A Blatant Request For Help

I may have over extended myself! eek??

Some of you may know that I have 2 kids and both are affected by a bleeding disorder called Hemophilia. 

~ My son (severe) has done very well and is healthy

~ my daughter (mild) has had no issues at all

It would be very easy for me to just not worry about trying to raise money since both of my kids are doing great. I could just mind my own business and go about the MANY other things I have going on. but...that's just not who I am.

Here's the thing... 

~ I remember holding my newborn son and being very scared about his future, even though I knew about Hemophilia and he was the 8th hemophiliac on my mothers side of the familyd. it was scary.

~ I remember having to explain why my kids are different, why my son was wearing a helmet and knee pads to protect his little joints when learning to walk

~ I remember what it was like walking into the emergency room because he had shots, or he fell down, and now had a bleed and having to literally educate doctors and nurses because they didn't see any obvious blood when he had bleeds

~ I remember not being able to just drop my child off at daycare because they didn't want the liability (thank God for Grandma?)

~ I remember the feeling of being an educated consumer and qualified advocate for my sons medical care. I got so good, Id walk in and tell them what we were going to do. 

(nothing fiercer than a mom protecting her young)

~ I remember meeting my daughter for the first time and thinking Hemophilia was no big deal when they asked me MANY times if I was sure I wanted to adopt her with Hemophilia.

~ I am aware that although my daughter is not really affected, she may have kids some day and they might be, and she really needs to know how to deal with that starting now.

~ I know the feeling of being on an island (literally) and wondering if we are the only ones

~ I know the MANY MANY times I had to go meet school nurses in middle and high school to assure them my daughter was ok to be in school because they didn't know much about her bleeding disorder.

~ I KNOW there are many many young boys and girls who go undiagnosed, yet they have symptoms of a bleeding disorder

~ I KNOW there is a need for education and awareness here in Hawaii.

So I decided to get in the game and made a goal of $1000 by August 4th...!

We've got about 1 month to go and we aren't even 5% there and that's ok. We will do what we can

However, I would like to ask my friends and family to get involved too. 

1. Join our team as a local walker here on Kauai ~ We walk Saturday Aug 4th in the morning, possibly Lydgate, and we'll have fun and BBQ potluck afterwards.

2. Join our team as a virtual walker where ever you live

3. Donate anything (every $1 counts) to any one of our team mates - we have 4-5 (all family) so far.

4. share this and help us increase awareness.

You can get involved with us here:>> https://www.uniteforbleedingdisorders.org/team/9721

Lastly, thank you! if you watch my profile much, you know I spend most of my time sharing ocean pictures, cat vidoes, and flowers and I don't do a lot of fundraising. I hope you'll forgive me with this one - it's a cause that is dear to my <3

Blessings, Regina