A Day in the Life (of a Cancer Survivor)

A Day in the Life (of a Cancer Survivor)

By Samantha Siegel, MD

I wake up disoriented after having vivid dreams of a new neck lump, signifying a possible relapse. In the liminal space between sleep and wakefulness, it seems like a year passes based on the level of fear I have in this moment. Once lucid in the morning light, I remember my remission and it soothes the pain of these awful dreams.??I struggle to get my body to obey my mind’s instructions to leave the bed. This body feels decades older than its chronological age for the first 30 minutes that I’m awake and until I’ve consumed at least 8 ounces of coffee. But I’m still here and I know that’s lucky.?

I quietly acknowledge that I’ve just had a nightmare. As a doctor, I know this is a sign that I still have some cancer related PTSD. I reassure myself that it’s OK to feel this way. Healing is ongoing and unending. I still need lots of reassurance, but I am now my own main source of comfort and I find myself looking less to others for confidence regarding my vitality. That’s growth.?

My first steps out of bed feel clumsy and I have a new soreness in my feet that prompts me to check between my toes where I discover a small pressure ulcer. The sensation in my extremities is all wrong after chemotherapy. I make a mental note to check my feet more often and to go through all of my footwear to get rid of the shoes without proper toe space, since I am now a person who gets wounds on her feet. I wonder if this means goodbye forever to dress up shoes and I chuckle that I finally have a reason to justify wearing pink high top sneakers with all of my fancy outfits. My kids will think I’m awesome. This realization feels like a small win today, so I’ll take it.

With the morning in full swing, kids looking for stray shoes and backpacks, dog barking, I feel physical discomfort with the level of rushing that is required to live a punctual life. I don’t know how I did this before. It’s so hard!

I go to work, mostly virtual still. I remember how much I love interacting with people. I’m a genuinely positive human and I can sense when my pleasantries have brightened someone’s day. I love that feeling! I experience a gust of sadness when I remember how cancer (especially during Covid) contracted my world and impacted my ability to connect with others in this way. My wistfulness blows through quickly and I’m able to be present with people for the rest of my shift.

At night, I take a handful of herbs trying to restore balance to my elements. I know I’m feeling better than before, but I’m frustrated that no test exists to say that I’m “X” percent better. I dance in the kitchen while making a salad. My kids look so much older than when I was diagnosed a few years ago. My youngest will never remember the pre-cancer version of me and I’m not sure how I feel about that. She kisses me and tells me I’m a great dancer, “like a princess” and suddenly I’ve forgotten all about the “C word.” That sweet amnesia lasts a few precious hours.

At bedtime, I do my yoga and breath work while wondering why I had to almost die to learn how to enjoy my life and to cultivate a real sense of well-being. I’m struggling to understand how I can feel so broken down, healed, lucky, guilty, hopeful and alive all at once. I make a quiet promise to live out the remainder of my life's beautifully messy moments in gratitude of those who lift me up and in honor of the ones who didn't get this chance to go on. I'm. Still. Here.?

?


?

Janet Masters

Assisting start ups in market penetration and growth through Clinical Operations/Product Design and Implementation/Advanced Practice Clinical support

4 个月

Thanks for this beautiful and vulnerable post that gives me and I’m sure many others to open up and show their real selves while fighting the demons that only cancer survivors can understand. Thank you for your role model brilliance!

Michelle Kirschner

Survivorship and Supportive Care Leader | Patient Advocate | Nonprofit Board Volunteer | Lifestyle Medicine

1 年

It's so powerful how you share ideas of PTSD and traumatic growth. I have seen symptoms of PTSD in many of my patients and there is a lack of screening and support in cancer care. Teaching survivors about the potential of post traumatic growth gives them hope and something to work towards. You are such a strong advocate for all cancer survivors. I'm looking forward to continuing to work with you.

Andrea Tytell

Competently and Compassionately Representing Children with Special Needs Since 1993

1 年

Powerful, earnest and compelling. I see you. I hear you, I walk with you. I love you. I admire you. I'm inspired by you. Mom

Karen Denvir

Supervising Deputy Attorney General at Office of the California Attorney General

1 年

This is so powerful. ?You are simply amazing and a true silver lining. ?If I had never been diagnosed, you wouldn’t be in my life. ?And I am so grateful to know you. ???

Tami Springs

Senior Territory Business Manager- Hematology

1 年

I admire so much your willingness to be vulnerable and authentic. Beautiful Samantha. ??????

要查看或添加评论,请登录

Samantha Siegel, MD的更多文章

  • The Weight of Watchful Waiting

    The Weight of Watchful Waiting

    A common theme across cancer types is whether any given condition poses a strong enough threat to health and mortality…

    6 条评论
  • Work Accommodations: "Cancer Survivorship" is a Chronic Condition

    Work Accommodations: "Cancer Survivorship" is a Chronic Condition

    One of the issues I hear about frequently is working after a cancer diagnosis. The issue spans cancer types and…

    10 条评论
  • "Patient is a former smoker": Implicit Bias in Cancer Care

    "Patient is a former smoker": Implicit Bias in Cancer Care

    In the information era, with transparent medical records, I think it’s time to revisit how we use social history to…

    5 条评论
  • Precision Survivorship: What Does This Mean to Me?

    Precision Survivorship: What Does This Mean to Me?

    We live in unprecedented medical times. Every time I take a shower and rub soap over my port scar, I am acutely aware…

    13 条评论
  • Scanxiety

    Scanxiety

    By Samantha Siegel, MD The ride to the hospital is lightened by the mood of my friend’s daughter, distracting us with…

    5 条评论

社区洞察

其他会员也浏览了