Faces of Parkinsons: Global Reflections on PD
You don't have to have Parkinson's disease (PD) to have a #ParkinsonStory, you just have to be touched by PD. The photo above, of A.C. Woolnough, an advocate in the Parkinson's movement, is included in our new book, "Faces of Parkinson's: Global Reflections on PD." A.C.'s picture is accompanied in the book by 64 other portraits along with inspiring personal stories.
We at the World Parkinson Coalition believe that every time someone tells their #ParkinsonStory, it helps educate and inspire people, and gives much needed attention to PD as a disease that nearly 10 million people are living with globally. If you add in the families, healthcare professionals, researchers, and others who work with and care for the people with PD (PwP), we can conservatively estimate that 100 million people are touched by PD across the planet. Most likely it's two to three times that number.
This is why we chose to highlight the whole community in our new book, not just the people living with PD. I am proud to showcase "Faces of Parkinson's: Global Reflections on PD." In the spirit of the WPC, it includes stories from men and women who hail from 15 countries and represent people from across the PD spectrum.
Each World Parkinson Congress uniquely brings the community together, forcing Parkinson's experts (including patients!) out of their silos. We believe this cross-pollination can impact research decisions, such as the direction, and even the speed, of the research process, bringing new care options and treatments to market faster.
As the organization that launched the interdigitated Parkinson movement with the first World Parkinson Congress in 2006 in Washington, D.C., we are proud to showcase a wide range of community members in this new and touching book. Every story is important. I particularly like the stories about why researchers, doctors, and others chose their careers in PD, and I am always moved to hear how care partners stay strong. These stories matter!
We need each other more now than ever if we are going to close the door on this disease. Let's support each other, listen to each other, and show appreciation to everyone who is marching together to #EndParkinson's. Ask someone to tell you their #ParkinsonStory and be sure to tell yours, it could change someone's life.
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NOTE: If you don't have someone to tell your story to, tell us! Send your story to [email protected], along with a photo, and we'll share it. It doesn't matter how PD touches you, if it touches you somehow, then you have a #ParkinsonStory to tell.
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3 天前My wife was diagnosed of Parkinson’s Disease at age 61. She had severe calf pain, muscle pain, tremors, slurred speech, frequent falls, loss of balance, difficulty in getting up from sitting position. She was put on Senemet for 6 months and then Siferol was introduced and replaced the Senemet. During this time span she was also diagnosed with dementia. She started having hallucinations and lost touch with reality. Last year, our family doctor started her on Uine Health Centre PD-5 formula, 2 months into treatment she improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors. My wife is strong again and has gone on with her daily activities as I share this experience. I’m surprised a lot of PWP haven’t heard of PD-5 formula. we got the treatment from their website uinehealthcentre. com
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3 年Around age 60 I noticed that my handwriting was getting smaller and I was writing faster. I also noticed a small tremor in my right hand. The doctor went over my different symptoms and he suspected I’d either had a small stroke or the beginnings of Parkinson ‘s disease. After finding a neurologist and some testing I was diagnosed with the beginning stages of Parkinson’s disease. That was 4 years ago. I took Sinimet four times a day to control my symptoms, which include falling, imbalance, gait problems, swallowing difficulties, and slurring of speech, A year ago, I began to do a lot of research and came across Kycuyu Health Clinic (www. kycuyuhealthclinic. com) and their Parkinson’s HERBAL TREATMENT. After seeing positive reviews from other patients, I quickly started on the treatment, I experienced significant reduction/decline in major symptoms, including tremors, muscle weakness, speech problems, difficulty swallowing, balance problems, chronic fatigue and others, The truth is you can get off the drugs and help yourself by trying natural methods, i live symptoms free.
Team Member at Parkinsons Power
8 年Have you seen the movement called "face of Parkinson's Project" it's on Facebook and twitter.
Retired
8 年Good stuff, Elizabeth (Eli) Pollard. I like most: https://www.facebook.com/thisisparkinsons/?pnref=story Called 'This is Parkinson's', their videos are remarkably accurate in portraying Parkinson's in the vast numbers of younger onsets. We need the change - so many people still think of it as an 'old-man's disease' and write it off, but it's definitely getting younger and more prolific.