COVID-19 pandemic effects in individuals with ASD and their caregivers

Lugo-Marín et al. (2021) studied the psychological impact of the lockdown in individuals with ASD and their carers. They found that adult ASD participants perceived a decrease in stress levels after the lockdown onset, whereas caregivers reported higher stress levels. Read more: ‘COVID-19 pandemic effects in people with Autism Spectrum Disorder and their caregivers: Evaluation of social distancing and lockdown impact on mental health and general status.’ – https://pubmed.ncbi.nlm.nih.gov/33649707/

Update 08.07.21: Vasa RA et al. (2021) ‘Psychiatric problems during the COVID-19 pandemic in children with autism spectrum disorder.’ – https://onlinelibrary.wiley.com/doi/10.1002/aur.2574

Update 10.07.21: Krieger, I et al. (2021) ‘COVID-19 Morbidity Among Individuals with Autistic Spectrum Disorder: A Matched Controlled Population-Based Study’ – https://link.springer.com/article/10.1007%2Fs10803-021-05187-2

Update 11.07.21: Friesen, K.A. et al. (2021)?‘Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study.’ – https://link.springer.com/article/10.1007%2Fs10803-021-05177-4

Update 08.08.21: Pellicano E et al. (2021) ‘COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study.’ – https://journals.sagepub.com/doi/10.1177/13623613211035936

Update 17.08.21: Zhao X et al. (2021) ‘Autistic traits and gender modulate emotion changes before and during the COVID-19 pandemic’. – www.ncbi.nlm.nih.gov/pmc/articles/PMC8346342/

Update 09.09.21: Siracusano et al. (2021) ‘Parental Stress and Disability in Offspring: A Snapshot during the COVID-19 Pandemic’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8391692/

Update 17.09.21: Liu L et al. (2021) ‘Mental and neurological disorders and risk of COVID-19 susceptibility, illness severity and mortality: A systematic review, meta-analysis and call for action.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8424080/

Update 18.09.21: Zariffeh A et al. (2021) ‘Post Severe Acute Respiratory Syndrome Coronavirus 2 Infection Tremors in a Nonverbal Autistic Adolescent.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8352834/

Update 23.09.21: Weinstein O et al. (2021) ‘COVID-19 vaccination among individuals with autism spectrum disorder: A population-based study.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8445801/

Update 29.09.21: Hedley D et al. (2021) ‘The association between COVID-19, personal wellbeing, depression, and suicide risk factors in Australian autistic adults.’ – https://onlinelibrary.wiley.com/doi/10.1002/aur.2614

Update 30.09.21: Schott, W. (29.09.21) ‘How to protect vulnerable autistic adults during the coronavirus pandemic’ – https://www.spectrumnews.org/opinion/viewpoint/how-to-protect-vulnerable-autistic-adults-during-the-coronavirus-pandemic/?utm_source=Spectrum+Newsletters&utm_campaign=553b11c875-EMAIL_CAMPAIGN_2021_09_28_05_30&utm_medium=email&utm_term=0_529db1161f-553b11c875-168617385

Update 02.10.21: Lee V et al. (2021) ‘The impact of COVID-19 on the mental health and wellbeing of caregivers of autistic children and youth: A scoping review.’ – https://onlinelibrary.wiley.com/doi/10.1002/aur.2616

Update 07.10.21: Panjwani, Bailey, Kelleher (2021) ‘COVID-19 and Food-Related Outcomes in Children with Autism Spectrum Disorder: Disparities by Income and Food Security Status.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8486494/

Update 24.11.21: Fumagalli L et al. (2021) ‘The (a)typical burden of COVID-19 pandemic scenario in Autism Spectrum Disorder.’ – https://www.nature.com/articles/s41598-021-01907-x

Update 30.11.21: Alonso-Esteban Y et al. (2021) ‘A Systematic Review on the Impact of the Social Confinement on People with Autism Spectrum Disorder and Their Caregivers during the COVID-19 Pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/34827388/

Update 22.12.21: Naqvi D et al. (2021) ‘COVID-19 pandemic impact on psychotropic prescribing for adults with intellectual disability: an observational study in English specialist community services.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8649353/

