Fall Happenings at the Foundation: November CEO Update
Save the date for?GivingTuesday, December 3. 2024!?
We’re thrilled to announce that, for the second year in a row, our incredible partners at Amgen Rare Disease are offering a?$25,000 match?for GivingTuesday! Last year, we raised over $100,000 together, bringing hope and essential support to thousands of individuals and families affected by scleroderma. ?Let’s make this year even more impactful!???
Can’t wait for December 3? ?Get a head start and?make your matched gift today at?scleroderma.org/givingtuesday. Together, we can fuel progress toward a future free from scleroderma!
Scleroderma Clinical Trials
Last month, we hosted a webinar on the Importance of Clinical Trials. You can view a recording now on our Youtube channel at https://www.youtube.com/watch?v=IdjmmwPaePg. This webinar features Dr. Tracy Frech, Abdul Rehman and Kheesa J. sharing information about the importance of clinical trials. Attendees received educational information about examples of scleroderma clinical trials, including informed consent, the importance of participating, and common misconceptions.
Thank you to our sponsors, Amgen Rare Disease and Merck & Co., Inc.
We have partnered with Carebox to provide patients, caregivers, and healthcare professionals with an easy way to search and match with scleroderma clinical trials.? The free, confidential, and easy-to-use service allows you to search for studies that may be a good fit for you. The Carebox Connect trial database is synchronized daily with the ClinicalTrials.gov clinical trial data maintained by the National Library of Medicine (NLM) at the National Institutes of Health (NIH).
>> Visit https://scleroderma.org/find-a-clinical-trial/ to browse trials now!
Partnership Opportunities
We have a robust corporate philanthropy program with options to fit the diverse needs of our partners, ranging from advertising and sponsorships to our LINC Corporate Philanthropy program, which provides support across all our mission pillars and programming.
>> Learn more by downloading our prospectus at https://scleroderma.org/sponsorship-opportunities/
领英推荐
Outreach
·???????? On Thursday, October 24th, the Rocky Mountain Chapter hosted the annual FoodFight event in Denver, Colorado. This year, 12 up-and-coming local chefs and mixologists competed to win the 2024 Food Fight Champion honors while raising support and awareness to fight scleroderma. The event raised over $73,000?for?our mission!
·???????? We’ll be at ACR Convergence in Washington, DC next month, and are booking time at https://bit.ly/ACR24NSF if you’d like to meet on site. Be sure to stop by?Booth # 2210?to say hi!?
·???????? I’ll be attending the ASAE Leaders Retreat in St. Louis November 18-20. Let me know if you’ll be on site, and I’d love to grab a coffee and catch up! ?
Fall Happenings
Don’t miss these events coming up later this month!
>> To find an event near you this fall, visit scleroderma.org/calendar
Find Support ?
Support?is a pillar of the Foundation’s mission, and we offer more than 100 scleroderma?support?groups around the country. Our?support?group?facilitators are trained?volunteers who are committed to creating safe, welcoming and inclusive?environments where all can share about their journey with scleroderma.
You can access our digital directory at https://scleroderma.org/scleroderma-support-groups/ to search for a group?near you. You may also?contact the National Office?to locate a?group?or?see a full list of?groups?here.
"When we give cheerfully and accept gratefully, everyone is blessed." Maya Angelou
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