CheckRare: Improving Patients Outcomes Through Awareness and Education
We created CheckRare as a passion project: to work with an amazing community of physicians, patients, advocates, and business leaders to raise awareness and educate people about rare diseases.
?Rare Diseases: More Needs to Be Done
There are over 10,000 rare diseases that affect over 35 million Americans. One in 10 people have a rare disease, and most of these patients are children. Most likely, everyone reading this knows a family affected by a rare disease.
We created CheckRare to address the unique challenges that rare diseases pose for patients, physicians, researchers, and drug developers. Whether it is diagnostic delays, limited treatment options, minimal understanding, or lack of resources, leaders in the community work with CheckRare to raise awareness about the phenomenal work they are doing to improve outcomes. That relationship is working – by interviewing the best of the best – our audience recognizes that CheckRare is their best source of information for rare diseases.?
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CheckRare Provides Rare Disease Insights
Since launching the CheckRare platform in 2016, we’ve interviewed over 1,000 rare disease experts, have published over 2,000 videos highlighting rare diseases, and have close to 2 million YouTube views and over 1 million website pageviews. Our platform and content has helped physicians and patients gain a better understanding of their rare diseases, learn about better treatment options and clinical trials, find specialty centers, and be a source of information they can rely on.?? Our humble brag is that our passion project that began 8 years ago is directly impacting medical care for rare disease patients.?
The key to our success is two-fold. First, we respect our audience. We have an exclusive list of 600,000 health care professionals and we only provide them with scientifically accurate information that is relevant to their specialty or practice. Second, partners work with us because we can share their story with an audience they currently struggle to reach.
If interested in learning more about how to best share your story, contact me at Peter.Ciszewski@CheckRare.com