Establishing a Bond - The Admission Visit
Barbara Karnes, RN
Author of GONE FROM MY SIGHT aka: "the hospice blue book", NHPCO Hospice Innovator Award, End of Life Educator
We who work in end of life situations take care of the patient and the caregiver/ family. As end of life approaches, our attention and interactions revolve around the family/?caregiver as much as the patient. Our work involves creating trust with all involved as quickly as possible.
End of life work is time sensitive. We who serve need to establish a bond and trust by the end of our first visit. Time is the enemy here. Sensitive information, scary information, heart wrenching information will be shared and given.
How do we get beyond the social conventions of strangers meeting and getting to know and trust each other in a very short time? From the time we ring the doorbell for the first time, our bonding efforts begin. I begin with a handshake and introduction. “Hi, my name is Barbara. I’m going to be your hospice nurse” (or admission nurse, or social worker, or home health aide, or chaplain).?
Now sit down and get acquainted before actual work begins. This get-acquainted time is as important as all the other work you will do. You’re beginning to build the trust, the comfort that is necessary for each other part of your work.
“Tell me how you’re doing? How is John doing? Tell me a bit about how everything is going for you right now.” While having this conversation, sit next to the person — not across the room, not across a table. You want to be able to touch, to feel close. Without words, you are creating a kinship with which to build trust. No laptops or tablets in sight. No paperwork. This is get-acquainted time, person-to-person time while mentally gathering information.
Then go see John and do your assessment. Much depends upon where John is in the dying process. Is he responsive? If so, maybe he was with you during this get-acquainted time. This would indicate he is probably months from death. Is he in bed, confused, in and out of awareness? Then he is probably weeks from death. Is he non-responsive? Then you assess he is probably days from death.
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Where he is in the dying process will determine how you interact with him and the kind of bond you can make with him. It will also be the determining factor in the amount of visits you will be making. (My recommendation: if months, then once a week. If weeks, then two or three times a week, and if imminent, then every day, sometimes twice a day.)
Our assessment visit finished, we can now explain there is paperwork required. “Let’s sit in the kitchen (or wherever) and get the business part and paperwork signed.”
The visit is now complete. When leaving, and with all future visits, ask these questions. “Have you understood everything we’ve talked about today? Do you have any questions you want to ask me? Is there anything else you want us to talk about?” Remind them of the on call 24/7 availability.?
As I leave the doorway, I again shake hands. Being the hugger that I am, by the end of most visits the caregiver and I will hug. Sometimes simply saying “I’m a hugger. Can I give you a hug?” brings the visit to a satisfying end. A connection has begun.
Something more… about Establishing a Bond- The Admission Visit
During the first visit I would like to see the “essential bundle” be shared with the family/caregivers:Gone From My Sight(“the hospice blue book”),The Eleventh Hour, andAlways offer, Never Force: Food At End of Life.?Gone From my Sighttells what is happening.The Eleventh Houroffers ideas of what to do while it is happening.Always Offer, Never Force?suggests a way of giving the most nutrition for as long as possible. Families need this guidance after you have left and they can’t remember what you’ve explained due to fear and stress.
Death Doula and principal for Last Acts Of Love. Principal of internet real estate marketing company, Active Adult Living, LLC. Advocate for biotechnology in Agriculture and Human Health.
8 个月As a death doula, I'm honored when I get the privilege to perform a warm handover of a client to the hospice of their choosing.
Carole Heaney, End-of-Life Doula, Grief Guide and Educator, Group Facilitator, and Coach/Author
8 个月Great advice, Barbara. Making a true connection requires deep, heartfelt listening. It doesn't take any more time, and the result is so rich. In addition, at some point during the beginning of the conversation, I would ask, "What is your greatest concern or worry right now?" and check back in toward the end with, "Was I able to address your concern or worry?" always closing with, "What other things do you need me to know today?" Far too often, people come to hospice late in their end-of-life trajectory, so it is incumbent on the hospice staff to connect on many levels with the patient and their families as early as we can. This invaluable experience was taught to me when a physician colleague came to the bedside of my dying husband and saw an overwhelmed wife and mother, and had the insight to ask me, "What's your greatest concern right now?" It gave me a parameter to allow me to reach in and pull out something from my massive brain fog, and I responded, "Should I call his parents to come now?" That clarity was priceless. I've used it in my practice ever since. Love your tips, Barbara. Your experience and insight are the best!
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8 个月What fabulous advice, as always, Barbara Karnes, RN! I love so much: the idea of sitting close with no barriers (tablet, table, paperwork, etc) between you; the permission statement at the end ("I'm a hugger. Can I offer you a hug?"); and the open-ended questions/statements ("Tell me about John.") My humnly offered two cents: The closing of the convo could also benefit from an open-ended question: "What questions do you have?" rather than "Do you have any questions?" It implies that questions are welcome and totally normal.
Healthcare Professional
8 个月So true! So important. First impressions go a long way!