The SUDC Foundation

Research Opportunity: Assessing the Perception and Experience of Postmortem Genetic Testing Among Surviving Family Members Long Island University is conducting a study to understand the experiences of families who have pursued postmortem genetic testing for a loved one. Their insights could help improve the field's understanding of this process's logistical and emotional aspects. Professionals working with families who meet the following criteria are encouraged to share this opportunity Eligibility Requirements: ? Participants must be 18 or older. ?Next of kin of a family member 18 years old or younger at the time of their sudden unexpected passing. ?Cause of passing was not due to homicide, suicide, or accident. ?Postmortem genetic testing was conducted. This survey, which takes approximately 20-40 minutes to complete, will help inform the genetic counseling profession about the unique needs of these families. ? Access survey here: https://lnkd.in/eGvATJWV Thank you for helping us support this important research. #ResearchOpportunity #GeneticTesting #GeneticCounseling #SUDC #HealthResearch #PostmortemTesting #AdvancingScience #LIUResearch

As winter approaches, many of us may feel the weight of shorter days and colder weather, particularly when navigating grief or supporting others through trauma. For professionals experiencing secondary trauma or working with communities impacted by loss, these challenges can take a toll on focus, productivity, and overall well-being. Prioritizing self-care is essential—for ourselves and for those we serve. Small but meaningful practices, like seeking natural light, maintaining a steady routine, fostering connections, and creating a supportive environment, can help build resilience and balance during the darker months. Please consider sharing these tips with the communities you serve. Empowering others with strategies for navigating grief and maintaining wellness can make a significant difference during this season. Remember, self-care is not a luxury—it’s necessary to sustain our ability to support others. Explore practical ways to find light in darker days ? https://lnkd.in/eRHNAAUN #Resilience #MentalHealthAwareness #GriefSupport #SecondaryTrauma #WinterWellness #SelfCare

Today, on Children’s Grief Awareness Day, we recognize the unique journey of grieving children, especially siblings coping with the sudden loss of a brother or sister. As medical professionals and clinicians, understanding their specialized needs is crucial to fostering healing and resilience. ?? Consider these strategies for supporting grieving siblings: Creating space to honor their loved one—whether through lighting a candle, making a memory box, or sharing stories—can provide both connection and a sense of validation. Encouraging personalized ways to grieve helps nurture resilience and supports emotional growth. At the SUDC Foundation, our Teen Ambassador Program empowers siblings by helping them find their voice, build community, and inspire hope as they navigate their grief journey. https://lnkd.in/eqA4BPUs ?? Learn more about navigating sibling loss with these resources: https://lnkd.in/ekxUaDqM #ChildrensGriefAwarenessDay #SUDCSiblings #GriefSupport #MedicalProfessionals

Did you know The SUDC Foundation offers a SUDC Cares Program? This is a complimentary counseling program, is here to support families on their healing journey with trauma-informed grief counseling tailored specifically for those impacted by Sudden Unexplained Death in Childhood. The program offers compassionate guidance to help families navigate the complexities of loss and find pathways to healing. If you know families who could benefit from this specialized support, please share this resource. Together, we can guide families toward healing. Learn more and refer families here: ?? https://lnkd.in/eWnjHMWx #SUDCCares #GriefCounseling #HealingJourney #MedicalProfessionals

Together, we can magnify the compassionate power of community giving. No single donor can do it but when we all unite, we create a force capable of addressing the greatest challenges faced by those affected by SUDC. Every step of the way we help families manage their incomprehensible grief, offering the oxygen to manage their devastating loss, and ensuring that no one grieves alone. Your generosity makes it all happen! If every person reading this post gave just $30, we could raise over $100,000—funds that bring hope and optimism for SUDC families. When shared hearts raise their voices together, anything is possible. Please donate today ? https://sudc.org/donate/ #givingtuesday #donatetoacause #communitygiving #sudcfoundation #noonegrievesalone

To our medical professionals ? The holiday season can be an especially challenging time for families grieving the loss of a child. If you are working with families experiencing such a profound loss, please consider sharing this resource. Encourage families to: ? Take time for themselves: Remind them it’s okay to decline events or leave early if needed. ? Create a quiet space: Suggest designating a place to retreat when emotions become overwhelming. ? Lean on their support system: Encourage connecting with loved ones, support groups, or counselors for understanding and comfort. Supporting emotional well-being is vital—let’s help families navigate this difficult season together. #GriefSupport #ChildLoss #MedicalProfessionals

At the SUDC Foundation, we want to clarify that while we provide essential support to families affected by the sudden loss of a child, the Sudden Unexplained Death in Childhood Research Resource Center (SUDCRRC) operates independently, focusing on vital research to understand and prevent these heartbreaking tragedies. Together, our work spans support and scientific discovery, each mission unique yet aligned in purpose. #SUDCFoundation #SUDCRRC #Awareness #SUDCResearch #SUDCAwareness

Professionals, hear from Jenni Thomas, OBE—a pioneering bereavement expert with over five decades of experience. Join us for ‘Beyond Sorrow: Nurturing Families in Times of Child Loss’ and gain profound insights on providing compassionate, effective support to grieving families and children. Submit your questions by December 1 to have them answered during this unique learning opportunity, offering practical strategies to navigate grief. Enhance your ability to provide meaningful support in your professional role. Comment below if you'd like the form link to submit your questions!

This #GivingTuesday, join us in making a meaningful investment with the SUDC Foundation. Your support helps us drive critical research, provide essential support, and bring comfort to families affected by Sudden Unexplained Death in Childhood (SUDC). If everyone that read this post, gave $10...we would be able to accomplish so much! ?? https://sudc.org/donate/ #SUDCFoundation #SupportFamilies #MakeADifference #GivingTuesday #GivingTuesday2024 #UnleashGenerosity #GiveBack #SupportNonprofits #DonateToday #SeasonOfGiving #BeTheChange #Philanthropy #EndOfYearGiving

Halloween can be a difficult time for families grieving the loss of a child. ???? While it’s a holiday often filled with joy and fun, we understand that it can bring up a range of emotions. If you or someone you love is facing this season with a heavy heart, know that it’s okay to take a step back, honor your feelings, and remember your child in your own way. ?? Whether you choose to light a candle, spend the evening quietly, or embrace a new tradition, we stand with you. Let’s make space for healing, hope, and remembering our children, not just today but every day. If you’d like to support families navigating grief this season, consider donating to help provide resources and care. ?? https://sudc.org/donate/ #HalloweenHealing #ChildLossSupport #GriefJourney #RememberingOurChildren #SuddenDeathInChildhood