Perma Pure LLC的动态

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NxStage's portrayal of home hemodialysis as a “freedom-giving” solution borders on manipulation, with their focus on the Bates as “advocates” who supposedly embody patient empowerment. Let’s get clear on what’s really happening: the Bates aren’t “advocates”—they’re mercenary ambassadors, paid to spotlight NxStage as if it’s the one and only option for patients seeking independence through HHD. This approach falls dangerously short of genuine advocacy Real advocacy is transparent, balanced, and patient-centric. It’s about empowering individuals to make informed choices across all available treatment options, not just the one backed by a sponsor’s dollar. But what NxStage Medical, Inc. is doing with its promotional campaign and carefully curated social media moments is far from empowering—it’s straight-up brand ambassadorship masquerading as “freedom.” And it’s glaringly one-sided. True advocates would discuss other #HHD solutions, like Outset Medical, Inc. #Tablo, which offers more flexibility for some patients in a very different way. The message here is superficial at best and misleading at worst. It sidesteps the real obstacles of HHD: intense training, complicated setup, constant monitoring, and a lifestyle that revolves around safety measures. The day-to-day routine of home dialysis is anything but “freedom” in the simplistic sense that NxStage’s ads imply. For most patients, HHD means careful adherence to medical procedures, a continual focus on sanitation, and no small amount of physical and emotional labor. And to all the #FreseniusMedicalCare employees endorsing this as advocacy—really? How can paid sponsorship, with its polished, choreographed messages, be anything close to real advocacy? Real advocates champion patient rights, push for better access, and inform people about ALL available options, not just the one they’re paid to promote. If you genuinely believe in patient empowerment, why not take this so-called advocacy further? Why not ride those motorcycles to Washington or present this “freedom” pitch to groups actually working for patient rights, like WaitlistZero.org? This entire campaign by NxStage, with the Bates front and center, is a grotesque display of paid sponsorship. And that “freedom” slogan? It’s a shiny but hollow tagline. Where’s the talk about the everyday realities of HHD? Where are the resources for those navigating insurance coverage for multi-state listings, the logistical challenges of portable dialysis options, or the realities of maintaining health in a home dialysis environment? Patients deserve better than a one-note brand ambassador campaign that looks more like an ad for a high-end lifestyle product than a real option for chronic illness management. They deserve real options, real voices, and above all, real advocacy that addresses the realities of life on dialysis. Joe Turk Andy Pate Kimberly Davis U.S. Department of Health and Human Services (HHS) Centers for Medicare & Medicaid Services

NxStage Medical, Inc.’s latest video featuring the Bates as “advocates” for home hemodialysis (#HHD) is a dangerous joke disguised as empowerment. This TikTok reel is the opposite of advocacy; it’s pure, paid ambassadorship—mercenary ambassadors promoting a brand, not genuine voices supporting patients. NxStage is shamelessly pushing a misleading narrative, playing a cheap trick with the idea of “freedom” by showing a couple joyriding on mopeds or tricycles, pretending that a life on HHD is just a carefree tour across America. What they’re selling is a fantasy, not reality, and this ad misses the mark in every possible way. Let’s get real about what it takes to live on HHD. It’s not “snap and tap” like the video suggests; it’s grueling, constant monitoring, strict sanitation, exhausting cognitive strain, and relentless pain. Where are those realities in this clip? Instead, we see a couple bouncing around to their favorite tunes, acting like setting up dialysis is a breezy two-step routine. Advocacy is about raising awareness, advocating for legislative change, and educating patients—not dancing to a beat on a TikTok clip. When was the last time these “advocates” rode their mopeds to the front steps of US Congress? Or wrote a letter to the Senate, met with U.S. Department of Health and Human Services (HHS), pushed legislation through US Ways and Means? My guess? Not recently—they’re too busy playing around on social media, delivering an over-simplified message to vulnerable patients. If this is what NxStage calls “advocacy,” then we’re in big trouble. True advocates don’t gloss over the gritty reality of HHD. They’re out there—working behind the scenes, talking to Congress, challenging Centers for Medicare & Medicaid Services, and advocating through organizations like Waitlist Zero. NxStage, by contrast, is flooding feeds with a grotesque display of paid ambassadorship, trivializing the demands of HHD for a cheap “feel-good” story that should be removed immediately. This video is dangerous; it suggests HHD is simple and liberating when the real-life experience is anything but. Patients deserve transparency and support, not a TikTok fantasy from people whose primary job is to sell a brand, not educate or empower. NxStage, enough is enough. Real advocacy isn’t about posing on an RV tour with a dialysis machine and calling it freedom. Stop the PR charade, respect the reality HHD patients live with every day, and maybe, just maybe, take your mopeds and tricycles to Washington for some real change.