Update 02.01.22: Nisticò V et al. (2021) ‘A paradoxical psychological impact of COVID-19 among a sample of Italian adults with High Functioning Autism Spectrum Disorder.’ – https://pubmed.ncbi.nlm.nih.gov/34929647/

Update 03.01.22: Kaku SM et al (2021) ‘Experiences of student and trainee autism researchers during the COVID-19 pandemic.’ – https://onlinelibrary.wiley.com/doi/10.1002/aur.2662

Update 04.02.22: Maljaars J et al. (2022) ‘Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults.’ – https://link.springer.com/article/10.1007%2Fs10803-022-05437-x

Update 07.02 22: Bundy R et al. (2022) ‘The impact of early stages of COVID-19 on the mental health of autistic adults in the United Kingdom: A longitudinal mixed-methods study.’ – https://journals.sagepub.com/doi/10.1177/13623613211065543

Update 21.02.22: Kryszak EM et al. (2022) ‘Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder During the COVID-19 Pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/35103899/

Update 10.03.22: Taylor SC et al. (2022) ‘Investigating the relationships between resilience, autism-related quantitative traits, and mental health outcomes among adults during the COVID-19 pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/35151216/

Update 26.03.22: Bozkus-Genc G, Sani-Bozkurt S. (2022) ‘How parents of children with autism spectrum disorder experience the COVID-19 pandemic: Perspectives and insights on the new normal.’ – https://pubmed.ncbi.nlm.nih.gov/35180544/

Update 14.04.22: Adams L et al. (2022) ‘Examining clinicians' concerns delivering telemental health interventions directly to autistic individuals during COVID-19.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8963796/

Update 24.07.22: Karpur A et al. (2022) ‘Food insecurity in households of children with ASD in COVID-19 pandemic: A comparative analysis with the Household Pulse Survey data using stabilized inverse probability treatment weights.’ – https://pubmed.ncbi.nlm.nih.gov/35459604/

Update 17.08.22: (1) Toseeb U, Asbury K. (2022) ‘A longitudinal study of the mental health of autistic children and adolescents and their parents during COVID-19: Part 1, quantitative findings. – https://journals.sagepub.com/doi/10.1177/13623613221082715

(2) Asbury K, Toseeb U. (2022) ‘A longitudinal study of the mental health of autistic children and adolescents and their parents during COVID-19: Part 2, qualitative findings’ – https://journals.sagepub.com/doi/10.1177/13623613221086997

(3) Bolbocean C et al. (2022) ‘COVID-19 Induced Environments, Health-Related Quality of Life Outcomes and Problematic Behaviors: Evidence from Children with Syndromic Autism Spectrum Disorders’ – https://link.springer.com/article/10.1007/s10803-022-05619-7

(4) Scheeren AM et al. (2022) ‘Continuity and change in loneliness and stress during the COVID-19 pandemic: A longitudinal study of autistic and non-autistic adults.’ – https://onlinelibrary.wiley.com/doi/10.1002/aur.2787

(5) Castro-Kemp S et al. (2022) Silver linings of the Covid-19 pandemic… for some! Comparing Experiences and Social demographic characteristics of autistic and non-autistic children with SEND in England.’ –?https://link.springer.com/article/10.1007/s10803-022-05628-6

(6) Choi KR et al. (2022) ‘Habilitative Teletherapy for Children with Autism Spectrum Disorder:’ – https://pubmed.ncbi.nlm.nih.gov/35943378/

Update 19.08.22: Furar E et al. (2022) ‘The impact of COVID-19 on individuals with ASD in the US: Parent perspectives on social and support concerns.’ – https://pubmed.ncbi.nlm.nih.gov/35976958/

Update 29.09.22: (1) Fox L (2022) ‘Parents' perceptions of the impact of COVID-19 and school transition on autistic children's friendships.’ – https://journals.sagepub.com/doi/10.1177/13623613221123734

(2) Sabapathy T et al. (2022) ‘A Pediatrician's Guide to Working with Children on the Autism Spectrum in Coronavirus Disease 2019 and Beyond: Retrospect and Prospect.’ – https://pubmed.ncbi.nlm.nih.gov/35985716/

