Patient-Led Research Collaborative的动态

Join World Health Organization and Project ECHO for webinars for international clinicians: "Post COVID-19 condition: Science, Research and Policy" Hear an update on global scenario of research on post COVID-19 condition, what we have learnt so far, and initiatives to support patient care with #LongCOVID. Featuring speakers Lisa McCorkell and Hannah Davis of PLRC Wednesday (20 November) 16:00 – 17:00 CET Thursday (21 November) 22:00 – 23:00 PET/COT?? Friday (22 November) 08:30 – 09:30 IST Available in English, Spanish, French, Portuguese, and Arabic. Supported by Schmidt Initiative for Long COVID Register here: https://lnkd.in/gs3sQVzF

  • Blue background with "Long COVID" and WHO logo

Also to be considered: https://tinyurl.com/Covid-kardiotox, and: - https://www.ucsf.edu/news/2024/11/428831/1-genomic-test-can-diagnose-nearly-any-infection (11/2024) - https://www.dhirubhai.net/posts/prof-dr-arndt-rolfs-87a8b8a7_bardet-biedel-syndrome-and-whole-genome-sequencing-activity-7266541690721607680-Sonv FYKA... for checking cross-topic associations for interdisciplinary work... possibly to develop a multifactorial AI based DNA screening routine option...

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Pascal Grootveld

Voorzitter vereniging Long Covid Nederland | voormalig orthopedagoog-generalist in opleiding

4 个月
Mieke Beselaere

Former Government Affairs Professional, forced while ill to advocate for change for neglected diseases such as POTS & associated high burden yet underresearched conditions ME & Long COVID that are mainly affecting women

4 个月

Sadly not possible to register as a patient / patient representative / patient researcher

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Eileen M. Hogan

Committed to improving health for patients, families, and communities. The George Trachtenberg School of Public Policy and Public Administration, The George Washington University

3 个月

A critical initiative

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