Public Post: Calling Out NxStage’s Dangerous Social Media Campaign To NxStage Medical, Inc. leadership—Andy Pate, Michael Kraus, and the social media team—your latest #TikTok campaign featuring the Bates as so-called "advocates" is a grossly irresponsible misrepresentation of home hemodialysis . This campaign presents a sanitized, deceptive version of life on HHD, where patients supposedly "snap and tap" their way to freedom, dancing in front of machines, riding mopeds, and taking carefree RV trips. It’s time to recognize this content for what it is: a shallow, brand-driven fantasy that ignores the actual, grueling realities HHD patients face daily. FACT: the Bates are not advocates. They’re paid brand ambassadors for NxStage, focused on pushing one product without acknowledging the full spectrum of #dialysis options. Real advocacy doesn’t mean promoting a single brand. It means educating patients about all available treatments, being transparent about the potential risks, limitations, and demanding nature of HHD. By portraying #HHD as a simple lifestyle choice with "freedom" as the end goal, NxStage irresponsibly downplays the physical and emotional toll of dialysis. For many, HHD isn’t about freedom; it’s about vigilance, commitment, and daily sacrifice. The “snap and tap” message is dangerously misleading. Where are the explanations of the intense training, the risks of infection, the exhausting setup and sanitation needs, and the physical strains? Real HHD patients know the truth: they face unrelenting cramps, cognitive strain, and constant safety protocols—not a carefree lifestyle. If #NxStage, Fresenius Medical Care, and your leadership want to advocate for HHD patients, look to those who are actually pushing for systemic reform: real advocates meeting with U.S. Department of Health and Human Services (HHS), Centers for Medicare & Medicaid Services, and US Congress, drafting legislation, and fighting to address serious gaps in renal care. These advocates aren’t on TikTok trivializing dialysis; they’re behind the scenes, pushing for increased patient protections and better access to all treatment options. By promoting a campaign that minimizes the daily hardships of dialysis, NxStage trivializes the very community it claims to support. This isn’t empowerment; it’s dangerous, and it’s dishonest. The Bates riding mopeds, RVing across the country, and posing with dialysis machines to a soundtrack is not what dialysis patients face, and it’s certainly not advocacy. It’s brand ambassadorship—and a shallow, misguided one at that. It’s high time for NxStage and Fresenius to reconsider their messaging strategy. This misleading TikTok campaign does a disservice to the kidney care community, undermines the credibility of renal care advocacy, and ignores the grueling realities that patients face every day. Take this content down and realign your social media to support true advocacy Xavier Becerra Chiquita Brooks-LaSure

Patient Safety Awareness Week is coming to an end, but our commitment to patient safety continues. As we always strive to raise the bar in patient care, by providing aids that benefit both users and caregivers, we're excited to share a little secret with you. Building on our experience and the success of our existing transfer aids, we will soon launch a new transfer device. But before we unveil our latest innovation, we want to hear from you! What features do you value most in transfer aids, and what improvements would make your caregiving experience even better? Share your thoughts in the comments below! ?? Stay tuned for the big reveal, coming soon! #CreatingPossibilities #PatientSafetyAwarenessWeek #PatientHandling #PatientTransfers

Patient Safety Awareness Week is coming to an end, but our commitment to patient safety continues. As we always strive to raise the bar in patient care, by providing aids that benefit both users and caregivers, we're excited to share a little secret with you. Building on our experience and the success of our existing transfer aids, we will soon launch a new transfer device. But before we unveil our latest innovation, we want to hear from you!? What features do you value most in transfer aids, and what improvements would make your caregiving experience even better? Share your thoughts in the comments below! ?? Stay tuned for an exciting reveal, coming soon! #CreatingPossibilities #PatientSafetyAwarenessWeek #PatientHandling #PatientTransfers?

That's exactly what this group is - a team. Having team players is key to success. Team players bring a collaborative spirit, a willingness to support others, and a focus on the collective goal. How does your team ensure everyone is aligned with this mindset?