(3) Bonuck K, Iadarola S, Gao Q, Siegel JF. COVID-19 Vaccines for Children with Developmental Disabilities: Survey of New York State Parents' Willingness and Concerns. – https://pubmed.ncbi.nlm.nih.gov/36067424/

(4) Burke MM et al. (2022) ‘Parental Perceptions of Service Access for Transition-Aged Youth With Autism During COVID-19.’ – https://pubmed.ncbi.nlm.nih.gov/36162047/

Update 26.11.22: (1) Bolbocean C et al. (2022) ‘Resilience, and positive parenting in parents of children with syndromic autism and intellectual disability. Evidence from the impact of the COVID-19 pandemic on family's quality of life and parent-child relationships.’ – https://pubmed.ncbi.nlm.nih.gov/36196501/

(2) Evers K et al. (2022) ‘Mental health of autistic adults during the COVID-19 pandemic: The impact of perceived stress, intolerance of uncertainty, and coping style.’ – https://pubmed.ncbi.nlm.nih.gov/36263743/

Update 23.12.22: Thorell LB et al. (2022) ‘Distance learning during the COVID-19 pandemic for children with ADHD and/or ASD: a European multi-center study examining the role of executive function deficits and age.’ – https://capmh.biomedcentral.com/articles/10.1186/s13034-022-00540-4

Update 31.22.22: Berard M et al. (2022) ‘Screen time and associated risks in children and adolescents with autism spectrum disorders during a discrete COVID-19 lockdown period.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9751585/

Update 14.01.23: Hall CL et al. (2023) ‘Understanding the Impact of Home Confinement on Children and Young People with ADHD and ASD During the COVID-19 Pandemic.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7770476/

Update 15.01.23: Palmer M et al (2023) ‘Effects of a Parenting Intervention for Emotional and Behavioral Problems in Young Autistic Children Under Conditions of Enhanced Uncertainty: Two-Year Follow-up of a Pilot Randomized Controlled Trial Cohort (ASTAR) During the United Kingdom COVID-19 Pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/36639313/

Update 17.01.23: Adams L et al. (2023) ‘Autistic young people's experiences of remote psychological interventions during COVID-19.’ – https://pubmed.ncbi.nlm.nih.gov/36645009/

Update 08.01.23: Scheeren AM et al. (2023) ‘Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review.’ – https://pubmed.ncbi.nlm.nih.gov/36741810/

Update 10.02.23: Shakeshaft A et al. (2023) ‘Mental-health before and during the COVID-19 pandemic in adults with neurodevelopmental disorders.’ – https://pubmed.ncbi.nlm.nih.gov/36753897/

Update 24.03.23: Palmer M et al. (2023) ‘Factors associated with mental health symptoms among UK autistic children and young people and their parents during the COVID-19 pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/36847345/

Update 01.04.23: Vibert B et al. (2023) ‘CRISIS AFAR: an international collaborative study of the impact of the COVID-19 pandemic on mental health and service access in youth with autism and neurodevelopmental conditions.’ – https://pubmed.ncbi.nlm.nih.gov/36788583/

Update 07.04.23: Davis A et al. (2023) ‘Hospitalization and Mortality for Insured Patients in the United States with COVID-19 with and without Autism Spectrum Disorder.’ – https://pubmed.ncbi.nlm.nih.gov/37022580/

Update 16.04.23: Wang F et al. (2023) ‘Efficacy of coping mechanisms used during COVID-19 as reported by parents of children with autism.’ – https://pubmed.ncbi.nlm.nih.gov/37053138/

Update 01.05.23: Friedman S et al. (2023) ‘Respite and connection: Autistic adults' reflections upon nature and well-being during the Covid-19 pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/37113030/

Update 05.05.23: Tessier E et al. (2023) ‘The impact of COVID-19 on residents of long-term care facilities with learning disabilities and/or autism.’ – https://pubmed.ncbi.nlm.nih.gov/37123814/

Update 26.05.23: Day TC et al. (2023) ‘Trajectories of internalizing symptoms among autistic and nonautistic youth during the COVID-19 pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/37222243/

