Recently, I shared news of our first #Kleefstrasyndrome gathering in Germany, and now we’re already preparing for the next big milestone: ?? a scientific congress in 2025 in Spain ?? ?????? ???? ???? ?????? ???????? ????????????? It’s simple: Imagine having a child with a barely researched syndrome. For parents, that means many questions and few answers, because research is still in its infancy. I believe in taking action over waiting – or as we say in Germany: Machen, nicht meckern! If we as parents don’t push for progress, who will? A congress like this is costly, which is why I’m supporting the Asociación Kleefstra Espa?a in their fundraising efforts. I do my best – and with your help, we can create a brighter, more hopeful future for our children. Link to our fundraiser page and more details in the first comment. #thankyou #Kleefstrasyndrome #research #rarediseases
Lieber Sebastian Ziegler, ich kann euer Engagement nur bewundern! "Machen, nicht meckern!" - genauso sehe ich das auch. Ich wünsche euch sehr, dass der Kongress im kommenden Jahr stattfinden kann.??
Happy to support you on your mission Sebastian!
Gracias Sebastian por tus esfuerzos! Muy ciertas tus palabras. Yo también soy una mamá SK con más preguntas que respuestas
https://www.gofundme.com/f/f7792-unterstutzung-einer-kleefstra-syndrom-konferenz-2025