivergent conditions bring unique strengths but also lifelong challenges that can compound with age. We need to always remember the traits and conditions often co-occur.
For instance:
The cumulative impact of these challenges, alongside barriers like poverty, homelessness, and lack of access to education, creates significant disparities for older neurodivergent adults. These conditions often coexist, amplifying the difficulties individuals face as they age. We also know there is inequity in systems and so those who have been social disadvantaged, and/or been in the justice systems, are less likely to have needs identified or addressed in earlier years.
Shared Challenges Across Neurodivergent Conditions
Older neurodivergent adults face similar difficulties to younger people but they may worsen with age:
These shared challenges contribute to poorer quality of life, increased healthcare needs, and greater dependency on informal carers or inadequate support systems.
Key Protective Factors for Neurodivergent Adults
While neurodivergence can amplify ageing-related challenges, certain factors can mitigate risks and promote healthier outcomes:
"Those who think they have no time for bodily exercise will sooner or later have to find time for illness." Edward Stanley (1826-1893)
Implications for Policy and Practice
To better support neurodivergent individuals across the lifespan, there are key areas that need urgent attention:
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1. Integrated Care Models
Healthcare and social care services must adopt an integrated approach to address the intersection of physical health, mental health, and social needs. I think this is not only in ageing populations but really needs to be considered across age spans.
We need to have:
2. Inclusive Policies
Policymakers must consider the unique challenges neurodivergent adults face when accessing social services, healthcare, and housing. Tailored support for financial independence, employment, and accessible transport can reduce inequity. This challenges the real need to consider inclusive approaches built in to design processes.
3. Education and Advocacy
Raising awareness about neurodivergence in later life among healthcare providers, carers, and policymakers can improve understanding and reduce stigma. Training carers and professionals to recognise and support neurodivergent needs is essential.
4. Research and Data Collection
Research on ageing in neurodivergent populations is sparse. Longitudinal studies are urgently needed to understand how conditions like ADHD, ASD, and DCD impact ageing and to identify effective interventions.
5. Social Inclusion Initiatives
Programs that promote social connections and community involvement can combat isolation. Tailored activities, peer groups, and neurodivergent-friendly spaces can create opportunities for meaningful engagement.
A Lifespan Approach to Neurodivergence
Managing neurodivergent conditions like ADHD, ASD, and DCD requires a lifespan approach. These conditions share challenges that do not diminish with age but can be mitigated through proactive support and inclusion. Just as we’ve developed long-term strategies for conditions like diabetes or heart disease, we must extend similar frameworks to neurodivergent conditions.
By understanding the lifelong impacts of neurodivergence and addressing the unique needs of older adults, we can foster a society where everyone has the opportunity to age well. With the right interventions, older neurodivergent adults can experience healthier, more fulfilling lives—and contribute to a more inclusive and equitable future for all. I do feel very strongly we need to start today!
Blog Author
I am Amanda Kirby, CEO of Do-IT Solutions a tech-for-good company that delivers consultancy and guidance, consultancy, training and web-based screening tools that have helped 10s of 1000s of people.
Contact us and we can discuss how we can help.
We strive to deliver person-centered solutions relating to neurodiversity and wellbeing.I am a mixed bag of experiences and skills and have 25+ years of working in the field of neurodiversity.
I am a medical doctor, Professor, and have a Ph.D. in the field of neurodiversity; most important of all I am a parent and grandparent to neurodivergent wonderful kids and am neurodivergent myself.I am getting older too!
I have written 10 books so far.Theo Smith and I wrote the UK award-winning book?Neurodiversity at Work Drive Innovation, Performance, and Productivity with a Neurodiverse Workforce. My 11th book came out in 2023 Neurodiversity and Education. We have a new one (Theo and myself ) coming out in 2025... watch this space.... perhaps I will write one about ageing and being ND!
OK Bo?tjan Dolin?ek
Director, Visions Adult Day Program
1 个月Insightful
Creating global opportunities for neurodiverse, disabled & marginalized gender entrepreneurs, sm biz owners, creators & leaders. Rebel Collaboration rocks. Mentor to biz-4-good founders. #NoMoreHiding speaker & workshops
1 个月Yes interesting topic and it certainly. Rings more challenges! Jesmine S. thought to tag you after our conversations around your research and interest in “aging well”.
UK Occupational Health Lead QinetiQ RGN,SCPHN(OH), BSc(Hons), MSc Quality Management, PCQI
1 个月Congratulations on your birthday and best wishes for the New Year ?? Thank you for your posts which I find very informative. My interest in learning more about neurodiversity spans a professional and personal interest with my daughter diagnosed with dyslexia at 11 and me at 55 !
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1 个月Happy Birthday and Happy New Year Prof. Amanda Kirby MBBS MRCGP PhD FCGI! ?????? ???? ???? ?? Great article, very informative on a neurodivergent traits lifetime approach. ??????????????????????????????????????????????????????????????????????