Update 06.06.23: Brunt S et al. (2023) ‘The impact of COVID-19 on receipt of health services among children with and without autism.’ – https://pubmed.ncbi.nlm.nih.gov/37243353/

Update 24.06.23: Parlatini V et al. (2023) ‘Emotional and behavioral outcomes among youths with mental disorders during the first Covid lockdown and school closures in England: a large clinical population study using health care record integrated surveys.’ – https://pubmed.ncbi.nlm.nih.gov/37353579/

Update 25.07.23: Cardon G, Bradley M. ?(2023) ‘Uncertainty, Sensory Processing, and Stress in Autistic Children During the COVID-19 Pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/37484881/

Update 30.07.23: Sideropoulos V et al. (2023) ‘Anxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditions.’ – https://pubmed.ncbi.nlm.nih.gov/37497751/

Update 06.08.23: Termine C et al. (2023) ‘Autism in Preschool-Aged Children: The Effects of COVID-19 Lockdown.’ – https://pubmed.ncbi.nlm.nih.gov/37540405/

Update 11.09.23: (1) Leive L et al. (2023) ‘Program to Support Child Sleep from the Occupational Therapy Perspective during the COVID-19 pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/37665606/

(2) Schiltz HK et al. (2023) ‘A Longitudinal Mixed-Methods Characterization of Family Support from Adolescence to Young Adulthood in Autism and Other Developmental Disabilities. – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10468553/

Update 12.09.23: Stewart GR et al. (2023) ‘A Qualitative Study of Autistic Adults' Quality of Life During the COVID-19 Pandemic and Lockdowns.’ – https://pubmed.ncbi.nlm.nih.gov/37663440/

Update 14.09.23: Plak R et al. (2023) ‘Psychosocial Outcomes in Autistic Children Before and During the COVID-19 Pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/37690082/

Update 05.10.23: Hernandez AM et al. (2023) ‘Educators' experiences and reflections on the implementation of evidence-based practices for autistic students in public schools during the COVID-19 pandemic.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10375038/

Update 18.11.23: Finegold KE et al. (2023) ‘Cognitive and Emotional Well-Being of Preschool Children Before and During the COVID-19 Pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/37971740/

Update 29.12.23: Dahake U et al. (2023) ‘Teleconsultation for Children With Developmental Disabilities During the Coronavirus Pandemic: Caregivers' Experience.’ – https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10721741/

Update 21.02.24: Laurent-Levinson C et al. (2024) ‘Emotions and behaviours of child and adolescent psychiatric patients during the COVID-19 pandemic.’ – https://pubmed.ncbi.nlm.nih.gov/38362905/

Jodra M, García-Villamisar D. (2024) ‘Protective factors against the emotional impact of the pandemic in adults with autism spectrum disorders (ASD) and intellectual disability (ID).’ – https://pubmed.ncbi.nlm.nih.gov/38383720/

Update 05.03.24: Pazol K et al. (2024) ‘Health and Education Services During the COVID-19 Pandemic Among Young Children with Autism Spectrum Disorder and Other Developmental Disabilities’ – https://pubmed.ncbi.nlm.nih.gov/38364085/

Update 19.11.24: Tawankanjanachot et al. ‘An online survey of perspectives towards the impact of the covid-19 pandemic amongst caregivers of adolescents with ASD.’ – https://bmcnurs.biomedcentral.com/articles/10.1186/s12912-024-02492-w

Update 26.11.24: Matonda-Ma-Nzuzi ?et al. (2024) ‘Determinants of Positive Evolution of Symptoms in Children with Autism Spectrum Disorders (ASD) during the COVID-19 Lockdown in the Democratic Republic of Congo. (DRC).’ – https://link.springer.com/article/10.1007/s10803-024-06621-x

Update 08.12.24: Mgaieth et al. (2024) ‘Facing Change and Uncertainty: Lessons Learned from Autistic Children and their Families During the COVID-19 Pandemic.’ – https://link.springer.com/article/10.1007/s10803-024-06656-0

Update 23.12.24: Usami et al. (2024) ‘The COVID-19 pandemic-induced behavioral restrictions and their impact on child and adolescent psychiatric units-Infection control or freedom.’ – https://pubmed.ncbi.nlm.nih.gov/39697485/