Ultragenyx的动态

The #RareDisease community is built on millions of unique experiences. Yet, it’s the shared journeys, common challenges, shared passions and celebrations, and united voices that bring us all together. We're thrilled to announce the launch of UltraAdvocates, a new initiative dedicated to amplifying the voices of rare disease patient and caregiver advocates while collaborating on shared priorities to address challenges and celebrate milestones. Thank you to our first UltraAdvocates, Amber, Ashley H., Ashley W., and Meri for your strength and inspiration. We can’t wait to create change with you. Read more about our UltraAdvocates initiative: https://lnkd.in/eJfGxk88 #RareDiseaseDay #ShowYourStripes