CEO Update: June 2024

Scleroderma Awareness Month

Time and time again, I hear from members of our community that, aside from a cure, they wish more people simply understood scleroderma. I, and the rest of the Foundation team, are committed to spreading that awareness year-round, but we know that June presents a special opportunity to amplify the voices in our community.

This month we are embracing the theme: Every Journey Matters. We will be sharing stories from people living with scleroderma and their caregivers. Each person’s experience is unique, and they deserve to have their stories heard.

How to Get Involved?

• Light up your space in teal! Show off your creativity and your support of the Foundation by decorating your favorite space with teal lights.
• Share your journey with the community! Send us a one-minute video and tell us your story and we will share it across the Foundation channels in June. You can send your videos to: [email protected].
• Use #everyjourneymatters on social media to help connect with other members of the community.
• Visit the Foundation Store to get what you need to spread awareness year-round.

Learn more about the Foundation’s plans for Scleroderma Awareness Month and how you can get involved on our website.

#TealTalk 2024?

Our #TealTalk series is back for Scleroderma Awareness Month 2024. Once again, we are bringing our community together for our #TealTalk series of live conversations with special guests. You won’t want to miss this!?

Be sure to mark your calendars and join us each Thursday in June at 2 p.m. ET.

• Thursday, June 6 – Young Adult Table Discussion
• Thursday, June 13 – Stem Cell Transplants & Scleroderma
• Thursday, June 20 – What’s Exciting in Scleroderma Research
• Thursday, June 27 – Self-Care Toolkit

Stepping Out to Cure Scleroderma

There are dozens of Stepping out to Cure Scleroderma?walks scheduled for the month of June. Join us and thousands of others in supporting the Foundations’ mission by taking one step at a time during our awareness walks.

>> Find a walk near you today!

See You in Seattle!?

The National Scleroderma Conference?and the Kids Get Scleroderma, Too Conference?are right around the corner!

If you haven’t registered yet, please don’t miss out on this great opportunity for learning and community building in Bellevue, Washington—on the east side of Seattle.

We have an exciting lineup?of panels and presentations that you will not want to miss.

>> Register today!

Share Your Input

The National Center for Advancing Translational Sciences is looking for input on the draft of its strategic plan. You are invited to review the Draft NCATS Strategic Plan for 2024–2029 and email feedback?by June 14. The plan serves as a vital roadmap to support the organization’s mission of turning research observations into health solutions through translational science.