Papa的动态

The Mask of a Type 1 Caregiver ?? "Every morning we put it on. There is not enough coffee to make it all go away. Exhaustion sets in, and sometimes you might find us crying in the bathroom. Hiding it from our child whom we show up strong for every day. On the outside, you might see a woman that is put together. Her smile might radiate a room, but the worry lingers. Sacrificing our own life most days, to show up strong for theirs. We would not change the sacrifice, it’s what we do. Tired, worn, covered in old juice from fighting a low hours before we have to show up to work. Pit in our stomach from medical bills, and let’s not even discuss the cost of medication for a lot of us. Denied by insurance companies for tools to help our littles become superheroes. We fight the fight. ….superhero with a insulin pump, not a cape. A small reminder that their childhood was stolen. Denying our children a dream of growing up to be a pilot. Or even a firefighter. To risky they say. Train them to get a “job” with “good benefits”….a conversation no parent should be having with their 11 year old. We are supposed to teach them to dream. Their dream is a cure. The anxiety of death is real. Dead in bed, they call it" Want to help? Links in BIO. Donate:https://lnkd.in/g9RWCX2 Source: The Diabetic Journey #T1Dcaregiver #raisingawareness #daniifoundation

PART 2 of 3 POSTS: In addition to demonstrating our support for these initiatives, most importantly, we have come together today to speak up for our loved ones who are voiceless, to fight for their right to urgent medically necessary healthcare at the onset of their brain illnesses when a better recovery path is possible. We also demand supportive services and housing that heals for all Californians living with chronic serious untreated psychotic brain diseases and/or substance use disorders. This doesn’t just include the estimated 1/3 of our homeless population suffering from serious brain diseases, like schizophrenia and other psychosis spectrum disorders including bipolar, and those with substance use disorders. It is not just about “Treatment Not Tents” —that’s not the whole story by far. People on our streets are the visible vulnerable folks that are left in life threatening psychosis with anosognosia, the neurological symptom rendering them unable to recognize they are sick and the #1 reason they cannot seek care on their own. This also encompasses the invisible population of sick people who are occupying “the beds that never say no”—jail and prison cells—where many die alone in a cell or solitary confinement with no lifesaving treatment. The names on my jacket are a small sample of the poor souls with mental illnesses who died in San Diego County jails and on the streets in 2022. And as so many people here today know, our sick, deteriorating loved ones living at home with their families—families who are desperately fighting for their children’s right to lifesaving healthcare. Families who have been told repeatedly by county officials to kick their child out and make them homeless to increase their chances of getting treatment. I ask you, “Would we do this to a family member with Alzheimer’s or Parkinson’s disease psychosis? NO!! Due to the abdication of responsibility of our mental health system, these families are the sole caregivers of their children. They have been forced to perform jobs they are not trained for: social workers, clinicians, chauffeurs, and myriad other responsibilities--all without supportive services that are part of even the lowest standard of care for other disabling illnesses. Both county Medi-Cal and private insurance companies routinely deny patients’ rightful claims for services and reimbursements. Parents are desperately trying to keep their children safe and alive, while sacrificing their own lives and careers and trying to keep their families intact. They know that everyday their child is left in untreated psychosis can mean the difference between life and death. For over 65 years lifesaving healthcare has been denied to this disenfranchised group of people based on the nature of their treatable medical brain illnesses. No other diseases are treated this way. It is blatant discrimination! We do not and would never put up with this neglect for any other illness! Enough is enough!

The hospital is not a cozy place to be - I keep thinking. Many of you look at doctors and nurses as privileged. But every day I am at the outpatient or emergency units, in the wards, or critical care. What I see reminds me to stay humbled. When I walk around the streets in town I see many of us proud, naughty, loud, arrogant, and beyond correction. But one day at the hospital could change our perspective. I learned that family is key - when all other things fall - family will remain. But if you don't invest in your family - they too will desert you. I have seen husband and wife who will be there for each other no matter how critical or irreversible the disease is. Through all, they are side by side. I have seen a wife refuse to take care of a husband because he used to mistreat her when he was healthy. I have seen a husband feel a lot of pain and reluctant just to help a sick wife just because she has not been keen on family matters. I have seen children who will arrive at the hospital in minutes when their parents are sick. I have seen children who will take days to arrive at the hospital when their parents are sick. Maybe because the parent invested in educating them and now they are financially able to help their parents. Maybe the parents treated and raised their children well appreciating the value of family. Maybe the reason is beyond obvious. I have seen family members fighting about whether they should invest lots of money in the treatment of a loved one or not. I have seen the high mighty get their insurance exhausted and end up seeking support. There is a lot to learn when you sit at the hospital. There is no pleasure in playing games or mistreating your loved ones. There is no good outcome when you do not invest in your relationship and family. It will bite back. As it is said - you reap what you plant. It is unreasonable to invest in mediocrity and expect excellence back. People - stay humble and take care of your loved ones when you are strong. Stay humble and take care of your health. When the sun goes down - at least there will be people shining love on you.? .... PS: My short stories book has been best selling last month. Support my work by grabbing a copy and enjoy the transformative stories. Order via link or inbox me. https://lnkd.in/d62G95Sy

