CEO Update: June 2023

June is Scleroderma Awareness Month

Each year, we designate June as Scleroderma Awareness Month. Our message this year is “Let’s Talk About Scleroderma.” The goal is to urge those in our local communities to engage in meaningful conversations about scleroderma. Anyone can have scleroderma. The cause is still unknown and there is no cure. The more we talk about scleroderma, the closer we get to overcoming scleroderma.

Join us each week in June for weekly #TealTalk events. Our #TealTalk Table series are engaging roundtable discussions where you can meet other members of the scleroderma community and share your journeys. Register once for all sessions and join on the dates you can!

>> Our first session is TODAY at 12:00 pm ET.

Join us throughout June by using the hashtag #tealtalk to promote awareness about scleroderma all month long! Learn more at scleroderma.org/tealtalk.?

We are grateful to our Awareness Month partner, 勃林格殷格翰 for their support of these efforts.

June is our biggest walk month of the year! Be sure to mark your calendar and join us at one of more than 30 Stepping Out to Cure Scleroderma walks this year.

Whether you join us in person or virtually, you are part of our vision to find a cure.

>> Sign up today at https://scleroderma.org/steppingout/!?

Join us in Orlando!

We are so excited to be returning to an in-person conference this year! This year’s conference will be held July 14-16 in Orlando, Florida. Virtual registration is available for those unable to join us in person. Registration is now open at https://scleroderma.org/national-conference/. Join more than 450 of your closest friends who have already registered! You can also view a preliminary program on our website.?

I hope you’ll join us for this very special time together, hearing from leaders and experts in our community on how to live better with scleroderma.???

Upcoming Events

• June 1st is our first #TealTalk roundtable event! Register here.
• June 19th Foundation offices will be closed for the Juneteenth holiday
• June 20th is our quarterly Early Career Investigators Workshop (invitation only)
• June 21st is our next Lunch & Learn Educational Webinar, hosted by the Michigan and Minnesota Chapters. This session will feature Glen and Elizabeth Copeland as they share their journey with Glen’s autologous stem cell transplant. Register here!
• June 29 we’ll be hosting a CME Session on Difficult Management Cases in Scleroderma in Boston, Mass.
• June 29 is World Scleroderma Day – Use the hashtag #tealtalk all month long to help us raise awareness about this rare disease
• June 30 marks the end of our fiscal year – if you haven’t made a gift yet this year, please visit scleroderma.org/donate to donate now!?

Thank you for your continued support of people impacted by scleroderma.

Mary J. Wheatley, IOM, CAE

Chief Executive Officer

National Scleroderma Foundation