Lexi is one of fewer than 200 patients in the world diagnosed with Blau Syndrome. It’s a painful, life-threatening condition that affects her joints,
lisa Moreno Dickinson
Was President and founder of StopCAIDnow #childhood autoinflammatory diseases. We have biologic and projects completed.
Take time to watch and vote please.
I am so proud of our Blau family, who has taken the torch. Together we will always be stronger. We lost a young child to Blau this year and of course it has left us all devastated. We will continue to work on bringing the CURE home. I am so proud of this family as we have all become one family. When you hear your child say, I would rather go blind then feel this pain in my joints and from his non caseating granulomas you know you have to do more. When you are aware they are the only one in the world who gets infusions twice a month of remicade and on a high dose of methotrexate and it is still not the answer, we keep the fight going. Blau is a life threatening disease that affects the joints, eyes, skin and organs. It may be rare but together we have made it is more known and understood over the last nine years. Together with your help we can do more for these children and ours. PLEASE VOTE !!
Thank you, from the President of StopCAIDnow and more importantly the mom, of a child who suffers from Blau. #memydadandblau #blau #cure #vote #rare #brody #nih
#choa #clevelandclinic #nemours #chop #georgetown