Harmony Ball-Stribling’s story stays with us. ?? Just days before she was meant to hold her baby girl, Harmony lost her life to pre-eclampsia—a condition that could have been prevented with the right care. She had health insurance, a loving family, and hope, but what she needed most—timely, accessible care—was out of reach. This is a reality no mother should face. Yet, for far too many—especially women of color and those living in rural areas—access to basic healthcare remains limited. These gaps in care carry devastating consequences, and it’s time to change that. We’re here to rewrite this story, so no other mother has to face the same heartbreaking outcome. We’ve developed AI-powered screenings and preventive health assessments to catch conditions like pre-eclampsia early, giving moms the care they need before it’s too late. Our goal is simple: ensure that every mother gets the support she deserves, no matter where she lives or what challenges she faces. We’re rolling out our Beta product to bring this life-saving care to even more moms. Because at Myri —it’s about making sure no mother is left behind, and no family has to endure this kind of heartbreak. Join us in our mission to make sure every mom gets the care she needs when she needs it. ?? #everymomdeservescare #maternalhealthmatters #myricares #preventivecare

Desperate oral health amongst the homeless is well documented. Yet a meaningful solution is unapparent. But a California group is proving that with existing government funding, medical care for the homeless can be well organized and even profitable. https://lnkd.in/g2tD5S3N So can a similar initiative be developed in oral healthcare? Perhaps, if the model is based on fighting infections in the mouth rather than drilling and filling. Using hashtag #Prevora, healthcare workers including hygienists, can quickly and painlessly deliver preventive care under a bridge, or in a shelter. Without any equipment, without aerosols, and without fear and anxiety. Using the new national dental plan to fund this new kind of dental care, community-based care for the homeless is now possible. Let's get to work. A California Medical Group Treats Only Homeless Patients — And Makes Money Doing It - KFF Health Newskffhealthnews.org

Desperate oral health amongst the homeless is well documented. Yet a meaningful solution is unapparent. But a California group is proving that with existing government funding, medical care for the homeless can be well organized and even profitable. https://lnkd.in/g2tD5S3N So can a similar initiative be developed in oral healthcare? Perhaps, if the model is based on fighting infections in the mouth rather than drilling and filling. Using hashtag #Prevora, healthcare workers including hygienists, can quickly and painlessly deliver preventive care under a bridge, or in a shelter. Without any equipment, without aerosols, and without fear and anxiety. Using the new national dental plan to fund this new kind of dental care, community-based care for the homeless is now possible. Let's get to work. A California Medical Group Treats Only Homeless Patients — And Makes Money Doing It - KFF Health Newskffhealthnews.org

Whether you are a parent, school official, health practitioner, faith community leader, employer or government leader, you are in a unique position to affect change. This guide is designed to help you create healthy environments and to help you actively lead, advocate for, and implement healthy weight programs in your homes, your workplaces and your communities throughout the state of Virginia. Obesity is a disease that leads to other diseases. It shortens lives and increases health costs, including health insurance premiums. Overall, 28% of Virginia adults have obesity. Rates for African Americans and Latinos are higher than the state average at 41% and 29% percent, respectively. In comparison to other states, we rank in the top percentile, which means many other states have worse rates of obesity; however, we need to be proactive to address our needs here in the Commonwealth. Obesity rates in Virginia vary by community, ranging from 18% in some rural communities to 45% in our wealthier urban areas. Virginians need to continuously monitor the multiple factors (individual behaviors as well as environments where people live, learn, work, worship and play) that contribute to overweight and obesity among children, youth and adults. We have worked on a Revised Action Plan for a Healthy Virginia and it will be released soon! Want to get it before everyone else? Sign up here: https://lnkd.in/e9CXw2tH #preventionconnection #healthyvirginia #endchildhoodobesity #nonprofit #tobaccoprevention #virginia #getinvolved?#actionplan

