12 Months After Cochlear Implant Surgery: A Journey of Transformation

Today I was sitting have lunch with a close friend of mine Iker Iba?ez - reflecting on the year that has been (and its been a tricky one for me personally and professionally) - when it dawned on me... its been 12 months since I had cochlear surgery - and I had completely forgotten. It is in fact 12 months ago, tomorrow!

So considering you have all been with me on this journey, thought it might be time for an update.

Cochlear implant surgery was life-changing procedure for me it opened up new world of sounds that i haven't heard in years, and in some cases not at all! While the initial decision to undergo the surgery was daunting and one that I grappled with (see here to understand why), the months following were truly marked by significant milestones, challenges, and, ultimately, transformation.

Let me breakdown what the 12 months entailed...

The First Days Post-Surgery: Recovery and Hope

Immediately after cochlear implant surgery, there was of course a period of physical recovery. The procedure itself was minimally invasive, but it take me a few days to recover. During this phase, there were a mixture of emotions—I also felt highly isolated - without really having an understanding of what my future had in store. The anticipation for my "turn on date" kept me focused on the recovery - and allowed me to move away from the feeling of isolation and potential loss of identity.

The Activation: Hearing for the First Time

Around week 3 after surgery, the cochlear implant was activated—i know you have all seen those videos of babies and kids hearing for the first time, but for me I didn't get the the instant “miracle” moment. Sounds were robotic or mechanical - it sounded like I had a 1000 robotic chipmunks in my head, and it took me and my brain time to adapt to this new way of hearing. To be honest.. I really didn't like it.. and I was heavily questioning my decision.

The activation was just the beginning of the process. My Initial reactions ranged from amazement to confusion as my brain continued to work to interpret these new signals. I think naively, I expected to be able to hear perfectly upon activation - however, I couldn't understand speech, I couldn't ascertain what sounds were what.. and there was just a huge amount of confusion.

Month 3: Adapting to the New Normal

By the third month, I had adjusted to wearing and using the cochlear implant daily. Intensive auditory rehabilitation usually begins, I have to admit, I wasn't great with this part. I felt that the speech therapy for me wasn't what I needed, it felt old school and a little backwards.. I had pieces of paper to track sounds, when I had this amazing piece of tech in my head.. I couldn't correlate the two.. and quickly I dropped out of speech therapy.

Instead i started using video streaming through to my cochlear to start to learn sounds, words, understand tone and accents... so yes, I was a "naughty" recipient.. but you know what - it worked for me!

I started noticing improvements in my ability to hear conversations, especially in quiet environments. However, noisy settings, like restaurants or public places, it still presented challenges. It was at this point I needed to ramp up my "practicing being patient" with myself!

Month 6: Significant Progress and New Challenges

By the six-month mark, I started noticing huge differences in what I could hear. Speech became clearer, and I could distinguish accents and different voices, music, and even subtle environmental sounds like birds chirping. The best of it - was the adjustment to a new way of hearing started to become less mentally taxing as my brain continued to adapt.

Although, that while progress is evident, the journey was far from linear. Some sounds were still difficult to interpret, and the mental fatigue from constantly processing auditory information did persist. Social situations, especially in noisy environments, continued to pose difficulties, but these challenges gradually did lessen with time.

Month 9: Gaining Confidence and Independence

By the ninth month, I felt more confident in my ability to navigate the world with my new "head gear". What was cool is that I started to notice improvements not just in hearing but how I was able to interact with people around me. I started to get more social, feel more independent in public spaces, and enjoy listening to music again - largely without the aid of subtitles or other assistive devices.

For me it was certainly a growing sense of empowerment. I was and am still using sign language and closed captions largely.. however, it is now augmented with sounds that I can interpret and understand.. I started to feel like I am missing less and less.

Month 12: Reflecting on a Year of Transformation

Twelve months after cochlear implant surgery, the transformation is profound. What once started as robotic, unfamiliar sounds has now evolved into a clearer, richer auditory experience. I am now able to engage fully in conversations, appreciate the nuances of music, I even attended my first concert (Pink) - which was an incredible experience. I am also able to hear phone calls and have phone conversations, which is pretty mind blowing.

So what now? Well the journey doesn't end at the 12-month mark, the cochlear implant experience is a continuous process of learning and adaptation - but ongoing practice, my own version of "therapy" will help me get better and better at interpreting the world around me.

Naomi's Tips for Success After Cochlear Implant Surgery

1. Stay Committed to Auditory Rehabilitation: Progress may be slow at first, but consistent practice with speech therapy and listening exercises is crucial to long-term success. BUT - do this in your own way.. if the old school approach doesn't work - find something that works for you.
2. Be Patient with Yourself: It’s important to remember that hearing with a cochlear implant is different from natural hearing, and the brain needs time to adjust.
3. Join a Support Group: Engaging with others who have undergone the same journey can provide emotional support and practical advice for overcoming challenges. This was critical for me Jia Wei Y. was a superstar here, always checking in with me!
4. Utilize Technology: Many apps and devices can help improve listening skills and make everyday tasks easier, such as connecting your cochlear implant to your phone or TV. I literally feel like the bionic woman these days.. the tech is critical for me day-by-day.
5. Celebrate Milestones: Whether it’s hearing a loved one’s voice clearly for the first time or enjoying music again, celebrate each achievement as a testament to your resilience.

Conclusion: A Life Re-imagined

The 12-month journey after cochlear implant surgery is one of - dare I be so bold to say this about myself.... resilience, patience, and transformation. From the initial activation to daily life improvements, perseverance and support can lead to a differently connected life. While challenges remain, the overall experience is one of rediscovery—of sound, connection, and confidence.

For those considering cochlear implants or currently navigating the process, the message is clear: while the road may be long, the destination is worth the journey.

Sorry for the long post... but as I said in the tips - I'm celebrating this milestone!

Thanks for all of you who have supported me through this journey, have listened to my meltdowns and frustrations, and laughed with me at some of the "discoveries" - you truly have made this journey possible.

Naomi