Tenaya Therapeutics的动态

As Hemab advances the first prophylactic treatments for the full spectrum of bleeding and clotting disorders, we remain committed to advancing research and development for underserved bleeding and thrombotic disorders by prioritizing the real-life experiences and impacts these conditions have on individuals living with them. New insights from the Glanzmann’s 360 study reveal the unseen challenges faced by people with Glanzmann Thrombasthenia (GT), where nearly one-third of patients experience depression and 26% report low self-esteem. Acknowledging the significant impact GT has on mental well-being and social interactions, we are reshaping the treatment landscape through innovation and dedication. Our goal is to empower the GT community, paving the way for a future where patients can live more fulfilling and confident lives. Learn more about our unique approach at https://hemab.com/ as well as our Phase 2 clinical trial for HMB-001, a subcutaneous injection designed to restore clot formation impaired by GT. Read the Haemnet GT 360 study here: https://lnkd.in/eNumsur4

What is Chronic Fatigue Syndrome? It is a syndrome caused by sickle cell disorder and other diseases. It is characterised by: 1. Chronic fatigue that does not resolve with rest or sleep. 2. Unrefreshing sleep irrespective of the duration of sleep. 3. Migraine-like headache. 4. Short-term loss of memory or concentration. 5. Mood swings. 6. Chronic loss of appetite. 7. Polyarthralgia. 8. Myalgia 9. & others. ? Diary of a Sickle Cell Warrior. To know about chronic fatigue syndrome, Get the book, THE MANY FACES AND LIVES OF SICKLE CELL - A GLOBAL COLLABORATION. Where I shared my chronological experience of chronic fatigue syndrome, With the stories of other sickle cell warriors across the globe. Available on Amazon via this link: https://lnkd.in/dPzA_7sB

Haemnet's Glanzmann Thrombasthenia 360 study recognized significant bleeding-related challenges. The results of the compiled research is below! Those who had the courage to share their experiences with them are hero's in this community! #glanzmannthrombasthenia #UltraRareBleedingDisorders #bleedingdisorders #plateletdisorders

*CLOVES SYNDROME AWARENESS DAY* The Day is celebrated on *3rd August* every year, *to spread the awareness of Cloves Syndrome causes deformities due to the overgrowth of tissues.* This rare genetic condition impacts the physical and emotional well-being of an individual. *"Together, we can make a difference for those living with Clove Syndrome. Let's raise our voices and support research for a cure"* *#worldclovessyndromeawarenessday* *#breakdownbarriers* *#compassioninaction* *#MJCAS*

Terminology is important. As we are starting to get a better understanding of low grade systemic inflammation, it is time to appreciate that the term "neuroinflammation" presents problems. A nice discussion here https://lnkd.in/ecbHcEZE

In my latest contribution to the AHA Blogging Stroke, I ask "Do Low Serum Albumin Levels Increase the Risk of Cardiovascular Events in Ischemic Stroke?" Read my thoughts below! ?? https://lnkd.in/eC9HpqUQ

This article by our esteemed authors ???????? ??????????, ???????? ????????????, ???????????? ????????????, and ???????? ???????????? explains the degeneration of the wrist joint because of systemic diseases, such as rheumatoid arthritis, osteoarthritis or trauma, can be painful and debilitating. Patients may experience a reduced range of motion and grip strength. Wrist arthrodesis is a viable option for the management of pain; however, it eliminates motion at the radio- and midcarpal joint. The use of wrist arthroplasty is growing in popularity, as an alternative to wrist fusion, to maintain range of motion. Learn more: https://lnkd.in/gmURjBrU

Join us for an insightful session with Dr. James Q. Del Rosso, DO, FAOCD, FAAD, as he delves into the intricacies of acne pathogenesis and the role of androgens. In this presentation, you'll learn about: ?? Key biological processes involved in the development of acne. ?? Major factors contributing to acne formation, including sebaceous gland activity, hyperkeratinization, inflammation, and the role of Cutibacterium acnes. ?? The influence of androgens on sebaceous gland activity and sebum production. Register here to secure your spot: https://ow.ly/6Nl350SiNl9

As a crystal-engaged hand #osteoarthritis researcher, I am intrigued: "Chronic CPP crystal inflammatory arthritis was associated with acute wrist arthritis (aOR 2.92 [95% CI 1.81-4.73]), metacarpophalangeal joint osteoarthritis (aOR 1.87 [95% CI 1.17-2.97]), and scapho-trapezo-trapezoid (STT) joint osteoarthritis (aOR 1.83 [95% CI 1.15-2.91])" ????? To read more about the characterisation of Calcium Pyrophosphate Deposition Disease Phenotypes check out the online ahead of print article ??https://lnkd.in/dq485J99

Watch this video of a talk at #MIMSLearningLive by Dr Kevin Fernando on why #MASLD should primarily be seen as the liver’s manifestation of metabolic syndrome.