naviHealth的动态

It will be 4 mins well spent. I promise. Joe Green and the team have a real understanding of the practical gaps in analytics and how to part fill them with tools like this, freeing up precious local analytics time to do the pieces that can never be automated. #populationhealthmanagement ##populationhealth ##integratedcare #nhs #valuebasedcare

ALL ABOARD THE DATA EXPRESS The train has left the station but is patient relevant data left on the platform? Pharma companies have been building #patientexperience platforms that harvest data for over a decade. There are some fantastic platforms out there — kudos to @Teva for example who created ‘MyDay’ for people living with cancer and also ‘Life Effects’ which is condition-agnostic and encourages patients to share hacks and tips about living with conditions. Both of these were the brainchild of the fabulous Ruth Wilson who is one of our most highly respected members at #ISPEP. That’s pharma. What about the #PatientAdvocacy groups. These organizations now match pharma in the platforms they create and when it comes to generating data of the greatest relevance to patients they are evolving the insights model. Here’s where kudos goes to platforms like ‘Inspire’ created by Brian Loew to link patients with clinical trials. Second generation platforms like ‘People With…’ (Mark Bradley) inspire me and I’m fascinated by the work of the team at ‘A Life In A Day’ (Mark Doyle) who are capturing the patient experience of trial participation in a highly creative way. Regulators have caught up with this and are inviting data beyond PROMs and PREMs — they welcome caregiver data, observer data and family data. Importantly, they are starting to listen to the real world experience of patients beyond the clinical trials model. The collaboration between regulators and patients is changing to keep up with these data from the patient platforms. However pharma is still overlooking the value of #patientgenerated data. That’s data from a patient platform, a patient app, a patient survey that should be included in a company’s evidence generation plans. It’s still primarily about evidence for HCPs with patient data an afterthought. Why? I think it’s all about inertia — the classic pantomime villain in a Biopharma. Inertia comprises two things — fear and mistrust. In practical terms, this presents as downsizing the importance of patient-generated data. If the data isn’t generated by the company, they consider it ‘dirty data’. The business folks don’t trust it. The compliance folks fear it. So it’s closed down as a ‘risk’. Then they don’t have to deal with it. The irony is, all they have to do is collaborate with patient orgs and ‘clean it up’ to clinical standards. The same data is relevant in different ways to all stakeholders. At #ISPEP we will use our collective experience to figure these kinds of challenges out. Because the data train will keep chugging forward and clinical evidence must include patient data too. After all; nothing about us without us is the founding principle of Patient Focussed Medicine Development #PatientEngagement #PatientCentricity #PatientEngagementProfessionals #PatientsFirst #PFDD #PFMD #PatientExperience #PatientVoice #PatientInsights #PatientData #RWD

Today at 2 PM I'm attending the first virtual session for 2024 of HealthIMPACT Live virtual. At 3:50 PM ET the latest episode of "5 Good Things" with Megan Antonelli will air. I am thrilled to share good things- here are SOME (but not all) of the things I am going to talk about. 1. I shared some of the news that Erin Brodwin from Axios reported about Rune Labs and their Parkinson's development. https://lnkd.in/d3puu2DD First of all she's a great reporter and I'm secretly planning to invite her to interview people with HealthIMPACT Live (you heard it here first). Secondly one of my grandfathers died of Parkinson's and I'm thrilled that there are people working to improve things. 2. CMS has a chief competition officer. Stacy Sanders has been appointed to work on lowering healthcare and prescription drug costs and coordination with the FTC and DOJ to discuss anticompetitive healthcare technology data practices. I would love to discuss that more- I've seen companies with questionable data ethics about AI development for healthcare- and I think if you are appointed to do this work you must be a MASTER of balance. BONUS I got to talk about the Sharp Index awards for this year. A series on hope, we want to make it super popular to work to help others! Technology companies you are needed! Physicians, you are needed. Everyone is needed. learn about the awards here: https://lnkd.in/d2gBtWw8 #SharpIndexAwards Register for free: https://lnkd.in/gmVwV4SV Follow the hashtag #HealthIMPACT

