Cerebral Palsy Foundation Highlights - July 2023
Cerebral Palsy Foundation
Changing what's possible for people with cerebral palsy in education, healthcare, technology, and advocacy.
It’s hard to believe that we are over halfway?through 2023! We hope you are having a wonderful summer. It’s not too late to?check out our summer camp guide for some last minute ideas if you are looking to maximize the rest of summer break.
In the meantime, we want to share some of the tremendous initiatives we’ve launched this year and the impact we’re making to improving the lives of people with Cerebral Palsy across the lifespan.
-Team CPF
Ila Eckhoff Appointed New Cerebral Palsy Foundation Board Chair
Ila Eckhoff, CPA, who has been on the board of the Cerebral Palsy Foundation since 2017 was appointed as the new Board Chair earlier this year succeeding Michelle Kassner. Ila is the first woman with Cerebral Palsy to lead a US-based nonprofit board of directors in the disability sector. She most recently was a Managing Director for BlackRock with more than 40 years in financial services.
Cerebral Palsy Foundation 6th Annual Early Cerebral Palsy Health Summit Draws Global Audience
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The Cerebral Palsy Foundation 2023 Early Cerebral Palsy Health Summit drew more than 300 clinicians, providers and stakeholders from around the world sharing new pathways for translating knowledge into practice for the Implementation of early detection and intervention of cerebral palsy from the best researchers and clinicians in the field.
Early detection and diagnosis is a top priority for the Cerebral Palsy Foundation and we are proud that our research and implementation efforts have led to the ability to diagnosing Cerebral Palsy in babies less than one-year of age - marking a significant advance in the way high risk infants are diagnosed, families supported and outcomes improved. Our Early Detection Network of leading medical institutions and clinicians are changing what is possible for high risk infants around the world.
Improving Cerebral Palsy Care in Ireland… and Beyond
We’re excited to announce a major initiative we’ve undertaken to improve Cerebral Palsy care in Ireland. Through the development of three major clinical and research hubs at University College Cork, Trinity College Dublin, and?Royal College of Surgeons in Ireland?(RCSI) University of Medicine and Health Sciences, this first-of-its-kind initiative will establish Ireland as an international leader in Cerebral Palsy care and research. Children’s Health Ireland is an implementation partner in the academic healthcare program component of this initiative.
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Backed by $12.5 million in philanthropic funding pledged from a group of donors including John and Patrick Collison, this five-year program will improve the lives of people affected by Cerebral Palsy in Ireland and their families.
Federal Advocacy Update: Making Legislative Impact
In March of this year, the Cerebral Palsy Foundation was invited to provide Public Witness Testimony to a Congressional Subcommittee on Appropriations emphasizing the importance of federal investment in Cerebral Palsy research and educating lawmakers about the most common lifelong physical disability in the world impacting more than 1,000,000 Americans and more than 17,000,000 people around the world.
Partnering on Clinical Trial Recruitment Improves Research
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An increasing focus of the Cerebral Palsy Foundation is partnering with researchers to improve and accelerate recruitment of participants in Cerebral Palsy research across the country and around the world.?Better research will improve outcomes across the lifespan for people with Cerebral Palsy.
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The Cerebral Palsy Foundation is committed to sharing the most up to date Cerebral Palsy clinical trial and research study information with you on an ongoing basis. Every month we highlight new or innovative clinical trials around the United States and the world that may be a fit for you or your family member.??
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Please click here?to learn more about each trial or study, including where it is located and what medical or research institution is involved.?We've included research studies and trials focusing on both children and adults with different types of Cerebral Palsy.