Autism Advocacy: Denial in Recognizing Autism in Pakistan
Iqbal Tabraze
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In Pakistan, the journey towards recognizing autism spectrum disorder (ASD) is fraught with challenges deeply rooted in cultural beliefs and societal norms. Autism, often misunderstood and misattributed, confronts families with a profound sense of denial. Cultural narratives that perceive developmental differences as divine retribution or supernatural phenomena hinder acceptance and acknowledgment of autism as a valid neurodevelopmental condition.
Families grappling with developmental concerns in their children frequently encounter resistance to medical explanations, preferring instead to seek solace in traditional healers or religious interpretations. This denial is compounded by fears of social stigma and ostracization within communities, compelling families to keep autism hidden or untreated. As a result, children with autism are often deprived of early intervention opportunities critical for their developmental progress.
Moreover, the broader societal denial of autism perpetuates a cycle of misinformation and neglect. Healthcare professionals, inadequately trained and unfamiliar with the spectrum of autism, contribute to diagnostic delays and erroneous assessments. The lack of specialized diagnostic facilities further impedes accurate identification and subsequent access to appropriate support services.
Addressing these challenges necessitates a concerted effort in autism advocacy aimed at dispelling myths, increasing awareness, and fostering a culture of acceptance. By challenging denial and promoting understanding, advocacy organizations in Pakistan strive to create pathways towards early diagnosis, inclusive education, and comprehensive support systems for individuals and families affected by autism spectrum disorder.
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