2020 Behind the Mystery Recap

2020 Behind the Mystery Recap


It was a busy year for Behind the Mystery . We promised to raise awareness on the 7000 rare diseases that we know of, and we finally hit 100 this year. Below are the links to the ones that aired on Lifetime TV on the morning show The Balancing Act.

Behind the Mystery: Why We Started the Series - The Balancing Act

Understanding Pulmonary Arterial Hypertension - The Balancing Act

Behind the Mystery: IgA Nephropathy - The Balancing Act

Behind the Mystery: Sickle Cell Disease - The Balancing Act

Behind the Mystery: Glioblastoma Multiforme Sponsored by Novocure? - The Balancing Act

Behind the Mystery: Urea Cycle Disorders - The Balancing Act

Behind the Mystery: Acromegaly - The Balancing Act

Behind the Mystery: Glioblastoma (GBM) - The Balancing Act

The Importance of Clinical Trials for Rare Disease Patients - The Balancing Act

Behind the Mystery: Friedreich's Ataxia - The Balancing Act

Behind the Mystery: Fibrodysplasia Ossificans Progressiva (FOP) - The Balancing Act

Behind the Mystery: Castleman Disease - The Balancing Act

Behind the Mystery: Alport Syndrome - The Balancing Act

Ilana Shares Her Rare Disease Story | Behind the Mystery - The Balancing Act

Hear Mylah's Story for Rare Disease Day | Behind the Mystery - The Balancing Act

Hear Seth's Story for Rare Disease Day | Behind the Mystery - The Balancing Act


Yaffa Grace, MPH

Life Science Partner | Talent Acquisition Leader | Rare Disease/Biotech Talent Strategy + Job Search Expert | Community Builder Commercial Teams, Market Access, Patient Services, Medical Affairs, Marketing

4 年

I love what you are doing to raise awareness and increase our understanding of what's most important - the patient's and their families experience.

Carlos Brice?o

A empathetic storyteller/communicator, caregiver and missionary disciple who seeks Truth, Beauty and Goodness

4 年

I really appreciate what you're doing to raise awareness on rare diseases. Here is my humble attempt to do so: https://huntingtonsdiseasenews.com/2020/12/22/operation-warp-speed-should-inspire-rare-disease-effort/ Please continue to keep up your great work and advocacy.

Shelley Cuellar

Executive Assistant

4 年

This is amazing!

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