Way too early take on the IQVIA "one home" annoucement: It probably will win? I'm not a technologist but it seems like eveyone agrees in concept: we're only going to have MORE tech not less moving forward AND it's already burdensome and out of hand. Most of the people I've heard speak at length think that a vertically integrated single solution is either unlikely or impossible which leaves this sort of universal adapter for tech as the best alternative. If it works. And gets adoption. Being one of the biggest CROs with a great pedigree will give IQVIA a head start in category two, which just leaves the functionality piece up in the air. We're probably not seeing a press release if they're not already confident in the platform's ability to deliver though. I do sort of wish the industry had taken a zelle-like approach though. Did you know that Zelle's parent company Early Warning Services, LLC is actually co-owned by the seven largest banks in the US? This collaborative approach means Zelle covers > 80% of Americans, allowing these stalwart institutions to stay relevant in the rapidly evolving digital payments space. It ALSO allows them to offer certain services for free that other payment platforms like Venmo charge for. If "One Home" is truly aiming to be THE tech-bridging solution, they'll have to convince other CROs to bend the knee - otherwise they can expect a tech knife fight which might lead us right back to where we started: a bunch of CROs all have their own tech-neutral platform that can connect everything - BUT SITES STILL HAVE TO LOG IN TO 7 DIFFERENT ONES. Am I way off?

Steve Wimmer’s insights on the Zelle model are a fresh look & completely transferable to our industry. If you’re into sharp takes, give him a follow for regular #WimmerWit. Back on topic - if we were actually site-centric or patient-focused that Zelle model would work. But since we’re profit focused, it would take a Mike Bloomberg entrepreneurial agnostic fully-funded approach to making clinical research operational seamlessness happen… But who’s that? So, for now, IQVIA’s “One Home for Sites” is out of the gate the forerunner. Regarding a couple of comments I’ve seen, I’ll remind folks that - much more than a CRO - IQVIA IS a tech company. They were forged by the merger of Quintiles (CRO) & IMS (Tech) - they’ve been building their own proprietary tech & and have acquired >300 companies since their inception - many or most being smaller tech companies. However, there’s at least one other who has silently been building behind the scenes yet with full transparency - and I see a number of features that give these competitive advantage. Stay tuned… #techtalk #sitecentricity #patientpriority #sponsorsupport #biotechbooster #vendorvelocity #CROsavvy #cuttingedgeconsults #InvestorInsights #stakeholderstrategies #forerunners #darkhorse #DontSayIDidntTellYou The press release we’re referencing: https://lnkd.in/e7bzAjsb

Atropos Health and SEQSTER have partnered to simplify the establishment of patient registries and enhance the availability of #realworldevidence, accelerating evidence generation and driving advancements in research for underserved populations. Read at The Evidence Base? #rwe #rwd #realworlddata

The health care industry continues to exhibit a rising interest and increasing dependence on RWE for health care decision-making across the business. Multiple global health care regulatory bodies continue to roll out guidance documentation to involve more stakeholders early in the process of drug development, which presents an opportunity to co-create value in health systems. The advancements in digital technology enable the creative use of AI/ML for generating RWE as patients become active contributors in their health care journey. Read the full article below or at: https://lnkd.in/etQ-T4dk #RWE #RWD #trends2024 #artificialintelligenceinhealthcare #machinelearning

Check out Technology Networks’s take on our new predictive Patient Burden Score! ?? We enhanced Phesi’s #AI-driven Trial Accelerator? platform with the addition of the Patient Burden Score to help the #ClinicalDevelopment industry overcome common challenges. Discover how the Score will help reduce patient burden and simplify trial design, here.?? https://lnkd.in/ezHHCWXQ #ClinicalTrials #Data

Mayo Clinic and Mercy are making a significant advancement in their global, first-of-its-kind 10-year collaboration agreement signed in the summer of 2022. As founding members of Mayo Clinic Platform_Connect, the two organizations will now be working together to analyze de-identified patient data as they search for new ways to diagnose, treat, and prevent disease, providing better outcomes and lower costs of care. Read More: https://lnkd.in/d3x6m7Ya John Halamka, M.D., M.S. president of Mayo Clinic Platform, Joseph Kelly, executive vice president, chief transformation officer for Mercy, Byron Yount, chief data and AI officer for Mercy, commented on the milestone. #mededgemea #mayoclinic #healthdata #AIinHealthcare #innovativehealthcare #patientcare #healthcareinnovation #digitalhealth #BigData #medicalresearch #healthcaretransformation #globalhealth #PatientOutcomes #AIhealthcare

At Waymark, we're often asked how we identify “rising risk” patients and intervene early to prevent them from becoming high-risk, high-cost claimants. Our approach relies on a powerful combination of AI-driven targeting and human connections to engage patients during the critical window of time before their health changes for the worse — and they end up in the ED or hospital as a result. Read more here: https://wymrk.co/3vN3ChX