1% of the population is affected by this rare heart disease

On the occasion of World Rare Heart Disease Day, it is paramount to illuminate the lesser-known heart conditions that have silently affected individuals over the years. These diseases, being less prevalent, often elude detection by many healthcare professionals and pose significant challenges due to their genetic nature and limited treatment options.

In this edition of The Rhythm Report, we endeavor to dismantle the barriers surrounding rare heart diseases and raise awareness about them, aligning with our mission to promote heart health and share life-saving insights.

Rare Heart Disease in the Domain of ECG?

In the domain of ECG, one rare heart disease people normally encounter is Long QT syndrome. While most people are born with the Long QT syndrome with certain alterations in their DNAs, the rarest of the rare people acquire Long QT syndrome through some medical conditions, certain drugs, or mineral imbalances.

It is a less-explored cardiac disease that can have serious consequences. People suffering from Long QT syndrome normally encounter sudden fainting or seizures. The danger of this rare heart disease goes as far as sudden death. Hence, people suffering from it are always teetering between life and death.

Detection of Long QT Syndrome?

The Long QT Syndrome is only and only detected by electrocardiogram (ECG/ EKG). A single ECG or multiple ECGs are required for the detection of this rare heart disease. For its detection in the electrocardiogram, the long QT interval is measured. It is a prolonged period between the heart’s electrical activity that triggers a heartbeat, consequently propelling the heart’s contraction.?

This is shown in the electrocardiogram traces and you can detect the presence of Long QT syndrome. After the detection of the Long QT syndrome, the only way to treat it is through medications. Moreover, in some cases, a device is planted inside the patient to regulate the heart rhythm.?

How do I Prevent Long QT Syndrome??

We hate to burst your bubble like this, but there is no proper way of preventing a rare heart disease like Long QT syndrome driving dangerous heartbeats. However, by sudden lifestyle changes like a good nutritious diet, rich in lean proteins, and devoid of saturated fats, you can prevent its further exacerbation.

Dr. Yogendra Singh’s Insights on Rare Heart Disease?

In a profound dialogue with Dr. Yogendra Singh, an esteemed interventional cardiologist at Max Super Speciality Hospital, Dehradun, we delved into the intricate details of rare heart diseases. Dr. Yogendra, who regularly attends to heart patients in his personal clinic, and Max Hospital, illuminated us on the predominantly genetic nature of these conditions, emphasizing the challenge they pose in diagnosis for many physicians.

Moreover, Dr. Yogendra underscored the potential benefits of performing ECGs at home using portable devices , particularly in cases of rare heart diseases. Drawing from his extensive experience, he revealed that fewer than 1% of individuals encounter these elusive conditions, shedding light on their rarity and complexity.

During this enlightening discussion, Dr. Yogendra emphasized the primary treatment modalities for these diseases, highlighting the role of medications while acknowledging the occasional necessity of surgical interventions. Despite the diagnostic conundrum and potential treatment challenges, he remained hopeful, advocating for timely medication adherence and the adoption of a healthy lifestyle to mitigate the progression of these conditions.

Empowering Action Today

If you find yourself grappling with a rare heart disease, we urge you not to despair. Stay vigilant with regular ECG monitoring and continuous consultation with your healthcare provider. Now more than ever, it's crucial that we unite as a collective force to raise awareness and prevent the onset of rare heart diseases, as well as all heart-related conditions. Through The Rhythm Report, we strive to foster a culture of holistic health, empowering individuals and their loved ones to safeguard themselves against the risks of heart disease.