Welcome Our New Rare Connections Support Group Coordinator & Moderator – Gaby Luna! We are thrilled to welcome Gaby as our Rare Connections Support Group Coordinator & Moderator! Gaby is a kind and compassionate advocate with a deep passion for supporting the rare disease and medically complex community. As a mother of two boys with special needs—one of whom has a rare disease—she has dedicated herself to elevating the patient voice and leading change. Since 2019, Gaby has been a patient advocate for a national infusion pharmacy, using her lived experience to support others navigating complex medical journeys. She serves as the MA Hub Leader for The Global Gastroschisis Foundation and has actively advocated at Rare Disease Week in D.C., DDNC, and the Caregivers in Crisis campaign in Massachusetts. Recognizing the need for a dedicated community for individuals on nutrition support, she founded the Central Line Travelers support group in 2022. With a Bachelor’s degree in Business Management, Gaby has also shared her expertise at Oley, ASPEN, and the Division of Children and Youth with Special Health Needs. Her passion, knowledge, and advocacy experience make her an incredible addition to the RNE team. Please join us in giving Gaby a warm welcome! We are so excited for her to continue her journey in supporting and empowering others through Rare Connections. ?? #rarenewengland #rne #supportgroup #peertopeersupport #raredisease #newengland #support #advocacy #education
Patient Advocate- Independent Consultant
1 天前Thrilled to be a part of Rare New England !