But what if you're homeless? "They chose this lifestyle." -Oh really? 1. There was a fire at one of the encampments tonight. -Could you imagine losing everything? Your identification, your medication, your possessions, your food, your shelter? 2. Why don’t they just use the bus? -What if it’s too far to walk? What if it’s raining/snowing/freezing? What if the bus is not running at the time you need it to run? 3. I heard you can get a free phone from the government. -What if your stuff was stolen at the shelter where you are staying? What if you lost it in an encampment fire (see 1 above)? 4. They can get on Medicaid. They can use food stamps. They can get governmental assistance. -What if you can’t get to the Medicaid/Medicare office (see 2 above)? What if you can't do the paperwork? What if you don’t have a phone (see 3 above)? What if you lose your governmental assistance? What if you don’t have transportation (see 2 above)? What if you don’t have the correct identification (see 1 above) 5. Why don’t they just get a job? -How do you get an interview without a phone (see 1 above)? Let’s say you do manage to get an interview, how do you get there (see 2 above)? What do you wear for the interview (see 1 above)? How do you get to your job (see 2 above)? What if the bus station is too far away to walk? What if you’re disabled or differently abled (see 4 above)? What if you have children (see 4 above)? What if you had a job but you were fired/the company downsized/etc? What if you have a prison record and no one will hire you? (see 7 below). 6. Why don’t they just quit using drugs/alcohol? -Why doesn’t a diabetic just tell their pancreas to work properly? -It can be deadly for some people to stop using drugs/alcohol without tapering down safely (in a medical setting). For those who are ready to quit: what if you don’t have insurance, so you can’t get the healthcare you need (see 4 above)? What if you have medicare, but you can’t get to the clinic (see 2 above)? 7. It’s their fault. -Oh really? So you’ve never made a mistake in your life? You’ve never had an illness? See 1-6 above. 8. Why don’t they just get on suboxone/methadone? -What if you can’t get to the clinic (see 2 above)? What if it is 2 months before the provider can see you? What if the shelter won’t accept you if you take suboxone? 9. Why don’t they just stay at a shelter? -What if they can’t get to the shelter (see 2 above)? What if the shelter is full? What if you have an animal and the shelter doesn’t allow animals? 10. Why do they have an animal if their homeless? -What if you recently became homeless? What if your animal is a service animal/ESA? I'm sure there is more I could add. I'm sure there are some vicious cycle components that I'm missing. But hopefully you get the point. #endhomelessness

“Illness wounds the spirit as it injures the body.” -Illness and Health in the Jewish Tradition Full citation in comments. I’ve said this before and I will restate it here; No one gets out of here alive. The US healthcare delivery system is overly bureaucratic, complex, confusing, confounding and unforgiving. And that’s if you have insurance. If you don’t and you “fall between the cracks”, getting sick or becoming injured is a nightmare. And if you are living on the streets and chronically ill, it’s hell. https://lnkd.in/egMaVbXs The article below includes photographs and brief vignettes of people struggling to stay alive. The healthcare providers are doing #holywork plugging holes in the dike holding back the cascading waters of illness, disease, disability, depression, sickness and death. They are the ultimate #patientadvocates. Bless them and the healing work they do. #bearingwitness #weareallpatients #patientvoices #firstdonoharm #voiceofthepatient #livedexperience #sdoh #socialdeterminantsofhealth #roughsleepers #medanthro #ptsd #substanceabuse #mentalhealthmatters #medicalanthropology #patientadvocate #primumnonnocere #sorrowandwounds #thehumancondition

Mental Health Book Club is a monthly meeting with an authors' series format. You can join for free or make a monthly tax deductible donation to support Sharp Index. Join now and our meeting is Thursday September 12, 2024. Book Club is a good fit for: People who want to discuss Moral Injury in Healthcare. People who want to understand why it isn't easier to get mental health support in the US People who want to meet Wendy Dean, MD who is AMAZING. People who say it "Isn't that bad this is all just hype" like that one insurance executive I won't tag but YOU KNOW WHO YOU ARE People who work for EHR companies -looking at you Epic and Jackie Gerhart People who work in policy and healthcare reform Women in Medicine People who are funny Physicians Physicians in training Nurses People who have read the book People who want to read the book People who have written their own book. People who are coaches for physicians and healthcare executives Executives People who have researched mental health Anyone who is good at memes I hope you can come. #MentalHealth #SuicidePrevention #MoralInjury #MedEd